Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for June 2021

Myasthenia Gravis

Hi everyone I’m a new boy (79 year old boy) I’d like to find out if anyone else developed bad leg and feet pain when on very high doses of Prednisolone

Hi everyone I’m a new boy (79 year old boy) I’d like to find out if anyone else ...

Diyfan

•3 years ago

16 Replies

Leg pain

A few years ago I was very ill with Myasthenia Gravis and despite being in hospital for 9 weeks and various treatments I still could not swallow. I had been on...

A few years ago I was very ill with Myasthenia Gravis and despite being in hospi...

Diyfan

•3 years ago

10 Replies

2nd Antibody test at 12weeks

Still testing positive for antibodies to the proteins coded for by the Moderna vaccine. So far, good news!

Still testing positive for antibodies to the proteins coded for by the Moderna v...

Boss302Fan

•3 years ago

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How do you know when to start tapering?

My rheumatologist says that there's no set protocol for tapering. He says that as my blood work has been good for the last 9 months, since diagnosis in August...

My rheumatologist says that there's no set protocol for tapering. He says that ...

Pr0jection

•3 years ago

5 Replies

Nefopam for pred replacement ?

Hello all, After being on pred (7mg) for the past four years, my rhumi insists it can't be pmr as I'd have been cured by now :-( I realise from here that...

Hello all, After being on pred (7mg) for the past four years, my rhumi insists ...

RevSmallwood

•3 years ago

12 Replies

How to reduce by 10% steps at v low doses

At very low doses cutting tablets becomes an issue. Does anyone grind the tablets and use milligram scales? do most people taper by averaging down even slower...

At very low doses cutting tablets becomes an issue. Does anyone grind the tablet...

Sefu

•3 years ago

6 Replies

Questioning benefit of boniva

Posted many times about gca dx that started over 2 yrs ago. Just a month into prednisone treatment a dexa showed osteoporosis- worst was right femoral neck...

Posted many times about gca dx that started over 2 yrs ago. Just a month into pr...

Spanky2019

•3 years ago

10 Replies

DIAGNOSED WITH T N NOT G C A

so NEW UPDATE MRI SCAN INDICATES VASCULAR PRESSURE ON NERVE OR AS THE DR SAYS TRIGEMINAL NEURALGIA. YAY BUT WHAT NOW MOST OF THE MEDS HAVE NASTY SIDE EFFECTS,...

so NEW UPDATE MRI SCAN INDICATES VASCULAR PRESSURE ON NERVE OR AS THE DR SAYS T...

supersayan

•3 years ago

8 Replies

Shaking Hands

Hello, fairly new to this site, haven't posted much as have learnt loads from reading the posts - thank you it's a brilliant site! I've been riding the PMR...

Hello, fairly new to this site, haven't posted much as have learnt loads from re...

Devon21

•3 years ago

16 Replies

Good news! How to increase cortisol.

Finally- found just what I need. ".....You might think it relaxes you, but alcohol actually increases cortisol"....

Finally- found just what I need. ".....You might think it relaxes you, but alc...

ignatz

•3 years ago

5 Replies

Please get yr eye test

Hi all, this has nothing to do with pmr or pred or any medication. My mum had her normal routine eye test monday last wk and optician found a spot behind her...

Hi all, this has nothing to do with pmr or pred or any medication. My mum had he...

Hidden

•3 years ago

8 Replies

Curcumin as an anti inflammatory

So many ask about tumeric’s ability to decrease inflammation, I thought this article would be of interest. It appears curcumin may actually be able to down...

So many ask about tumeric’s ability to decrease inflammation, I thought this ar...

fmkkm

•3 years ago

7 Replies

Tocilizumab

If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken...

If, as I understand it, NHS England only funds this drug for one year per indivi...

AncientMariner

•3 years ago

21 Replies

BBC Radio 4 Woman’s Hour

This morning 9th June Fascinating piece on auto immune diseases and women. Didn’t hear anything about PMR itself but lots of interesting stuff. I’ll need to...

This morning 9th June Fascinating piece on auto immune diseases and women. Didn’...

Lochy

•3 years ago

5 Replies

New research into autoimmune conditions

A very good edition of Woman's Hour this morning about various aspects of women's health, all of it worth listening to, but of particular interest to us was a...

A very good edition of Woman's Hour this morning about various aspects of women'...

Marijo1951

•3 years ago

9 Replies

Only 4 days left: if you haven't already done so, don't forget to nominate PMRGCAuk for this year's Ecclesiastical charity awards!

https://www.ecclesiastical.com/movement-for-good/?utm_source=Communicator&utm_medium=Email&utm_content=buttonLink38&utm_campaign=Our+%c2%a31m+giving+programme+l

https://www.ecclesiastical.com/movement-for-good/?utm_source=Communicator&utm_me...

PMRpro

Ambassador•3 years ago

16 Replies

Roller Coaster Inflammation Markers after Pfizer

Thought I would pass this on: It's a mystery! I reported here that my sed rate jumped from 32 to 58 after my first Pfizer Covid vaccination. Interestingly,...

Thought I would pass this on: It's a mystery! I reported here that my sed rate...

Blurry62

•3 years ago

5 Replies

Eye test

Hi all, just for information I had eye test again today after dr requested an new one and my eyes have changed needed new reading glasses and distance...

Hi all, just for information I had eye test again today after dr requested an ne...

Hidden

•3 years ago

11 Replies

Private rheumatologist

Can anyone recommend a private rheumatologist in South Manchester. Not getting very far with telephone consultation with GP and telephone consultation with...

Can anyone recommend a private rheumatologist in South Manchester. Not getting v...

Susanmod

•3 years ago

1 Reply

Cholesterol and Statins

Just had results of Cholesterol test which is 6.2 (up from 4.8 three years ago and pre PMR). Started a low carb diet as soon as prescribed Prednisolone and it...

Just had results of Cholesterol test which is 6.2 (up from 4.8 three years ago a...

jaycee444

•3 years ago

26 Replies

Update after fall

Hi all, still in pain after my fall last wk, so after speaking to gp decided to try different pain killers instead paracetamol instead of going up on pred so...

Hi all, still in pain after my fall last wk, so after speaking to gp decided to ...

Hidden

•3 years ago

18 Replies

Shingles

I wrote a month ago thinking I had GCA again but it isn’t. I have had several possible causes including Bells Palsy and Ramsey Hunt Syndrome but doctors have...

I wrote a month ago thinking I had GCA again but it isn’t. I have had several po...

rogerc

•3 years ago

8 Replies

A further update on the old taper journey ...

Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than...

Hello again friends on this long and treacherous journey, I am reporting back wi...

LemonZest11

•3 years ago

33 Replies

Predisolone. How much ? Howe long?

Hi. I know there is no definitive answer to this. I was diagnosed two week ago and taking 15mg after breakfast (tummy pill first then breakfast 30-60 minutes...

Hi. I know there is no definitive answer to this. I was diagnosed two week ago...

LBM1953

•3 years ago

14 Replies

Numbness and PMR

Has anyone experienced a running motor like sensation in their abdomen ? I have had PMR for 4 years and have tapered down to 2.5 mg of Pred. I also have...

Has anyone experienced a running motor like sensation in their abdomen ? I have...

Tirepressure1

•3 years ago

2 Replies

Vaccine efficacy for rheumatic patients?

I had both my Pfizer vaccines and had no side effects. My question: does anyone know the efficacy of the vaccines given we are immunocompromised? My Dr. said...

I had both my Pfizer vaccines and had no side effects. My question: does anyone ...

Neck680

•3 years ago

6 Replies

I’m having tapering issues.

I’ve been working at tapering to get below 10mg of prednisone. I’m working on the dead slow method going from 11mg to 10mg. I recently stopped Cymbalta which I...

I’ve been working at tapering to get below 10mg of prednisone. I’m working on th...

singingloud

•3 years ago

16 Replies

Pain why.

Pain in butt all day bearable but rising to right rib.

Tennisman90

•3 years ago

1 Reply

Very high CPR

Am a relatively newbie. Recent flare,. CRP was 189. Prescribed 30 mgs Pred reducing weekly. Had to return to 30 to achieve some relief, more stiffness than...

Am a relatively newbie. Recent flare,. CRP was 189. Prescribed 30 mgs Pred redu...

Bridge1990

•3 years ago

11 Replies

PMRGCAuk Week photo competition

It's the start of PMRGCAuk Week this week and we are launching a photo competition to find images for our 2022 calendar and notelets. If you are a keen...

It's the start of PMRGCAuk Week this week and we are launching a photo competiti...

Fran_Benson

Partner•3 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Myasthenia Gravis

Leg pain

2nd Antibody test at 12weeks

How do you know when to start tapering?

Nefopam for pred replacement ?

How to reduce by 10% steps at v low doses

Questioning benefit of boniva

DIAGNOSED WITH T N NOT G C A

Shaking Hands

Good news! How to increase cortisol.

Please get yr eye test

Curcumin as an anti inflammatory

Tocilizumab

BBC Radio 4 Woman’s Hour

New research into autoimmune conditions

Only 4 days left: if you haven't already done so, don't forget to nominate PMRGCAuk for this year's Ecclesiastical charity awards!

Roller Coaster Inflammation Markers after Pfizer

Eye test

Private rheumatologist

Cholesterol and Statins

Update after fall

Shingles

A further update on the old taper journey ...

Predisolone. How much ? Howe long?

Numbness and PMR

Vaccine efficacy for rheumatic patients?

I’m having tapering issues.

Pain why.

Very high CPR

PMRGCAuk Week photo competition

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