Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2021

Steroids

Sorry, Not sorry 😂😂

Uglow

•3 years ago

1 Reply

Night time nausea

Hi everyone, I wonder if anyone can help me as to why I keep waking up in the middle of the night feeling terrible nausea, I take cyclizine to calm it down...

Hi everyone, I wonder if anyone can help me as to why I keep waking up in the ...

2013mayo

•3 years ago

36 Replies

Vaccine reaction

I had my 2nd AZ dose on Thursday. No headaches or stiff arm, however I did feel all of the pmr symptoms, pain in neck, shoulder and hips, exhaustion and a bit...

I had my 2nd AZ dose on Thursday. No headaches or stiff arm, however I did feel ...

hurryupharry

•3 years ago

21 Replies

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Dead slow taper

Hi, I would be very grateful if someone could send me the link please to Dorset Lady's dead slow taper plan. Many thanks. Have a good weekend and enjoy the...

Hi, I would be very grateful if someone could send me the link please to Dorset ...

headgirl

•3 years ago

4 Replies

Covid antibodies.

Please say if you have had an antibody test after a Covid Vaccine and if you have antibodies or not and the dose of steroids (or what) you take and for how...

Please say if you have had an antibody test after a Covid Vaccine and if you hav...

yogabonnie

•3 years ago

25 Replies

Fiat 500

Hi everyone - I have GCA and PMR, but just started getting a new sensation - what I can only call WOBBLY WEAK FEELING IN LEGS. They support me and I can walk...

Hi everyone - I have GCA and PMR, but just started getting a new sensation - wha...

Fiat500E

•3 years ago

43 Replies

Covid 19 - Key Ventilation Practice For The Home and Workplace

I thought some of you might just be interested in that the Scottish Government have issued this. I have not included the work-place link....

I thought some of you might just be interested in that the Scottish Government ...

jinasc

•3 years ago

14 Replies

Fed up.

Hi, I would appreciate any help as am feeling v down and depressed with what Im going through. Tapering from 15 and down to 13 at moment. Dont feel great at...

Hi, I would appreciate any help as am feeling v down and depressed with what Im ...

Hidden

•3 years ago

18 Replies

Tapering-Leflunomide and low dose Pred.

Further to my post a couple of weeks ago when I questioned my doctor's Pred tapering plan... I wrote to my doctor expressing my concerns regarding tapering...

Further to my post a couple of weeks ago when I questioned my doctor's Pred tape...

123-go

•3 years ago

45 Replies

Deep tissue massage

I had a deep tissue massage to help with my tense muscles in my neck and shoulders on Wednesday and today feel like I’ve been kicked by a horse. Is this to be...

I had a deep tissue massage to help with my tense muscles in my neck and shoulde...

Pinkpepper

•3 years ago

30 Replies

Return of the dreaded

Good morning all the lovely people on this site.🌞 I’ve just started taking 12.5mg Pred after 1 month of 15mg. (Diagnosed withPMR 1 month ago). It is only the...

Good morning all the lovely people on this site.🌞 I’ve just started taking 12.5...

Pangolin43

•3 years ago

4 Replies

Any answers for this?

I suffered from Reiter’s Syndrome when I was 16, my left knee swelled up and I couldn’t’t walk. Was hospitalised for a month until a specialist diagnosed this...

I suffered from Reiter’s Syndrome when I was 16, my left knee swelled up and I c...

GrannyJane

•3 years ago

2 Replies

Long Flare? Or something else.

I have been doing well after a year with PMR. I was on Pred, initially 20 mgs and tapering smoothly down to 14 mgs v slowly with much caution. I had a severe...

I have been doing well after a year with PMR. I was on Pred, initially 20 mgs a...

Predderman2020

•3 years ago

10 Replies

My PMR journey

I thought it might be helpful to some of you to post my experience of PMR. I was diagnosed June 2020. Prednisolone 15 mg were prescribed. I was a fit male 76...

I thought it might be helpful to some of you to post my experience of PMR. I was...

Hidden

•3 years ago

18 Replies

Silly question of the day

I have Vitamin D spray 1000 iu. Can I spray it 4x to get 4000 iu? Sorry for the ridiculous question. I will buy 4000 iu over the weekend but meanwhile......

I have Vitamin D spray 1000 iu. Can I spray it 4x to get 4000 iu? Sorry for t...

whitefishbay

•3 years ago

17 Replies

BBC News - One Covid vaccine cuts infection risk in all age groupshttps://www.bbc.co.uk/news/health-56844220

Thought this was interesting. Still early days but hopeful

Bcol

•3 years ago

4 Replies

Polymyalgic onset rheumatoid arthritis?

I had a phone consultation with the rheumatology consultant yesterday. She maintains that I have polymyalgic onset RA, rather than 'proper' PMR and that,...

I had a phone consultation with the rheumatology consultant yesterday. She maint...

Hidden

•3 years ago

23 Replies

Tapering

Hi I I have tapered from 3mgs to 2mgs this past week . Now I’m having pain and stiffness in shoulders and neck . Dr says my inflammatory markers are fine . Any...

Hi I I have tapered from 3mgs to 2mgs this past week . Now I’m having pain and s...

Caradomben

•3 years ago

12 Replies

Low Cortisol Level

Hello, I'm looking for advice again please. A couple of weeks ago I saw a Rheumatologist for the first time at my local NHS hospital who I have to say was very...

Hello, I'm looking for advice again please. A couple of weeks ago I saw a Rheuma...

headgirl

•3 years ago

3 Replies

Living with chronic illness

I thought people might like to read this - from a journalist who specialises in chronic illness and disability issues. She knows whereof she speaks ... Bits...

I thought people might like to read this - from a journalist who specialises in ...

PMRpro

Ambassador•3 years ago

76 Replies

Pain free?

Should you be totally pain free before reducing dosage! My right collar bone and knee are both aching, not all the time, but most days. I can usually identify...

Should you be totally pain free before reducing dosage! My right collar bone and...

Mazxstitch

•3 years ago

11 Replies

Tapering update

On your advice, I took my pred back up to 15mg, and within a few hours the aches had gone. Still fatigued but much improved, even managed to go out to lunch...

On your advice, I took my pred back up to 15mg, and within a few hours the aches...

Shirpam22

•3 years ago

1 Reply

Thank you

Just wanted to say Iv joined as a member here because this site has helped me do much understanding this odd unkind thing PMR. £15 well spent. Again thank you...

Just wanted to say Iv joined as a member here because this site has helped me do...

Uglow

•3 years ago

7 Replies

Lots of tears today

Hi all. Having a really strange day woke up this morning in tears so just thought I'd been dreaming but all day the tears have been non stop and I cant stop...

Hi all. Having a really strange day woke up this morning in tears so just though...

Hidden

•3 years ago

13 Replies

Adrenal insufficiency

So I've been diagnosed with Addison's disease. I had to stop taking prednisone about two years ago because of osteoporosis. I took it once in a rare while...

So I've been diagnosed with Addison's disease. I had to stop taking prednisone a...

Amkoffee

•3 years ago

19 Replies

Frustrated!

Last week I had a blood test at my GP’s request so that she could see how PMR was and then we could discuss a tapering schedule. This afternoon I rang for test...

Last week I had a blood test at my GP’s request so that she could see how PMR wa...

Decsgran

•3 years ago

37 Replies

Tired.

Hi,I am always feeling very tired and I get this feeling sick most days.i just wondering what was going on Iam on 7mg pred.have been on them since april 1st.go...

Hi,I am always feeling very tired and I get this feeling sick most days.i just w...

Flosy

•3 years ago

19 Replies

GCA what symptoms did u have?

I’ve been having stabbing pains on the right side of my right eye just wondering cud it be GCA?

I’ve been having stabbing pains on the right side of my right eye just wondering...

Tayzee

•3 years ago

5 Replies

Spring deterioration?

Hello! It's so nice to see the new leaves, flowers etc. The joys of spring. But does spring have a negative effect on PMR? I first got it 3 years ago in March...

Hello! It's so nice to see the new leaves, flowers etc. The joys of spring. But ...

Cmmw

•3 years ago

22 Replies

Help how. Do I get back to pmr/ GCA forum

I just want to be in PMRGCA forum, not any other one as before, I obviously pressed the wrong button somewhere and landed in a added one

I just want to be in PMRGCA forum, not any other one as before, I obviously pres...

VAl4266

•3 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

Steroids

Night time nausea

Vaccine reaction

Dead slow taper

Covid antibodies.

Fiat 500

Covid 19 - Key Ventilation Practice For The Home and Workplace

Fed up.

Tapering-Leflunomide and low dose Pred.

Deep tissue massage

Return of the dreaded

Any answers for this?

Long Flare? Or something else.

My PMR journey

Silly question of the day

BBC News - One Covid vaccine cuts infection risk in all age groupshttps://www.bbc.co.uk/news/health-56844220

Polymyalgic onset rheumatoid arthritis?

Tapering

Low Cortisol Level

Living with chronic illness

Pain free?

Tapering update

Thank you

Lots of tears today

Adrenal insufficiency

Frustrated!

Tired.

GCA what symptoms did u have?

Spring deterioration?

Help how. Do I get back to pmr/ GCA forum

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