Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for June 2021

Advice please on symptom / pain control on pred and W London rheumatologist

Morning all. I have a few questions if I may about my symptoms and pred. Been on 15mg a day for nearly 3 weeks which I now take as soon as I wake (usually...

Morning all. I have a few questions if I may about my symptoms and pred. Been on...

Grannyasbo

•3 years ago

12 Replies

The lurgy

As if the bodily afflictions weren’t enough I’ve now developed an ever growing rash on my chest and shoulders. Unfortunately at night I scratch them. I’ve...

As if the bodily afflictions weren’t enough I’ve now developed an ever growing r...

Singr

•3 years ago

7 Replies

Supplements and results

Has anyone who has improved with pred and extra suppliments. What did you take and how much? I have been told to try saffron Supplement, vitamin d and c. There...

Has anyone who has improved with pred and extra suppliments. What did you take a...

Lynnwd6

•3 years ago

5 Replies

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Rheumatology appointment

Had my first appointment with rheumatologist on Saturday. I have been taking 15mg of prednisolone since 11th May for suspected PMR - it helped enormously with...

Had my first appointment with rheumatologist on Saturday. I have been taking 15m...

chess430

•3 years ago

9 Replies

Dealing with GCA flare

i am now 6 days into a self diagnosed flare up of GCA. currently on 6 mg Pred and weekly Actemra injection (Sunday). Increased pred to 7 to help headach on...

i am now 6 days into a self diagnosed flare up of GCA. currently on 6 mg Pred a...

Carver63

•3 years ago

9 Replies

Alternative medication

Recently diagnosed with PMR . Preds not working feeling unwell . Is there an alternative. ESR 62

Recently diagnosed with PMR . Preds not working feeling unwell . Is there an alt...

Juapce63

•3 years ago

18 Replies

Pred increase not helping

It’s now just over 2 weeks since I was bumped up to 15mg after major flare and I still feel as bad. Only thing that has improved is my mood. But struggling to...

It’s now just over 2 weeks since I was bumped up to 15mg after major flare and I...

Abbey17

•3 years ago

7 Replies

Tinnitus re Withdrawal of Prednisolone

I have developed tinnitus since withdrawing from prednisolone. Could it be the steroids causing this?

I have developed tinnitus since withdrawing from prednisolone. Could it be the s...

Wendymoore59

•3 years ago

27 Replies

Do any of you suffer from swollen joint?

Or to be more precise - I am swollen between the knuckles on hand and feet, and below the joint on the outside of my ankle. The RM said that is water - looks...

Or to be more precise - I am swollen between the knuckles on hand and feet, and...

krillemy

•3 years ago

8 Replies

Is valerian ok to take with pred?

Still having difficulty sleeping due partly to pred I presume and also gastric problems (appointment with gastroenterologist tomorrow) . I do have zopoclone...

Still having difficulty sleeping due partly to pred I presume and also gastric p...

WillOllier

•3 years ago

7 Replies

Update to Q of what GCA headaches are like - bad reaction to covid vaccine

So after many, many ER visits and Drs my possible GCA is TMJ/TMD and inflammatory back pain. I tested negative for the HLA-B27 gene. I just saw a post on a...

So after many, many ER visits and Drs my possible GCA is TMJ/TMD and inflammator...

HealthCW

•3 years ago

5 Replies

Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.

I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of...

I know not many people with LVV/ GCA in the UK are being treated w...

Suzita76

•3 years ago

12 Replies

Sharing so we can all be vigilant....staph and strep infection

As most know, I have GCA. About six weeks ago, I had a slight infection on my face, and my rheumy had me stop Actemra. I resumed on Friday the 28th of May....

As most know, I have GCA. About six weeks ago, I had a slight infection on my f...

Grammy80

•3 years ago

17 Replies

Bloomin’ Pneumonia

Well, irritatingly I am in hospital with pneumonia! Complete pain - and I’m cross because my lovely GP said to wait until I was off Prednisolone before the...

Well, irritatingly I am in hospital with pneumonia! Complete pain - and I’m cros...

Thelmarina

•3 years ago

19 Replies

Advance in RA treatment

I thought this might be of interest:...

Sefu

•3 years ago

2 Replies

Prednisone withdrawal, Pepcid withdrawal?

I am sick as a dog. Weak as a kitten, can barely function. nausea, loss of appetite. Weight loss. Muscles feel like they are being pulled off the bone. I...

I am sick as a dog. Weak as a kitten, can barely function. nausea, loss of app...

phebamom

•3 years ago

18 Replies

Tapering and pains

I managed to taper down from 20 mg to 2 and a half prenisolone then rheumatoid consultant said let's try 5mg see what happens. I went to her because I had...

I managed to taper down from 20 mg to 2 and a half prenisolone then rheumatoid c...

Hidden

•3 years ago

20 Replies

Are blackouts normal with PMR?

Hi All. Managed to persuade my GP to up my dose from 15 to 20 mg, which I have started this morning. This a.m. is the worst yet. Pain at 10 and first time...

Hi All. Managed to persuade my GP to up my dose from 15 to 20 mg, which I have ...

LBM1953

•3 years ago

32 Replies

Cataract Surgery

I had a cataract surgery on my right eye 3 weeks ago and I have a dark crescent in my vision as well as feeling the lens. Am seeing the surgeon again next week...

I had a cataract surgery on my right eye 3 weeks ago and I have a dark crescent ...

Thirtynine39

•3 years ago

9 Replies

Something else

Has anyone developed severe osteo arthritis after coming off preds of 2 years duration given for giant cell arthritis ?

Has anyone developed severe osteo arthritis after coming off preds of 2 years du...

Valentina1

•3 years ago

25 Replies

Mis-diagnosis of PMR

Good Morning, was diagnosed with PMR in March this year (eventually), started steroids and within 3 days thought I was Superwoman. Hadn't felt that good in a...

Good Morning, was diagnosed with PMR in March this year (eventually), started st...

Pocketdog

•3 years ago

9 Replies

Has anyone had any muscle pains after having a bath?

Yesterday, I thought I'd have a nice soak as I usually shower. I have been on 12.5mg pred for about 2 weeks but struggling with some pain if honest but I was...

Yesterday, I thought I'd have a nice soak as I usually shower. I have been on 12...

MiloCollie

•3 years ago

26 Replies

Agitation

LVV diagnosed in Dec 2020. On 10. M. g Pred and 8 Mex every Sunday. Recently in the last two weeks l go through what l call my "aggie", agitation. I can't...

LVV diagnosed in Dec 2020. On 10. M. g Pred and 8 Mex every Sunday. Recently in ...

Elbowpiece

•3 years ago

5 Replies

Mouth ulcers

Hi all, I wasted my time last Tues. I didn't get to speak with the Rhuemi. but now have another appointment with him next Tues 15th at 1.30pm. will let you all...

Hi all, I wasted my time last Tues. I didn't get to speak with the Rhuemi. but n...

loomweaver

•3 years ago

19 Replies

GCA and Polycythemia Vera

Hi. I am writing on the off- chance that someone on this site may be able to help me. You will see from my profile that I have had GCA for 11 years with...

Hi. I am writing on the off- chance that someone on this site may be able to hel...

Heather270240

•3 years ago

11 Replies

My adrenals have given up. Any advice?

Hi everyone. I was diagnosed with PMR4+ years ago. I also have other health issues. I eventually managed to reduce to 5mg Pred using the slow taper method....

Hi everyone. I was diagnosed with PMR4+ years ago. I also have other health issu...

BrenatPMR

•3 years ago

51 Replies

Leg pain and potassium

My daughter researched leg pain and discovered that lack of potassium in our diet could contribute to this problem. Evidently quite a proportion of our...

My daughter researched leg pain and discovered that lack of potassium in our die...

Diyfan

•3 years ago

2 Replies

Hayfever

Hi.i have never had hayfever in my life.just wondering if anyone can help.just want to know what hayfever remedies I can take as I am on pred.thanks.

Hi.i have never had hayfever in my life.just wondering if anyone can help.just w...

Flosy

•3 years ago

13 Replies

Acid reflux leading to referred pain in back

Hi again I wrote recently about concerns re. going for endoscopy and received great reassurance thanks. Still awaiting that appointment and in meantime acid...

Hi again I wrote recently about concerns re. going for endoscopy and received g...

WillOllier

•3 years ago

22 Replies

Swollen ankles and legs

I am currently on 5mg of Pred and for the past 3 weeks have suffered from swollen ankles and legs. I have never suffered in this way before - could this be a...

I am currently on 5mg of Pred and for the past 3 weeks have suffered from swolle...

Ashington52

•3 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Advice please on symptom / pain control on pred and W London rheumatologist

The lurgy

Supplements and results

Rheumatology appointment

Dealing with GCA flare

Alternative medication

Pred increase not helping

Tinnitus re Withdrawal of Prednisolone

Do any of you suffer from swollen joint?

Is valerian ok to take with pred?

Update to Q of what GCA headaches are like - bad reaction to covid vaccine

Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.

Sharing so we can all be vigilant....staph and strep infection

Bloomin’ Pneumonia

Advance in RA treatment

Prednisone withdrawal, Pepcid withdrawal?

Tapering and pains

Are blackouts normal with PMR?

Cataract Surgery

Something else

Mis-diagnosis of PMR

Has anyone had any muscle pains after having a bath?

Agitation

Mouth ulcers

GCA and Polycythemia Vera

My adrenals have given up. Any advice?

Leg pain and potassium

Hayfever

Acid reflux leading to referred pain in back

Swollen ankles and legs

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