Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for June 2021

Tapering again x 3

I think Saturday (yesterday) was the 3rd Saturday where I took 1/2mg less as part of a slow, slower than a snail taper. Each Tuesday following I have felt...

I think Saturday (yesterday) was the 3rd Saturday where I took 1/2mg less as par...

IdasMum

•3 years ago

23 Replies

Massage

Hi.am just wondering is it ok to have a head massage.had one yesterday and it was painful.does that mean it not doing any good.

Hi.am just wondering is it ok to have a head massage.had one yesterday and it wa...

Flosy

•3 years ago

5 Replies

Jittery

Does anyone feel jittery after taking prednisone. I can’t think what else it might be. But I take amitriptyline at night to help with back fracture but low...

Does anyone feel jittery after taking prednisone. I can’t think what else it mig...

Uglow

•3 years ago

13 Replies

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Just been for my annual GP visit

Not a great week. After 2 years of letters telling me I was pre-diabetic my HbA1c result was 39 and my GP informed me I was type II. "Hang on wasn't the upper...

Not a great week. After 2 years of letters telling me I was pre-diabetic my HbA1...

Andymurph

•3 years ago

24 Replies

Nephrotic syndrome

Hi everyone; I am diagnosed that i ve nephrotic syndrome, i am taking pred , is there is any medication can i take rather than pred , ?

Hi everyone; I am diagnosed that i ve nephrotic syndrome, i am taking pred , is ...

Advidkc

•3 years ago

4 Replies

Confusion over effects

Hi, fellow PMR voyagers - I was on 6.5mg Pred for some time but recently tapered to 5.5mg. I am now experiencing painful arthritis-like symptoms in my toes and...

Hi, fellow PMR voyagers - I was on 6.5mg Pred for some time but recently tapered...

BiteyDelano

•3 years ago

16 Replies

PMRpro Your Rose

1st two this year.

jinasc

•3 years ago

31 Replies

quick question

Hi, could anyone answer me this please? So far no stomach problems on Pred in 5 months. My doc wants me to start Omeprazole. By not taking it am I storing up...

Hi, could anyone answer me this please? So far no stomach problems on Pred in 5...

Hidden

•3 years ago

12 Replies

Going to have yet another go at reducing Prednisolone!

Just had my markers back for my ESR and CRP, and they look ok enough to have another go at coming down again-lost count of how many attempts this will be, but...

Just had my markers back for my ESR and CRP, and they look ok enough to have ano...

Purplegloss

•3 years ago

9 Replies

Recurring pain

Hi, I’m looking for some advice. I was diagnosed with PMR in approximately 2009, after trying to reduce Prednisone below 7 mgs for about 5 years my Consultant...

Hi, I’m looking for some advice. I was diagnosed with PMR in approximately 2009,...

Hollybee21

•3 years ago

17 Replies

12 months on. A gratitude post

I walked my dog just after 6am this morning and had breakfast in the garden when I got back. For some reason I thought of a comment Dorset Lady often makes...

I walked my dog just after 6am this morning and had breakfast in the garden when...

HappyDiamonds

•3 years ago

14 Replies

Safe skin cancer treatment for PMR, advice please

Does anyone have any experience of Efudex cream for solar keratosis or skin cancer? I was prescribed it by a dermatologist but wonder if our thinner skin...

Does anyone have any experience of Efudex cream for solar keratosis or skin canc...

Zebedee44

•3 years ago

8 Replies

Blood results for Vit D and Cholesterol

Can someone interpret this for me. I requested a bunch of bloods and all have come back within range, from this lab, other than these two. The Vit D is...

Can someone interpret this for me. I requested a bunch of bloods and all have c...

Sophiestree

•3 years ago

24 Replies

Can anyone help with tapering after a flare..

Morning everyone, this is my first post as all you lovely informative people usually answer my questions before I have to ask. I have successfully tapered to...

Morning everyone, this is my first post as all you lovely informative people usu...

Herman99

•3 years ago

4 Replies

Blood clotting disorder

Hi I also have a blood clotting disorder . Mine is called factor v Leiden for which I take 75 mg aspirin per day . Apparently it’s hereditary which dr...

Hi I also have a blood clotting disorder . Mine is called factor v Leiden for ...

Looby60

•3 years ago

6 Replies

My dear fellow sufferers

Hope you are all doing well. My rheumatologist is impatient that I stop prednisone, I’m currently at 3mg. She says more than two years without being able to...

Hope you are all doing well. My rheumatologist is impatient that I stop predniso...

Alliswellforever

•3 years ago

90 Replies

One sided shoulder pain with PMR?

In addition to a GCA diagnosis last year, and further to a PET CT scan, I’ve just been diagnosed with PMR. I have severe pain and stiffness in both hips and...

In addition to a GCA diagnosis last year, and further to a PET CT scan, I’ve jus...

Horsewhisper

•3 years ago

9 Replies

All good (but I still feel terrible) -SST (short synacthen test)

Why on Earth is my cortisol not restarting? A week on 3.5mg all in the morning and feeling terrible- aching all over and exhausted. Must I spend months like...

Why on Earth is my cortisol not restarting? A week on 3.5mg all in the morning...

ignatz

•3 years ago

36 Replies

Myxoid Cysts on fingers

For the last 6 months I have had a problem with a lump on my middle finger left hand between joint and nail that just won't go away. It gets very large and...

For the last 6 months I have had a problem with a lump on my middle finger left ...

HappyDiamonds

•3 years ago

26 Replies

Flooding

Iv just done a flood 800mg ibuprofen hope it works am really struggling with pain I’ll let you know. Soo fed up now not coping well at all

Iv just done a flood 800mg ibuprofen hope it works am really struggling with pai...

Uglow

•3 years ago

25 Replies

Creaky Joints

https://creakyjoints.org Found this website that might be interesting to some.

https://creakyjoints.org Found this website that might be interesting to some....

Liby57

•3 years ago

1 Reply

Gca treatment

Does anyone have GCA that is not treated with steroids,?

Lellylam

•3 years ago

21 Replies

PMR AND BLOOD CLOTTING

I have had PMR since December 2020, put on steroids 5th January. I now have very high blood pressure (often over 200) and am also often tachycardic. Waiting...

I have had PMR since December 2020, put on steroids 5th January. I now have ver...

Hirondelle

•3 years ago

53 Replies

Thanks everyone for all your help with sciatica relief.

I have all the information I need now 😊😁😘

Lori23

•3 years ago

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Leg cramps back

Good morning everyone, about a year ago I asked for advice about nightly leg cramps and took the suggestion offered of taking daily magnesium which worked. I'm...

Good morning everyone, about a year ago I asked for advice about nightly leg cra...

granofthewest

•3 years ago

9 Replies

Flare up

Hi all, as most of u know just over a wk ago I had some devastating news about my mum health which knocked me for six as it would anyone since then had a flare...

Hi all, as most of u know just over a wk ago I had some devastating news about m...

Hidden

•3 years ago

3 Replies

Moon face

Hi everyone, i ve diagnosed with nephrotic syndrome, i took Retoxmab and now i am on pred and mycophnolate mofetil , so now there the dr is tapering pred to 15...

Hi everyone, i ve diagnosed with nephrotic syndrome, i took Retoxmab and now i a...

Advidkc

•3 years ago

14 Replies

PMR or long term covid

I thought that PMR mainly affects 1 in 120,000 people, normally people over 70, ethnic background and female. Yet down my local pub there are 3 cases...

I thought that PMR mainly affects 1 in 120,000 people, normally people over 70, ...

richardwayne999

•3 years ago

35 Replies

Dexa scan results

Bit distraught. Got my dexa results today and it appears I have osteopenia throughout the lumber spine and total hip with osteoporosis of femoral neck. Wish...

Bit distraught. Got my dexa results today and it appears I have osteopenia throu...

artisam

•3 years ago

61 Replies

osteo arthritis

i want to say thankyou to all who replied to my question re osteo arthritis I see privataly a surgeon on friday

i want to say thankyou to all who replied to my question re osteo arthritis I...

Valentina1

•3 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Tapering again x 3

Massage

Jittery

Just been for my annual GP visit

Nephrotic syndrome

Confusion over effects

PMRpro Your Rose

quick question

Going to have yet another go at reducing Prednisolone!

Recurring pain

12 months on. A gratitude post

Safe skin cancer treatment for PMR, advice please

Blood results for Vit D and Cholesterol

Can anyone help with tapering after a flare..

Blood clotting disorder

My dear fellow sufferers

One sided shoulder pain with PMR?

All good (but I still feel terrible) -SST (short synacthen test)

Myxoid Cysts on fingers

Flooding

Creaky Joints

Gca treatment

PMR AND BLOOD CLOTTING

Thanks everyone for all your help with sciatica relief.

Leg cramps back

Flare up

Moon face

PMR or long term covid

Dexa scan results

osteo arthritis

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