Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2021

Changing consultants

I'm so glad that I changed rheumatologists last year. I've just had a really good and helpful telephone consultation with mine who is realistic about my never...

I'm so glad that I changed rheumatologists last year. I've just had a really goo...

maria40

•3 years ago

5 Replies

Methotrexate and second AZ jab due today

Hello everyone, I am due to have my second AstraZeneca Jab later this afternoon and today is the day I usually take my 20mg weekly dose of Methotrexate after...

Hello everyone, I am due to have my second AstraZeneca Jab later this afternoon ...

Birdyloo

•3 years ago

14 Replies

For those at a low ebb

I Worried By Mary Oliver I worried a lot. Will the garden grow, will the river flow in the right direction, will the earth turn as it was taught, and If not...

I Worried By Mary Oliver I worried a lot. Will the garden grow, will the river f...

SheffieldJane

•3 years ago

32 Replies

Want to take advantage of all our features? Just log in!

First night changing dose time

Hi all I took pred at 10 with a few cornflakes. Bed at 10.15 Slept til 8, yes 8 I’ll let you know how the day goes too early for me to tell if it’s going to...

Hi all I took pred at 10 with a few cornflakes. Bed at 10.15 Slept til 8, yes 8...

Uglow

•3 years ago

2 Replies

Excellent advice

Dorset lady I love your advice. Really helping understand this PMR you are a gem.

Dorset lady I love your advice. Really helping understand this PMR you are a gem...

Uglow

•3 years ago

3 Replies

New job?

I am so confused. I have tapered from 40mgs of Pred when diagnosed with PMR last April to 13.5/12mgs at the moment. Most days are ok, I have been working from...

I am so confused. I have tapered from 40mgs of Pred when diagnosed with PMR last...

SanG55

•3 years ago

4 Replies

Forgot to take Pred this morning

Forgot to take my Pred dose this morning. Now in agony. Just taken my 8mg dose. Should I go up or wait for the Pred to kick in

Forgot to take my Pred dose this morning. Now in agony. Just taken my 8mg dose. ...

UmiMck

•3 years ago

5 Replies

Is the iPhone app working?

I’ve realised the app on my phone hasn’t shown any updated threads for four days. I thought you were all very quiet!

I’ve realised the app on my phone hasn’t shown any updated threads for four days...

DogAgilityObsessed

•3 years ago

9 Replies

How do I get a synacthen test?

Hello, How do you go about getting a synacthen test? I have been well of late with symptoms that might suggest Adrenalin insufficiency. I have been on 3 mg of...

Hello, How do you go about getting a synacthen test? I have been well of late wi...

JudithWarrior

•3 years ago

24 Replies

Thank you

Ive been dipping in and out of this site for a few months gathering information on my PMR and have found it to be very useful. Id like to say a massive thank...

Ive been dipping in and out of this site for a few months gathering information ...

Hidden

•3 years ago

11 Replies

Tight leg muscles, is this a new stage of my PMR?

So now a lovely new symptom has just started in the last few weeks on my adventure with PMR. I feel as if all my muscles are tightening up but especially my...

So now a lovely new symptom has just started in the last few weeks on my adventu...

artfingers

•3 years ago

11 Replies

Experiencing sleep difficulties? Try cutting out caffeine (coffee, tea, chocolate, cola ...)

https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-management/food-and-drug-interactions I was looking at the possible interactions of...

https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-manag...

Hidden

•3 years ago

19 Replies

Vaccine effectiveness?

Is there any data on the effectiveness of the Pfizer vaccine for people with PMR?

Is there any data on the effectiveness of the Pfizer vaccine for people with PMR...

Workingcocker

•3 years ago

5 Replies

Natural Progesterone

I wonder if anyone has any experience using natural progesterone as an aid to building bone? Thanks

I wonder if anyone has any experience using natural progesterone as an aid to bu...

Linny3

•3 years ago

5 Replies

Anyone find short duration upping prednisone seems to shock system into calming down?

When I have a bad down dip, like very damp weather, I have found that upping my prednisone very slightly just once seems to make my symptoms much less...

When I have a bad down dip, like very damp weather, I have found that upping my ...

Jane424

•3 years ago

8 Replies

BORDER COLLIE

I have been on prednisolone for seven months starting on 15mg been slowly tapering down got to 6mg then started getting pain at the back of my legs and arms...

I have been on prednisolone for seven months starting on 15mg been slowly taperi...

reading_novels

•3 years ago

3 Replies

Pred

Hi everyone I’m fed up feeling odd! I took my pred at 8 o’clock this morning, I’m going to at 10 tonight so I can move over to that time. Hoping I’ll Sleep the...

Hi everyone I’m fed up feeling odd! I took my pred at 8 o’clock this morning, I’...

Uglow

•3 years ago

5 Replies

Splitting the pred dose 10 mg - 5mg in the morning and 5mg in the afternoon

Hi has anyone split there dose of pred so half in the morning at 9am and the other half at tea time I an told it will stop the waking up at 3am every night is...

Hi has anyone split there dose of pred so half in the morning at 9am and the oth...

Littlejan22

•3 years ago

20 Replies

When can I start strength training?

I'm hitting the 2nd year mark since the onset of PMR. I'm tapering down to 5mg prednisone. I walk several times a week on flat surface and keep quite active...

I'm hitting the 2nd year mark since the onset of PMR. I'm tapering down to 5mg p...

Paperroses

•3 years ago

11 Replies

Hearing loss while on prednisilone

I have just been reading some posts that mention hearing loss. After 9 months on pred. I have a marked hearing loss. Is this common? Is the PMR or the pred.??...

I have just been reading some posts that mention hearing loss. After 9 months o...

humlies

•3 years ago

20 Replies

Tinnitus side effect prednisolone

I have been experiencing tinnitus for a long time now. As the dose of pred is getting lower, the tinnitus is not getting less. When will this stop? I had hoped...

I have been experiencing tinnitus for a long time now. As the dose of pred is ge...

Jesse-Cat

•3 years ago

18 Replies

Can you split gastro resistant Pred safely.

I'm reducing Pred with caution, 15mg to start and now down to 9.5mg in 5 months. I am on a waiting list to see a rhumy so have no guidance other than this...

I'm reducing Pred with caution, 15mg to start and now down to 9.5mg in 5 months....

genius64

•3 years ago

10 Replies

Fruitful visit with endocrinologist

Friday I consulted a new endocrinologist who trained at an endocrine center in NY. Fortunately her office is not very far. I was impressed with the way she...

Friday I consulted a new endocrinologist who trained at an endocrine center in N...

Karenjaninaz

•3 years ago

7 Replies

Synacthen test

On Tuesday I will have my first Synacthen Test. I’m now on 3mg of Prednisone after reducing from 60mg ( sudden hearing loss) and the cursed PMR. If anyone...

On Tuesday I will have my first Synacthen Test. I’m now on 3mg of Prednisone af...

YuliK

•3 years ago

49 Replies

PMR/GCA/ vasculitis paper

https://ard.bmj.com/content/60/11/1058 Nothing dramatically new but interesting.

https://ard.bmj.com/content/60/11/1058 Nothing dramatically new but interesting....

kimsaunsc

•3 years ago

4 Replies

Has there been any research on the relationship of the onset of polymyalgia and COVID vaccines or is it too early?

My polymyalgia developed five weeks after an Astra Zeneca vaccination and a friend developed Arteritis with seven weeks of a vaccination. She intends to report...

My polymyalgia developed five weeks after an Astra Zeneca vaccination and a frie...

Hidcote

•3 years ago

11 Replies

Stomach issues again

Any tips , I can’t take the prazole group of meds shocking head aches , I already take coated pred 3.5mg , I just had alfizosin a prostate med added to my...

Any tips , I can’t take the prazole group of meds shocking head aches , I alread...

Gaz227

•3 years ago

26 Replies

To take or not to take?

I was diagnosed with PMR and GCA in 2018 and have only managed to get to 5mgs of Preds without a flare. I have not seen the Rheumatologist for 18 months. When...

I was diagnosed with PMR and GCA in 2018 and have only managed to get to 5mgs of...

garden49

•3 years ago

4 Replies

Old Age

Why is it.... That you suddenly realise that your GP looks like he's 18 He's gone to uni Read the scientific papers Is really clever But doesn't have a clue...

Why is it.... That you suddenly realise that your GP looks like he's 18 He's gon...

Devonspinner

•3 years ago

64 Replies

PMR or polymyositis?

Hi folks Anyone here been dx with polymyositis? My rheum said not PMR but no differential dx given. I have muscle pain mainly girdle but my biceps both sides...

Hi folks Anyone here been dx with polymyositis? My rheum said not PMR but no di...

Daisyfield

•3 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2021

Changing consultants

Methotrexate and second AZ jab due today

For those at a low ebb

First night changing dose time

Excellent advice

New job?

Forgot to take Pred this morning

Is the iPhone app working?

How do I get a synacthen test?

Thank you

Tight leg muscles, is this a new stage of my PMR?

Experiencing sleep difficulties? Try cutting out caffeine (coffee, tea, chocolate, cola ...)

Vaccine effectiveness?

Natural Progesterone

Anyone find short duration upping prednisone seems to shock system into calming down?

BORDER COLLIE

Pred

Splitting the pred dose 10 mg - 5mg in the morning and 5mg in the afternoon

When can I start strength training?

Hearing loss while on prednisilone

Tinnitus side effect prednisolone

Can you split gastro resistant Pred safely.

Fruitful visit with endocrinologist

Synacthen test

PMR/GCA/ vasculitis paper

Has there been any research on the relationship of the onset of polymyalgia and COVID vaccines or is it too early?

Stomach issues again

To take or not to take?

Old Age

PMR or polymyositis?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive