Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for September 2021

Advice please...tapering decision?

I know none of you can make this decision for me but I'm looking for some input from the people who have walked this GCA walk with me for two years and...

I know none of you can make this decision for me but I'm looking for some input ...

Grammy80

•3 years ago

85 Replies

Third Booster Shot

Government latest on third jab...

piglette

•3 years ago

7 Replies

Good News!

No worries re my kidney issues! I can go into details if anyone has an interest, but so happy I’m ok! I have been on 5 mg for two days and so far I’m doing...

No worries re my kidney issues! I can go into details if anyone has an interes...

507Trail

•3 years ago

1 Reply

Want to take advantage of all our features? Just log in!

BLOOD SAMPLE BOTTLES - a note from my Medical Centre

As you may have heard on the news there is a national shortage of blood sample bottles. GP surgeries have been instructed by NHS England to stop all routine...

As you may have heard on the news there is a national shortage of blood sample ...

piglette

•3 years ago

33 Replies

PMR and Fatigue

Hi everyone, Nice to talk to you all and find out that I'm not the only one suffering. I was diagnosed with PMR about 6 years ago and have been taking...

Hi everyone, Nice to talk to you all and find out that I'm not the only one suff...

crazyknitter

•3 years ago

8 Replies

Cortisol blood test

Hi again, please excuse my apparent ignorance, probably brought about due to poor or insufficient advice from the Medical profession. I have two questions: I...

Hi again, please excuse my apparent ignorance, probably brought about due to poo...

maxxgarry

•3 years ago

23 Replies

Ibuleve or not?

Hi all, I was diagnosed with PMR about a year ago and have been on Prednisolone reducing from 20mg to 6.5mg now and all is going well. My question is, I have...

Hi all, I was diagnosed with PMR about a year ago and have been on Prednisolone ...

Pinkly

•3 years ago

25 Replies

Hands trembling

I was "diagnosed" (guessed at really) as having developed PMR in April/May this year. Started on 15mg of Pred, which didn't touch the sides, then 25 for two...

I was "diagnosed" (guessed at really) as having developed PMR in April/May this ...

Flivoless

•3 years ago

18 Replies

Rheum visit on the 22nd-should I ask for fresh bloods?

Dear learned friends. I’m not monitored by anyone and just sort my pred out myself. I read that I should have regular bloods, psychological support and maybe...

Dear learned friends. I’m not monitored by anyone and just sort my pred out myse...

MiloCollie

•3 years ago

10 Replies

Stiff, slightly swollen hands. Cant grip

A few weeks ago I had a slight flare with sore shoulders and legs and painful hands. I was taking three quarters mg of Pred and your advice was to take maybe 3...

A few weeks ago I had a slight flare with sore shoulders and legs and painful ha...

Vaggers

•3 years ago

25 Replies

Back and spine

Anyone had steroid injections in back if how long do they take to work and what exercises are advised please

Anyone had steroid injections in back if how long do they take to work and what ...

Bling123

•3 years ago

9 Replies

Bit down - just diagnosed with cataracts

Was hoping for break after move, just to let dust settle. Went for eye test as sight improving so glasses wrong when hey presto - cataracts. No visible...

Was hoping for break after move, just to let dust settle. Went for eye test as ...

Poshdog

•3 years ago

38 Replies

Busy week ahead, should I increase my dosage slightly

I have a very busy week ahead which involves quite a lot of driving and activity, thankfully leaving home mid morning so I have time to wake up and get......

I have a very busy week ahead which involves quite a lot of driving and activity...

Billiebobdog

•3 years ago

13 Replies

Tapering dose of Prednisilone

I have had Polymyalgia for 5 years. The initial dose of 15mg of prednisilone worked. However when I have have reduced the dose down to 2mg the shoulder and...

I have had Polymyalgia for 5 years. The initial dose of 15mg of prednisilone wo...

sailboatstewart

•3 years ago

9 Replies

Calcium levels

Hi . Just wondering . My serum calcium level is above normal 2.5 - do I continue to take my calcium as normal . The GP office said yes fine to continue - but...

Hi . Just wondering . My serum calcium level is above normal 2.5 - do I continue...

Ballywilliam

•3 years ago

7 Replies

Vitamins

Hi all i have been on my journey for 21/2 years not doing too bad a few ups and downs. I'm now on 61/2mg of prednisone and not doing too bad but after 20...

Hi all i have been on my journey for 21/2 years not doing too bad a few ups and ...

Snnib

•3 years ago

11 Replies

Is this GCA?

Over last 21 months have slowly tapered down from 20mg to 1mg following Dorset Lady's plan. I'm now in the 3rd week of tapering from 2mg to 1mg. Spoke to GP...

Over last 21 months have slowly tapered down from 20mg to 1mg following Dorset L...

granofthewest

•3 years ago

16 Replies

NEW UPDATE ON BP TAKE

New update on BP take Called by GP to go to Surgery to have ECG and another blood test. Seen by assistant who takes blood. She did the ECG and took blood....

New update on BP take Called by GP to go to Surgery to have ECG and another bloo...

Suffererc

•3 years ago

8 Replies

Speak to gp

I spoke to Gp he said carry on with 10 pm steroids go down only 1 mg per month. Said it a learning curve. He will call me in 4 weeks. Thanks for help.

I spoke to Gp he said carry on with 10 pm steroids go down only 1 mg per month. ...

Uglow

•3 years ago

5 Replies

GCA patient with Pneumonia : .Any thoughts or experience dealing with this ?

I was diagnosed 10 days ago. Cough is much better but I am ridiculously weak and afraid of flaring since the immune system is so ramped up. Negative covid...

I was diagnosed 10 days ago. Cough is much better but I am ridiculously weak an...

Blurry62

•3 years ago

21 Replies

Prednisolone/Vitamin D3 timing

I’ve been suffering symptoms of PMR since June 2020 and started treatment in October 2020. Started on 15mg Pred and now down to 11mg - reducing by 1mg every 6...

I’ve been suffering symptoms of PMR since June 2020 and started treatment in Oct...

Dorothy61

•3 years ago

47 Replies

Third COVID vaccination guidance

Someone may have posted about this but I haven’t seen it. Hope the link works if not search JCVI guidance 1st September:...

Someone may have posted about this but I haven’t seen it. Hope the link works if...

Kafkaontheshore

•3 years ago

9 Replies

And I thought it was all over…

I’ve had little PMR pain for the last 9 months. Have been slowly reducing Pred, though regular step backs with illness but down to 4.5. Smugly I thought my PMR...

I’ve had little PMR pain for the last 9 months. Have been slowly reducing Pred, ...

Enfin

•3 years ago

14 Replies

Toothache or GCA

Hello all you wonderful people. I come to you first before I call the doctors. I've had PMR for nearly four years now, down to 3 mg of prednisone, and feeling...

Hello all you wonderful people. I come to you first before I call the doctors. ...

misspops

•3 years ago

28 Replies

Anyone experience Intercostal Neuralgia? or Rhomboid pain?

Quick question: has anyone experienced "intercostal neuralgia" with their PMR? I have had PMR for three years and I am currently tapering pred now at 5 1/2 mg...

Quick question: has anyone experienced "intercostal neuralgia" with their PMR? I...

pmrusa

•3 years ago

8 Replies

Adrenal insufficiency

Just dropped to 9mg of pred from 10mg a week ago. No aches and pains but feel so tired and spaced out. Sleeping 8 hours a night. I thought adrenal...

Just dropped to 9mg of pred from 10mg a week ago. No aches and pains but feel so...

Rosina1871

•3 years ago

2 Replies

Best way to taper from 1mg down to zero

I have been on 1mg for several months and wonder if it is better to taper gradually using one of the plans and go from 1mg (old dose) to 0.5mg (new dose) or...

I have been on 1mg for several months and wonder if it is better to taper gradua...

pmr_nikola

•3 years ago

7 Replies

Why do doctors blindly follow the guidelines

Follow up. . So Doctor rang Didn't tell him gone to 25mg instead of the 22.5 he alllwed because his first words were banging on about how are you on this high...

Follow up. . So Doctor rang Didn't tell him gone to 25mg instead of the 22.5 he ...

Buttonshutton

•3 years ago

15 Replies

An update …

I have a Rheumy appointment this afternoon because I started to feel horrible about two weeks ago. She called me yesterday after receiving my latest bloods...

I have a Rheumy appointment this afternoon because I started to feel horrible ab...

LemonZest11

•3 years ago

50 Replies

Tooth Sensitivity and Vitamin K2 - edited

Here is a nice little explanation of how Vitamin K2 helps your teeth so they become less sensitive....

Here is a nice little explanation of how Vitamin K2 helps your teeth so they bec...

HeronNS

•3 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

Advice please...tapering decision?

Third Booster Shot

Good News!

BLOOD SAMPLE BOTTLES - a note from my Medical Centre

PMR and Fatigue

Cortisol blood test

Ibuleve or not?

Hands trembling

Rheum visit on the 22nd-should I ask for fresh bloods?

Stiff, slightly swollen hands. Cant grip

Back and spine

Bit down - just diagnosed with cataracts

Busy week ahead, should I increase my dosage slightly

Tapering dose of Prednisilone

Calcium levels

Vitamins

Is this GCA?

NEW UPDATE ON BP TAKE

Speak to gp

GCA patient with Pneumonia : .Any thoughts or experience dealing with this ?

Prednisolone/Vitamin D3 timing

Third COVID vaccination guidance

And I thought it was all over…

Toothache or GCA

Anyone experience Intercostal Neuralgia? or Rhomboid pain?

Adrenal insufficiency

Best way to taper from 1mg down to zero

Why do doctors blindly follow the guidelines

An update …

Tooth Sensitivity and Vitamin K2 - edited

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive