Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,031 posts

All posts for June 2021

Does anyone know about sciatica.

How long does sciatica pain last for, I've had it 4 weeks now 😪😪

Lori23

•3 years ago

54 Replies

Body twitches

Hi I have PMR and I have started to experience on my right hand side of body twitching I can actually see it anybody else suffering with this

Hi I have PMR and I have started to experience on my right hand side of body twi...

Wendywo

•3 years ago

32 Replies

Methotrexate and shortness of breath

have been on methotrexate for 18 months and having increasing shortness of breathe . would like to hear abt similar experience

have been on methotrexate for 18 months and having increasing shortness of breat...

Belv

•3 years ago

9 Replies

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Good rheumatologists do exist

Of no help to you in the UK but here in Belgium I do have a good professional for PMR at a nearby hospital. I was put on 20 mg/d last year in May and dosage...

Of no help to you in the UK but here in Belgium I do have a good professional f...

GrandmaPirate

•3 years ago

5 Replies

Here's hoping!

After three and a half years - started pred on 20mg, plenty of ups and downs, diagnosed Coeliac, ankle surgery, leg ulcer treatment and more, here's my July...

After three and a half years - started pred on 20mg, plenty of ups and downs, di...

V1a4

•3 years ago

6 Replies

Increased Pred made a difference but not there yet

Hi All. I had my dose increased from 15 to 20 mg (as suggested by PMRpro as well as others). First (increased) dose on Saturday. Saturday was when I had my...

Hi All. I had my dose increased from 15 to 20 mg (as suggested by PMRpro as wel...

LBM1953

•3 years ago

20 Replies

PMR and menopause

Hi everyone Just wanted to ask if anyone else has been struck with PMR whilst going through the menopause? I am 52 and 18 months into my PMR nightmare but am...

Hi everyone Just wanted to ask if anyone else has been struck with PMR whilst go...

Pippz20

•3 years ago

18 Replies

Positive chat with GP

My doctor rang with the results of my Dexa Scan and I have Osteopenia which he says is post menopausal and age related, and he is happy for me to carry on...

My doctor rang with the results of my Dexa Scan and I have Osteopenia which he ...

Jooster

•3 years ago

5 Replies

PMR signs getting worse (again)

@Blosson20 ‘s recent post struck a chord and I’m in a similar position I think. I’d really appreciate thoughts before I visit the surgery tomorrow. I started...

@Blosson20 ‘s recent post struck a chord and I’m in a similar position I think. ...

DogAgilityObsessed

•3 years ago

12 Replies

Fractured vertebrae

Hi all having a bit of a tough time! I fractured my vertebrae no really sure how! But that was 2 months ago. The pain has got worse all around lung area. Iv...

Hi all having a bit of a tough time! I fractured my vertebrae no really sure how...

Uglow

•3 years ago

16 Replies

Can you become resistant to prednisolone over a period of time?

As a matter of interest, and because I've been feeling very good up until recently, I wonder if you can become resistant to a particular dosage of prednisolone...

As a matter of interest, and because I've been feeling very good up until recent...

Pr0jection

•3 years ago

8 Replies

Dose for a flare

Hi all, I was diagnosed with GCA & PMR in November 2018. Started on 60mg of Prednisolone & now reduced to 3mg. My question is, if I have a suspected flare, how...

Hi all, I was diagnosed with GCA & PMR in November 2018. Started on 60mg of Pred...

Lyndaki

•3 years ago

5 Replies

What causes high potassium levels?

Hi! Do any of you have problems with high Potassium levels? If so, do you know what causes it and how to remedy it? Mine is slightly high at 5.1 (range...

Hi! Do any of you have problems with high Potassium levels? If so, do you know ...

Dubuquer

•3 years ago

7 Replies

Leg cramps

I am on the second week of taking 12.5mg pred down from 15. Suffering from horrendous cramp in my calves on waking in a morning. Probably lasts a few minutes....

I am on the second week of taking 12.5mg pred down from 15. Suffering from horre...

Trainy

•3 years ago

13 Replies

Pred taper and toredness

Currently down at 10 mg Pred but feeling exhausted- is this usual? To add to the picture I also had a heart attack around a month ago - I’m not sure whether...

Currently down at 10 mg Pred but feeling exhausted- is this usual? To add to the...

Fiddlersmum

•3 years ago

14 Replies

Rheumatologist recommendations

Thanks for all the advice after my last post. Does anyone have any recommendations for rheumatologists? I’m in Nottinghamshire but have the flexibility to...

Thanks for all the advice after my last post. Does anyone have any recommendatio...

chess430

•3 years ago

10 Replies

prednisone withdrawal symptoms

A cute little leaflet with surprisingly grim recommendations.... "A full recovery can take anywhere from a week to several months. Contact your doctor if you...

A cute little leaflet with surprisingly grim recommendations.... "A full recover...

ignatz

•3 years ago

2 Replies

Antibody tests & Covid-19

https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/antibody-testing-covid-19-vaccine-immunocompromised/

https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/ant...

Boss302Fan

•3 years ago

1 Reply

PMR SUCKS!!

August 2020 at 51, I was diagnosed with PMR (a condition I had never heard of before) I had all the classic symptoms. I was practically bedridden! Thankfully,...

August 2020 at 51, I was diagnosed with PMR (a condition I had never heard of be...

Shesfromboston

•3 years ago

5 Replies

Does anyone split their dose of PRED? I can't sleep due to pain unless I take some at night but also has stimulant effect. 10 day /2.5 nite

I was recently diagnosed with PMR a few months ago and am grateful for this site. I have learned so much from everyone that posts. I have noticed this disease...

I was recently diagnosed with PMR a few months ago and am grateful for this site...

Sunnyday365

•3 years ago

11 Replies

4mg Prednisilone after 8 years

Hi. I haven’t posted on here for a very long time. I am now on 4mg Pred after 8 yrs of PMR / suspected GCA/ flares and better times. Have been reducing very...

Hi. I haven’t posted on here for a very long time. I am now on 4mg Pred after 8 ...

wendyanne49

•3 years ago

5 Replies

Update on wait for dexa scan

Hi there . Update since finding out I had 4 fractured vertebrae. Not surprising still waiting for dexa scan !!! Oh dear Hospital it seems failed to do...

Hi there . Update since finding out I had 4 fractured vertebrae. Not surprising...

Looby60

•3 years ago

16 Replies

Fail Lumbar Microdiscectomy

Has any else had a failed Microdiscectomy? I had L5 & L4 shaved down in May 2019 and since then the pain has gradually gotten worse. The pain never left...

Has any else had a failed Microdiscectomy? I had L5 & L4 shaved down in May 2019...

Kiereo

•3 years ago

6 Replies

When people talk about having flares, what does that mean with PMR?

I also have ulcerative colitis and know what it means in that context. With PMR I’m still trying to figure out what my base line is, or even if this is PMR. I...

I also have ulcerative colitis and know what it means in that context. With PMR ...

Here1am

•3 years ago

4 Replies

Terrible rheumatologist

Hi went to see a rheumatologist today and got a young arrogant arse who totally dismissed that I had either PMR or giant cell as I’m too young and my markers...

Hi went to see a rheumatologist today and got a young arrogant arse who totally ...

Rottsuzi

•3 years ago

141 Replies

Methotrexate - not for me

Hi all I've given MTX a good go having had 9 injections. It's not for me, the last three weeks have been hard with unbelievable fatigue, brain fog and a total...

Hi all I've given MTX a good go having had 9 injections. It's not for me, the la...

Coffeebeans

•3 years ago

23 Replies

Lingering Symptoms of PMR

Hi, I got off Prednisone just at the beginning of the Pandemic after having been on Prednisone for PMR for 4 years (undiagnosed with PMR for 2 years before...

Hi, I got off Prednisone just at the beginning of the Pandemic after having been...

Robinre

•3 years ago

15 Replies

Recordings of webinars from PMRGCAuk Week

If you didn't have chance to watch the webinars last week: Living with GCA and Life Beyond Steroids, you can catch up on our website:...

If you didn't have chance to watch the webinars last week: Living with GCA and L...

Fran_Benson

Partner•3 years ago

13 Replies

BBC News - Headache and runny nose linked to Delta varianthttps://www.bbc.co.uk/news/health-57467051

Latest from Zoe

Bcol

•3 years ago

15 Replies

Can anyone please help or advise? Pred withdrawl symptoms.

Hello everyone, I was diagnosed with PMR in May 2020 and from a high of 17.5mg pred, I was down to about 6.5mg about 7 weeks ago. Then I got a bit carried away...

Hello everyone, I was diagnosed with PMR in May 2020 and from a high of 17.5mg p...

Norma1610

•3 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Does anyone know about sciatica.

Body twitches

Methotrexate and shortness of breath

Good rheumatologists do exist

Here's hoping!

Increased Pred made a difference but not there yet

PMR and menopause

Positive chat with GP

PMR signs getting worse (again)

Fractured vertebrae

Can you become resistant to prednisolone over a period of time?

Dose for a flare

What causes high potassium levels?

Leg cramps

Pred taper and toredness

Rheumatologist recommendations

prednisone withdrawal symptoms

Antibody tests & Covid-19

PMR SUCKS!!

Does anyone split their dose of PRED? I can't sleep due to pain unless I take some at night but also has stimulant effect. 10 day /2.5 nite

4mg Prednisilone after 8 years

Update on wait for dexa scan

Fail Lumbar Microdiscectomy

When people talk about having flares, what does that mean with PMR?

Terrible rheumatologist

Methotrexate - not for me

Lingering Symptoms of PMR

Recordings of webinars from PMRGCAuk Week

BBC News - Headache and runny nose linked to Delta varianthttps://www.bbc.co.uk/news/health-57467051

Can anyone please help or advise? Pred withdrawl symptoms.

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