Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,026 posts

All posts for May 2021

Jaw popping

I have had this issue since Jan. I am afraid to eat and have lost 11 pounds. When I sit at the table you never know if my jaw is going to go out of place and...

I have had this issue since Jan. I am afraid to eat and have lost 11 pounds. Whe...

Robinsnest72

•3 years ago

17 Replies

Has anyone experience numb thumbs?

What affects our bodies when., we are dealing with PMR.

Poodleshrimp

•3 years ago

6 Replies

FAQ list

Thank you all (pmrpro, Dorset lady, Mrs Nails) for compiling the very useful and informative FAQ list your time and efforts spent helping and advising are very...

Thank you all (pmrpro, Dorset lady, Mrs Nails) for compiling the very useful and...

Topcar

•3 years ago

1 Reply

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Prednisone and teeth.

Since I was diagnosed with PMR over 30 months ago, I, like everyone else, was given prednisone... During the past four months I have found a deterioration in...

Since I was diagnosed with PMR over 30 months ago, I, like everyone else, was g...

YuliK

•3 years ago

46 Replies

About a blood test......

My GP referred me to a rheumatologist 6 weeks ago and the appointment is due in 10 days. I last had a blood test 7 weeks ago. My question is shouldn’t I have...

My GP referred me to a rheumatologist 6 weeks ago and the appointment is due in ...

Hidden

•3 years ago

9 Replies

Tapering.

Hi.how long does it take for your parental glands to start working.i a m 6mg.

Flosy

•3 years ago

3 Replies

Tapering prednisone dose for treating polmyalgia rheumatica.

I found the first time I reduced dose from 15mg that I probably reduced too quickly and at around 6mg symptoms returned. So went back up by 1mg per week to 8mg...

I found the first time I reduced dose from 15mg that I probably reduced too quic...

Streetgang

•3 years ago

4 Replies

Worrying about stiff fingers

Good morning everyone, I’ve been taking 12.5 mg of Pred for 3 weeks now having had 15mg for the first month (since diagnosis). I have also returned to work...

Good morning everyone, I’ve been taking 12.5 mg of Pred for 3 weeks now having h...

Pangolin43

•3 years ago

17 Replies

Tapering advice needed

I was diagnosed with PMR in early March this year after a year of pain and began the Prednisolone regime at 15mg on 10th March. It made a dramatic difference...

I was diagnosed with PMR in early March this year after a year of pain and began...

LeighDelaine

•3 years ago

25 Replies

I feel a few good things~!

First, after seeing the rheumy today I feel less anxious, aka afraid, and secure in the path he recommended. It was the path of the PMRGCAuk~! He listened to...

First, after seeing the rheumy today I feel less anxious, aka afraid, and secure...

Grammy80

•3 years ago

35 Replies

Has anyone noticed breakthrough headaches in the evening? Prednisone dose is taken in the morning.

Hi. I am experiencing a relapse that came on after my Pfizer vaccine. I also have a shingles problem that I am managing with antiviral medication. I’m now up...

Hi. I am experiencing a relapse that came on after my Pfizer vaccine. I also hav...

USAGCA

•3 years ago

12 Replies

Prednisone Taper Companion Drug

What is a good companion drug to help taper from prednisone? I’ve been taking Prednisone for over 1 year, currently on 5.5 mg daily and can’t seem to get...

What is a good companion drug to help taper from prednisone? I’ve been taking Pr...

Macadoo

•3 years ago

13 Replies

"Flare" question

I’m a relatively new member and have been reading the posts daily while I have been slowly tapering from 7mg to 6 currently for PMR. In my past attempts at...

I’m a relatively new member and have been reading the posts daily while I have b...

slopers

•3 years ago

3 Replies

Steroids with general anaesthetic

Do I need to double the dose of my steroids (currently 11.5) on the day of hysteroscopy under general anaesthetic and also on the day afterwards? Preop...

Do I need to double the dose of my steroids (currently 11.5) on the day of hyste...

maria40

•3 years ago

28 Replies

Pred push tapering?

Hello I was tapering 2 weeks ago to 5.5 then had big flare unable to function. So, after an abortive attempt to get rid of my symptoms by upping my dose to...

Hello I was tapering 2 weeks ago to 5.5 then had big flare unable to function. S...

ellarowan

•3 years ago

3 Replies

Alendronic acid

Hi all. I've just had my weekly phone app with dr and she prescribed alendronic acid 70mg once a wk. I've seen lots of ppl talk about this and I think it to...

Hi all. I've just had my weekly phone app with dr and she prescribed alendronic ...

Hidden

•3 years ago

11 Replies

Flares and reducing Medication

Hi looks very good advice to me, I'm waiting f or a specialist nurse to get back to me,I've dropped from 14mg to 11mg I started some leflunomide a...

Hi looks very good advice to me, I'm waiting f or a specialist nurse to ...

bula3434

•3 years ago

1 Reply

Update on time change pred

Hi all I changed my pred time from am to pm. Fuzzy head is better not completely gone but only on day 2. My back is killing me but has been on and off. Ill...

Hi all I changed my pred time from am to pm. Fuzzy head is better not completely...

Uglow

•3 years ago

5 Replies

Pmr and breast lumps

Hi all. 4 yrs into pmr on 3.5 mg prednison since one yr ( hard to taper) i noticed a few lumps/ swelling in the left breast. I booked in to consult GP of...

Hi all. 4 yrs into pmr on 3.5 mg prednison since one yr ( hard to taper) i notic...

Kaaswinkel

•3 years ago

33 Replies

Difficulty tapering and questions~!

I'm about to spit nails since I have been unable to get my rheumy to return my call. I feel I'm in better hands with the forum at any rate. I'm a...

I'm about to spit nails since I have been unable to get my rheumy to return my c...

Grammy80

•3 years ago

29 Replies

Sodium intake

We are often told to restrict sodium intake, and this is probably a good idea if we are accustomed to eating a lot of prepared foods. However it is possible...

We are often told to restrict sodium intake, and this is probably a good idea if...

HeronNS

•3 years ago

3 Replies

Anybody take Bactrim?

Hi, I was just put on Bactrim, which is an anti biotic, to go with my high dose of Prednisone. Rheumatologist says it is to keep from getting pneumonia.

Hi, I was just put on Bactrim, which is an anti biotic, to go with my high dose ...

Trevgrrl

•3 years ago

17 Replies

Different sick day rules for Covid

https://www.leedsth.nhs.uk/assets/be1c37f891/Instructions_For-online-distribution_Final-Design2.pdf I have posted this link as it may be helpful for others if...

https://www.leedsth.nhs.uk/assets/be1c37f891/Instructions_For-online-distributio...

Greensleeves

•3 years ago

8 Replies

Final stages of tapering

New to this forum! I am an otherwise healthy 67 year old male (apart from some osteoarthritis), who has experienced GCA and PMR over the past two years....

New to this forum! I am an otherwise healthy 67 year old male (apart from some ...

Marinescience

•3 years ago

19 Replies

Lions mane mushroom supplement..again

A few weeks ago I mentioned the above. Having cleared it with my pharmacist I started taking these about three weeks ago. Amongst other benefits they are...

A few weeks ago I mentioned the above. Having cleared it with my pharmacist I st...

Rosina1871

•3 years ago

13 Replies

Flare or withdrawal

Diagnosed with PMR July, 2018. I have been on 14 mg. of Prednisone for about 2 weeks now. Had a terrible night last night. Pain in every part of my body....

Diagnosed with PMR July, 2018. I have been on 14 mg. of Prednisone for about 2 ...

Summerrental

•3 years ago

12 Replies

Feels like the real deal !

Just a quick update which I trust will bring hope to those on tapering plans. Today is 24 weeks in the zero prednisolone club and I am beginning to believe I...

Just a quick update which I trust will bring hope to those on tapering plans. To...

DevonMichael

•3 years ago

15 Replies

dentist

Hi, not sure if this is a daft question or not?! Am I ok to have a local anaesthetic whilst on Prednisolone?

Hi, not sure if this is a daft question or not?! Am I ok to have a local anaesth...

Hidden

•3 years ago

15 Replies

After Effects of AstraZeneca?

Hello All, I had my first AstraZeneca jab yesterday and spent the night shivering and aching . Today I have been VERY tired. I am beginning to feel a bit...

Hello All, I had my first AstraZeneca jab yesterday and spent the night shiverin...

Louisa1840

•3 years ago

21 Replies

Feeling very despondent today

Hi all, I am struggling with everything today. Have started the taper, won 40mg, and now on 35 I feel ok, few aches and pains but no swelling or excessive...

Hi all, I am struggling with everything today. Have started the taper, won 40mg...

Gyspysmum

•3 years ago

39 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2021

Jaw popping

Has anyone experience numb thumbs?

FAQ list

Prednisone and teeth.

About a blood test......

Tapering.

Tapering prednisone dose for treating polmyalgia rheumatica.

Worrying about stiff fingers

Tapering advice needed

I feel a few good things~!

Has anyone noticed breakthrough headaches in the evening? Prednisone dose is taken in the morning.

Prednisone Taper Companion Drug

"Flare" question

Steroids with general anaesthetic

Pred push tapering?

Alendronic acid

Flares and reducing Medication

Update on time change pred

Pmr and breast lumps

Difficulty tapering and questions~!

Sodium intake

Anybody take Bactrim?

Different sick day rules for Covid

Final stages of tapering

Lions mane mushroom supplement..again

Flare or withdrawal

Feels like the real deal !

dentist

After Effects of AstraZeneca?

Feeling very despondent today

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