Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2021

BBC News - Covid: One dose of vaccine halves transmission - studyhttps://www.bbc.co.uk/news/health-56904993

BBC news today

Bcol

•3 years ago

4 Replies

Temporal Arteritis Update

Had a video call today from the Rheumatologist. The temporal biopsy was negative however, due to the delay of three weeks on 60mg Prednisolone he was not...

Had a video call today from the Rheumatologist. The temporal biopsy was negative...

anniekins1

•3 years ago

9 Replies

DSNS ad DL’s meaning? Can’t find o FAQ

Looking for meaning plz...

Tayzee

•3 years ago

8 Replies

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Dizzy and shaky

In Feb. I was taking 4 mgs of pred.,down from 8mgs when I had a horrible flare and had to to go back to 8mgs.this month I'm tapering to 7.5 and will continue...

In Feb. I was taking 4 mgs of pred.,down from 8mgs when I had a horrible flare a...

ancientprune

•3 years ago

6 Replies

Abbreviation’s

I can’t find the abbreviations info on FAQ’s 🤔

Tayzee

•3 years ago

4 Replies

Vasculitis

I have had PMR for 3 years and GCA for 1 year. Following a PET scan last week I have now been diagnosed with vasculitis of the subclavian arteries and have...

I have had PMR for 3 years and GCA for 1 year. Following a PET scan last week I...

Creamtea

•3 years ago

18 Replies

Should I increase the pred?

Hi I am on 11mg of pred and I was on 10mg and my esr had gone from 39 to 36 but I was still having thigh and back pains so that’s why I went up to 11mg even...

Hi I am on 11mg of pred and I was on 10mg and my esr had gone from 39 to 36 bu...

Tayzee

•3 years ago

10 Replies

Back to Work??

Some of you will know that since my diagnosis 2yrs ago, I have made 2 unsuccessful attempts to return to my job working in a nursery class in a primary school....

Some of you will know that since my diagnosis 2yrs ago, I have made 2 unsuccessf...

Kendrew

•3 years ago

72 Replies

Buy one get one free!

Im hoping my title might get me more replies! Hello fellow PMR/GCA - ers. Im absolutely fed up with how Im feeling. Tried to reduce from 15 to 14 pred, having...

Im hoping my title might get me more replies! Hello fellow PMR/GCA - ers. Im abs...

Hidden

•3 years ago

24 Replies

I don't get emails

Hello I no longer seem to get email updates from the site still got PMR, It helps to read others comments any way the emails can re return. Thanks Paul

Hello I no longer seem to get email updates from the site still got PMR, It help...

paulst955

•3 years ago

7 Replies

Itching

Hi all, has anyone started really bad itching all of a sudden? My arms and legs are the worse it feels like a really deep itch I just cant get to. Put...

Hi all, has anyone started really bad itching all of a sudden? My arms and legs ...

Hidden

•3 years ago

12 Replies

Healthy bones - but don't want to take too many supplements? What to eat ...

I thought people might find this article interesting - made my mouth water!...

PMRpro

Ambassador•3 years ago

92 Replies

In conversation with Jenni Murray - May 6th

We are delighted to announce that we will be welcoming Dame Jenni Murray as our guest speaker for our next members' webinar taking place in May. Jenni,...

We are delighted to announce that we will be welcoming Dame Jenni Murray as our ...

Fran_Benson

Partner•3 years ago

1 Reply

L1 = -3.0, L2 = -2.5 Have been prescribed Alendronic Acid but I am really concerned about taking it. Need advice/shared experience.

In May 2020 I had a dexa scan which showed L1 and L2 vertebrae as -2.0 and -2.2 respectively. After starting on 15mg prednisolone in August 2020 and reduced...

In May 2020 I had a dexa scan which showed L1 and L2 vertebrae as -2.0 and -2.2 ...

Pr0jection

•3 years ago

44 Replies

More advice please prior to GP consultation

Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you...

Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare ...

Pocketdog

•3 years ago

8 Replies

Clinical Trial

I've recently received an invitation to take part in a clinical trial being run by Leeds University. They are studying the possible reasons certain...

I've recently received an invitation to take part in a clinical trial being run ...

B4lamb

•3 years ago

20 Replies

Antibody test

I had my second Pfizer jab two weeks ago and as my family are visiting next week I decided to send for an antibody finger prick blood test. It cost £50 from...

I had my second Pfizer jab two weeks ago and as my family are visiting next week...

Smokygirl

•3 years ago

42 Replies

How many MG starting Prednisone do you think I should have been started on?

Hello I'm 60 years old. My rheumatologist thought I had PMR four months ago and started me on15 mg , the pred reduced pain and stiffness about 50% and for...

Hello I'm 60 years old. My rheumatologist thought I had PMR four months ago and...

nickmits

•3 years ago

47 Replies

Reducing

We are told we should not be reducing relentlessly to zero but to a dose where we feel comfortable and know o go lower would cause problems. When we reach...

We are told we should not be reducing relentlessly to zero but to a dose where w...

jaycee444

•3 years ago

22 Replies

Friend?

Im hoping this doesnt sound weird or strange but Im looking for a PMR friend on here, where we can share how our days are going and offer each other online...

Im hoping this doesnt sound weird or strange but Im looking for a PMR friend on ...

Hidden

•3 years ago

8 Replies

Maybe the second Covid vac is an "overkill", for PMR/GCA patients.

I received my second Moderna vac over eight weeks ago, and am still waiting to feel the old pre vac self. I was down to 3.5 mg of pred, when I got it, and...

I received my second Moderna vac over eight weeks ago, and am still waiting to ...

misspops

•3 years ago

21 Replies

Gratitude

So glad of all the various views on here. As a newbie I thought I should do what rheumatologist told me, but after she denied I had a flare (unseen and...

So glad of all the various views on here. As a newbie I thought I should do what...

Japsquar

•3 years ago

3 Replies

Hello everyone

Hi, my name is Marie and I was tentatively diagnosed with PNR a week and a half ago. I have had symptoms since early February but my previous dr had no idea...

Hi, my name is Marie and I was tentatively diagnosed with PNR a week and a half ...

Gyspysmum

•3 years ago

38 Replies

Yet another steroid side-effect?!!

After four years of many ups and downs, plus more side effects than I care to mention, I have now reduced - very slowly! - to 4mg per day. I’ve been doing...

After four years of many ups and downs, plus more side effects than I care to me...

Janann25

•3 years ago

12 Replies

Thank you

I just want to thank you all. I do not believe I would have come this far without you all and pmrpro. 15mgs over 4 years ago, 4mgs now, the journey is not yet...

I just want to thank you all. I do not believe I would have come this far withou...

Poshdog

•3 years ago

10 Replies

Pacing - a useful resource that has been updated

You will all be familiar with me banging on about pacing and it has just been brought to my notice that one of my links has been updated. Here is the new link...

You will all be familiar with me banging on about pacing and it has just been br...

PMRpro

Ambassador•3 years ago

22 Replies

Racing heart ❤️

Morning all it’s 5.30 am Sunday morning, I can’t sleep for another night, I’ve had a terrible migraine since Friday and my heart is Racing / Banging so loud...

Morning all it’s 5.30 am Sunday morning, I can’t sleep for another night, I’ve h...

Toobusyforthis

•3 years ago

37 Replies

Article today in NY Times about Covid and immunocompromised patients

I’m sorry I don’t know how to copy a link, but what I took from the article was that a systemic drug like prednisone suppressed immunity more than drugs...

I’m sorry I don’t know how to copy a link, but what I took from the article w...

Mstiles

•3 years ago

12 Replies

Feeling better with warmer weather

Hello everyone, I think I mentioned a few months ago how bad I dropped down when the weather got cold and I think I tapered too soon from 30 mg in June then...

Hello everyone, I think I mentioned a few months ago how bad I dropped down when...

Ladyoak

•3 years ago

3 Replies

PMR question

Has anyone tried using a tense machine to stimulate the muscle ? My pain in mainly lower side of the neck, collarbone area. Tks

Has anyone tried using a tense machine to stimulate the muscle ? My pain in mai...

remission

•3 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

BBC News - Covid: One dose of vaccine halves transmission - studyhttps://www.bbc.co.uk/news/health-56904993

Temporal Arteritis Update

DSNS ad DL’s meaning? Can’t find o FAQ

Dizzy and shaky

Abbreviation’s

Vasculitis

Should I increase the pred?

Back to Work??

Buy one get one free!

I don't get emails

Itching

Healthy bones - but don't want to take too many supplements? What to eat ...

In conversation with Jenni Murray - May 6th

L1 = -3.0, L2 = -2.5 Have been prescribed Alendronic Acid but I am really concerned about taking it. Need advice/shared experience.

More advice please prior to GP consultation

Clinical Trial

Antibody test

How many MG starting Prednisone do you think I should have been started on?

Reducing

Friend?

Maybe the second Covid vac is an "overkill", for PMR/GCA patients.

Gratitude

Hello everyone

Yet another steroid side-effect?!!

Thank you

Pacing - a useful resource that has been updated

Racing heart ❤️

Article today in NY Times about Covid and immunocompromised patients

Feeling better with warmer weather

PMR question

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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