Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,025 posts

All posts for June 2021

Painful shoulders and arms

Hi everyone, I know I’ve asked your help before but I really am in pain with my shoulders and arms, so much so I can hardly lift a kettle in the morning to...

Hi everyone, I know I’ve asked your help before but I really am in pain with my ...

2013mayo

•3 years ago

9 Replies

Synacthen test

Spoken to Doc this morning. Had blood test 2 days ago and told my inflammatory markers are rock bottom. And I must try to get off the steroids because she...

Spoken to Doc this morning. Had blood test 2 days ago and told my inflammatory ...

Suffererc

•3 years ago

33 Replies

Pains walking

I was bumped up to 15mg 4 weeks ago due to major flare, but it’s not kicked in fully yet. Still having really wiped out days and pains at the top of both legs...

I was bumped up to 15mg 4 weeks ago due to major flare, but it’s not kicked in f...

Abbey17

•3 years ago

8 Replies

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plaquenil, sulfaSALAzine

Has anyone been prescribed plaquenil, sulfaSALAzine to help reduce prednisone. Had an appointment with a new Rheumey today & she wanted to put me on plaquenil,...

Has anyone been prescribed plaquenil, sulfaSALAzine to help reduce prednisone. H...

Summerrental

•3 years ago

10 Replies

Raised veins in forehead /temples

One more question...anyone with GCA HAVE RAISED VEINS above temples in forehead? If so do you know if they will go away???

One more question...anyone with GCA HAVE RAISED VEINS above temples in forehead?...

peanutann

•3 years ago

8 Replies

Moonface

Is there anything that reduces the prednisone “moonface”.? I hate how puffy and round my face has gotten since I have been in this drug ( 1.5 years). I am...

Is there anything that reduces the prednisone “moonface”.? I hate how puffy an...

skidoo333

•3 years ago

9 Replies

Advice re conundrum with tapering

I have been reducing Pred regularly - I am on weekly Tocilizumab injections, using a one week old dose/new dose and then 2 weeks on new dose system. This was...

I have been reducing Pred regularly - I am on weekly Tocilizumab injections, usi...

Bachblues

•3 years ago

3 Replies

Which Rheumy can I see in Bristol

I would like a second opinion from a rheumy who will listen and not just dismiss my symptoms as a silly woman. I would like to go to Southmead hospital either...

I would like a second opinion from a rheumy who will listen and not just dismiss...

Sirtomas

•3 years ago

4 Replies

Help… advised to go on alendronic acid

Had a dexa scan. GP sent a message by mobile phone to say she had been told by rheumatologist to start me on alendronic acid. Advised to have dental check and...

Had a dexa scan. GP sent a message by mobile phone to say she had been told by r...

Reddev

•3 years ago

23 Replies

First Flare

Was on 8 mg, doing well, and than whack ! Excruciating pain in all joints, rang doctor, told me to take 20 for 3 days and see if it improves. Tiny improvement...

Was on 8 mg, doing well, and than whack ! Excruciating pain in all joints, rang ...

Humphreydonk

•3 years ago

11 Replies

Do I have to take prednisolone

Recently diagnosed with poly myalgia. I have stiffness in my shoulders in the morning which gets better as the day goes on. I am fortunately not in pain at...

Recently diagnosed with poly myalgia. I have stiffness in my shoulders in the mo...

Bessie333

•3 years ago

19 Replies

Tocilizumab

Anyone else on Tocilizumab for pmr and gca? I can’t take steroids

Lellylam

•3 years ago

11 Replies

Neuropathy

Does anyone have problems with neuropathy?

Skrtjg

•3 years ago

3 Replies

Is this Normal?

Hello I have had PMR for some years now and have had 2 major flare ups in that time then spent years on prednisone. I am currently on 3 mg daily and have been...

Hello I have had PMR for some years now and have had 2 major flare ups in that t...

PMRHortons

•3 years ago

16 Replies

Pollymyalgia

I was diagnosed with pollymyalgia at Christmas and I have been taking steroid since Christmas I my levels are still High am on 15mg and of steroid now am...

I was diagnosed with pollymyalgia at Christmas and I have been taking steroid si...

lynnhanham24

•3 years ago

4 Replies

PMR question

Okay, looking for your best suggestions or guess as to what is going on. I have managed to taper to 1/2 mg prednisone, when I get up I am achy all over, but...

Okay, looking for your best suggestions or guess as to what is going on. I have ...

Truckfoot

•3 years ago

12 Replies

Antibodies Test

Just for interest, I have been asked by Covidence UK to take an antibodies test, which I have agreed to. I will report back on the results when they appear.

Just for interest, I have been asked by Covidence UK to take an antibodies test,...

Bcol

•3 years ago

40 Replies

Pmr

I started on 15mg and reduced every 4 weeks by 1 my im down to 4mg but flared up in neck shoulder mainly left side. I can hardly lift my left arm. I tryed 5mg...

I started on 15mg and reduced every 4 weeks by 1 my im down to 4mg but flared up...

Denbo51

•3 years ago

4 Replies

PMR & IBD connection

Curious to know if anyone has developed IBD after being diagnosed with PMR? I was diagnosed with PMR in January this year and have now been diagnosed with...

Curious to know if anyone has developed IBD after being diagnosed with PMR? I wa...

Yealink

•3 years ago

9 Replies

Adrenal Insufficiency

Have been reading posts and info on Adrenal Insufficiency, I was diagnosed 4-5 years ago and was told to stay on 8mgs for the rest of my life. Is there any...

Have been reading posts and info on Adrenal Insufficiency, I was diagnosed 4-5 y...

Hollybee21

•3 years ago

55 Replies

MRI RESULTS

I had an MRI done; haven’t yet met with doc to discuss. Neurologist wanted to do to rule out anything else other than GCA. Has anyone with GCA had an MRI...

I had an MRI done; haven’t yet met with doc to discuss. Neurologist wanted to d...

peanutann

•3 years ago

13 Replies

Reducing Pred 7.5 mg

Hello all :) looking for a little help please, I have trying to get of Prednisolone since 2013 with many restarts currently at 7.5mg with CRP at 12 tenderness...

Hello all :) looking for a little help please, I have trying to get of Predniso...

suszannah

•3 years ago

14 Replies

Cb oil gumming

Has anyone tried these cbo gumming. I have some and now am worried about taking them. Please help....

Has anyone tried these cbo gumming. I have some and now am worried about taking ...

Hidden

•3 years ago

12 Replies

The conumdrum: Rest or Exercise in PMR. Who is right?

https://www.theguardian.com/commentisfree/2021/jun/21/long-covid-recovery-coronavirus Just found this - and since Long Covid is almost certainly an autoimmune...

https://www.theguardian.com/commentisfree/2021/jun/21/long-covid-recovery-corona...

PMRpro

Ambassador•3 years ago

105 Replies

Night time breathless attacks

Now my copd is worsening I am often awake at night fighting to breathe. I know it will be better after a while but it would be good to have a friendly voice...

Now my copd is worsening I am often awake at night fighting to breathe. I know i...

emmo

•3 years ago

20 Replies

Too ambitious! Or just stupid!

I’ve had PMR for a year now. I’ve tapered from 15 mg to current 2mg. Reducing by 1mg every 4 weeks apart from the last reduction which was 5 weeks. Everything...

I’ve had PMR for a year now. I’ve tapered from 15 mg to current 2mg. Reducing b...

Hughie1951

•3 years ago

18 Replies

Tapering pred problems. Advice please.

I started on 15mg pred on 23rd April and give or take a day I reduced to 12.5mg on 26th May but I think I'm struggling. I say "think" because I have a right...

I started on 15mg pred on 23rd April and give or take a day I reduced to 12.5mg ...

MiloCollie

•3 years ago

29 Replies

Post pneumonia dosage!

Hi folks, Safely back from hospital after a bout of pneumonia followed by pleurisy. Feeling weak but much better, helped by your comforting messages! 😀. I’ve...

Hi folks, Safely back from hospital after a bout of pneumonia followed by pleuri...

Thelmarina

•3 years ago

12 Replies

Needing advice

I’ve been on 30 mg prednisone for 3 weeks for a G CA flare up, now going down to 25 mg for 3 weeks.. I’ve been very short of breath & little oxygen to my...

I’ve been on 30 mg prednisone for 3 weeks for a G CA flare up, now going down to...

beringer

•3 years ago

15 Replies

2021 GCA Update article

https://link.springer.com/article/10.1007/s11940-020-00660-2 In researching GCA, I came across this just published update that includes new research into...

https://link.springer.com/article/10.1007/s11940-020-00660-2 In researching GCA,...

DRunnerchick

•3 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Painful shoulders and arms

Synacthen test

Pains walking

plaquenil, sulfaSALAzine

Raised veins in forehead /temples

Moonface

Advice re conundrum with tapering

Which Rheumy can I see in Bristol

Help… advised to go on alendronic acid

First Flare

Do I have to take prednisolone

Tocilizumab

Neuropathy

Is this Normal?

Pollymyalgia

PMR question

Antibodies Test

Pmr

PMR & IBD connection

Adrenal Insufficiency

MRI RESULTS

Reducing Pred 7.5 mg

Cb oil gumming

The conumdrum: Rest or Exercise in PMR. Who is right?

Night time breathless attacks

Too ambitious! Or just stupid!

Tapering pred problems. Advice please.

Post pneumonia dosage!

Needing advice

2021 GCA Update article

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