Going to have yet another go at reducing Predniso... - PMRGCAuk

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Going to have yet another go at reducing Prednisolone!

Purplegloss profile image
9 Replies

Just had my markers back for my ESR and CRP, and they look ok enough to have another go at coming down again-lost count of how many attempts this will be, but quite a lot! ESR now 6, and CRP 14-down from 29 last time. I am on 6 MG at the moment, and have obtained some 2 and 1/2 MG tablets from my GP, which I don't think he knew about as the chemist had to get them in especially for me, after I saw them mentioned on this site. I tried cutting the 1MG up, but usually ended up with bits, so this should be much better at getting the correct dosage this time. So 1- 2 and a 1/2 MG plus 3 ones using the slow method, which I have just copied down. I did read on here that if I get there without pain, then I can carry on to the next level-5MG, but not sure if this is correct or not. Should I wait a month if I am ok or not? I have had PMR since October 2017.

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Purplegloss
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9 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

If you have had previous issues then I would be inclined to give at least 2 weeks between tapers, just to make sure.

But the overriding factor should be how YOU feel - not necessarily the blood markers. ..

If your CRP is 14 then that is still a bit on the high side.

PMRpro profile image
PMRproAmbassador

Since you have had problems before and you are at relatively a pretty low dose you should go SLOWLY! There is no shame in slowing the taper down even further if you need to and having a couple of weeks at the new dose before starting on the next 1/2mg.

Is there any other reason why the CRP should be still up a bit? Chesty cold or something?

Purplegloss profile image
Purplegloss in reply to PMRpro

No, I don't remember the last time I had a cold, and 14 is the lowest it has been for me. It was 129 in October 2017, and I am feeling good at the moment.

PMRpro profile image
PMRproAmbassador in reply to Purplegloss

Fair enough then - knowing your own figures is really important.

Boss302Fan profile image
Boss302Fan in reply to Purplegloss

The factors have never been near zero? I’d suggest staying at the 6mg for another week not decrease by more than 10% of current dose so, 0.5mg. If you start to feel a twinge I’d immediately go back to 6mg.

Mischevious profile image
Mischevious

From my experience, really slowly is the best option. It could be quicker in the long run if it avoids increasing again

PoolePerson profile image
PoolePerson

My advice is snail pace - I didnt have any pain issues when reducing down from 7 to 0 but I went down very very slowly after a flare up from the first time reducing. Take months with each reduction its worth it in the end!

Ladyoak profile image
Ladyoak

I started on 30 mg last year and came down quickly to 10mg. But then I tapered too quickly and was in pain with 5 mg. My GP suggested that I went back up to 8 mg through the winter and since the warmer weather, I tapered by 1/2 mg each time so presently on 6 1/2 and feeling good. I shall try that for another month then see how I get on with 6 mg then 5 1/2. It is a slow process. Hope you get it sorted.

Purplegloss profile image
Purplegloss in reply to Ladyoak

I started tapering yesterday with 5 and a half MG, and will let you all know how I get on this time-I am using the slow method. At my last blood test they tested my vitamin D level, which came back as abnormal at 35, and I received a phone call from my GP who advised me to start taking Calceos again, however after reading info on this site, I have decided to try the vitamin D 4000 iu instead. so started that yesterday as well, so far so good, and hopefully this time going from 6MG to 5 and1/2 MG will go better than last time. I had previously got to 5MG about 6 months ago,, and had stayed at that for several months, but Rheumy said to come down 1 MG a month, which sent me off into a flare. Due to talk to her again in July, but may disobey orders depending on if I think she is right or not.

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