I am sick as a dog. Weak as a kitten, can barely function. nausea, loss of appetite. Weight loss. Muscles feel like they are being pulled off the bone. I have PMr/GCA, Pmr 20 years, GCA 10. I am on 5th infusion of Actemra, Prednisone down to 6mg. First time down to 6mg. in 3 years. I have to get off prednisone. Stomach bleeding last year, both biopsies from two endoscopies show likely culprit is prednisone. So, I have no choice. Feels like Actemra not doing much. Plan is to double dose of Actemra next month if SED rate does not go down.
I also got off Pepcid a week ago. I was put on Pepcid 3 years ago, increased from 20mg. per day to 80 mg. today after stomach bleeding started. Pepcid just stopped working, So, I switched to 15mg. per day of Prevacid, which works fine, but is not an H2 blocker like Pepcid, so am wondering if I could be going through a double withdrawal, Pepcid and Prednisone. I am too sick to work in my sewing room, or do much of anything. The plan is also to put me on an anti-anxiety medication next week. Can anxiety make one feel this sick?
There are a lot of changes going on now, medically, and emotionally, but most of this feels physical and bio-chemical. Any one go through anything similar?