Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2021

On prednisone since 2015......😔

I would love your advice on the next steps, please. I was diagnosed 6 yrs ago. I’ve been on pred ever since, never able to taper past 7mg. This week I have had...

I would love your advice on the next steps, please. I was diagnosed 6 yrs ago. I...

SQQQ

•3 years ago

38 Replies

Prednisolone and prednisone

Hi just been doing some reading in to pmr and just noticed prednisolone and prednisone are these the same or different medication? Or is it just brand name?...

Hi just been doing some reading in to pmr and just noticed prednisolone and pred...

Hidden

•3 years ago

13 Replies

COVID & Steroid users - not good news

https://www.medpagetoday.com/rheumatology/generalrheumatology/91022

rocketman42

•3 years ago

28 Replies

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New and Looking for those that get it...

Well, I'm new here... ferociously riding the spikes of the PMR dragon. Some days I'm winning, other days I'm losing, so that is why I am here. I have great...

Well, I'm new here... ferociously riding the spikes of the PMR dragon. Some day...

itsnickers

•3 years ago

33 Replies

Muscle myopathy

Hello All. I am looking for someone to connect to who has suffered muscle myopathy after discontinuing two years of prednisone. I have been off for three...

Hello All. I am looking for someone to connect to who has suffered muscle myopat...

Robinsnest72

•3 years ago

35 Replies

New Member Seeking advice on having the vaccine for covid-19 while having Roactemra 162 mg weekly injection for Giant Cell Arteritis (GCA).

Hello, I was diagnose with GCA in April 2020. I took prednisone alone, 40mg/day, for 4 months, gradually reducing the dose, until at 25 mg/day it no longer...

Hello, I was diagnose with GCA in April 2020. I took prednisone alone, 40mg/day,...

Frenchduck

•3 years ago

15 Replies

One small step

Had my first AZ vaccine this morning in sunny Weymouth, so pleased to take the one small step back towards,” hopefully “ some form of normality, I hope that...

Had my first AZ vaccine this morning in sunny Weymouth, so pleased to take the o...

Rosbud

•3 years ago

17 Replies

Diet for PMR

Used to be on low carb and high meat diet. Now with PMR trying plant based diet which is often high in Carbs. Any thoughts? Been on 15mg for 4 weeks and...

Used to be on low carb and high meat diet. Now with PMR trying plant based diet ...

UmiMck

•3 years ago

22 Replies

PMR caused by statin (high cholesterol) drugs?

Hi, I’m Joe. Age 71. I have had PMR since June 2021. I am almost convinced that my PMR was brought on by my previous use of Simvistatin. I had these same...

Hi, I’m Joe. Age 71. I have had PMR since June 2021. I am almost convinced t...

Hosers2

•3 years ago

86 Replies

Walking with PMR

I have PMR and have been taking 15 mg of Prednisone. All was going well for 3 weeks and started doing walking. The pain in the legs starts as soon as I start...

I have PMR and have been taking 15 mg of Prednisone. All was going well for 3 we...

UmiMck

•3 years ago

25 Replies

Splitting Prednisone

To those who find they are in pain at the end of the day, try splitting the dose half in the morning and half at night. This was a big help for me.

To those who find they are in pain at the end of the day, try splitting the dose...

Alebeau

•3 years ago

10 Replies

Calcium supplement

Hi y’all. Has anyone found a good calcium supplement you could recommend? The one the doc prescribed includes soybean oil which can promote inflammation due...

Hi y’all. Has anyone found a good calcium supplement you could recommend? The o...

Nicobeak

•3 years ago

35 Replies

Has Pmr come back?

Hi everyone, have been off Pred for 3 months now and everything was great. I have started getting terribly painful elbows, this is how it started last time and...

Hi everyone, have been off Pred for 3 months now and everything was great. I hav...

Attic

•3 years ago

13 Replies

Covid vaccine has spiked my PMR

I have had PMR and CGA for a few years, CGA has gone, PMR was really improving, down to Prednisolone at 5mg. Was considering with discussion from doctors to...

I have had PMR and CGA for a few years, CGA has gone, PMR was really improving, ...

N-London

•3 years ago

18 Replies

COVID jab and planned reduction within first three weeks

I am due to get my COVID jab on Tuesday 👍👍👍 Having read most of the threads on COVID vaccines, I know that you should not alter your Pred dose for it,...

I am due to get my COVID jab on Tuesday 👍👍👍 Having read most of the threads o...

RoadTrip

•3 years ago

16 Replies

Supplements

What is the best supplement to take when on Prednisolone? I’m thinking particularly about poor hair and energy levels. Currently taking vit C and a hair and...

What is the best supplement to take when on Prednisolone? I’m thinking particula...

Abbey17

•3 years ago

11 Replies

Flare not under control

I was down to 5mg Prednisone. Had a flare due to knee injury. Went up to 10mg for 5 days with no relief in pain. Went to 15 mg for 5 more days and pain went...

I was down to 5mg Prednisone. Had a flare due to knee injury. Went up to 10mg f...

Sadie1024

•3 years ago

19 Replies

Out of Remission. Starting over...

Hi everyone, Unfortunately after three months of remission I had a very bad flareup. The week before my husband and I were leaving for Maine (Sept) I decided...

Hi everyone, Unfortunately after three months of remission I had a very bad flar...

Marie1479

•3 years ago

6 Replies

Wrong diagnosis

After 5 months - thinking I had PMR/GCA. I was wondering why the prednisone wasn’t working and why I kept getting weaker and fatigued and then more pain- My...

After 5 months - thinking I had PMR/GCA. I was wondering why the prednisone wasn...

Bro-

•3 years ago

9 Replies

Added five

I have three more days of adding 5mg to my 4 mg dose of prednisone because of a flare. I’m feeling much better, just minor pains in arms. My flare pain was a...

I have three more days of adding 5mg to my 4 mg dose of prednisone because of a ...

Blackcatlover

•3 years ago

24 Replies

LIVER DISEASE AFTER PREDNISONE

I was diagnosed with GCA in March/19. No huge side effects of pred....I thought. Never had the moon face or gained weight at all. Started to feel pretty...

I was diagnosed with GCA in March/19. No huge side effects of pred....I thought...

pugrescue

•3 years ago

8 Replies

Positive feedback

Can I say a big thank you to everyone for your comments today. I feel so much better tonight just reading them and knowing it will pass when I get it right....

Can I say a big thank you to everyone for your comments today. I feel so much be...

Cosmos22Marigold

•3 years ago

6 Replies

Itching/burning legs

Hi all hope yr all well and staying safe, anyone else's legs feel like they are burning itching which starts so quickly and goes as quickly?

Hi all hope yr all well and staying safe, anyone else's legs feel like they are ...

Hidden

•3 years ago

3 Replies

Timing of Predisone

I am finding waking at 2 am and taking my dose of P.has been very helpful. Read the post from wayback about taking it at this time to prevent the Interlockin6...

I am finding waking at 2 am and taking my dose of P.has been very helpful. Read ...

georgedog

•3 years ago

16 Replies

Tocilizumab extension due to pandemic

Hi has anyone heard anything about a further extension past the 12 months for tocilizumab for GCA due to the pandemic. I should have finished in November but...

Hi has anyone heard anything about a further extension past the 12 months for to...

Devoid

•3 years ago

5 Replies

New to PMR.

Thank you. Very good advice. Lovely day today so probably did too much gardening. I am still slightly euphoric from pain relief; I will be more sensible.

Thank you. Very good advice. Lovely day today so probably did too much gardeni...

nicolahg

•3 years ago

2 Replies

waiting

Hi, started on 15mg of pred on Tues. only about 20% relief from pain between lunchtime and bedtime only. I take it between 6-7am. Is this normal please?

Hi, started on 15mg of pred on Tues. only about 20% relief from pain between lu...

Hidden

•3 years ago

7 Replies

Another Vaccine Question

I’m taking Prednisolone for PMR diagnosed 12 months ago, currently transitioning from 10 to 9mg using the DSNS plan. Three weeks ago I had a fairly minor chest...

I’m taking Prednisolone for PMR diagnosed 12 months ago, currently transitioning...

Exflex

•3 years ago

11 Replies

Feeling low

Thought I was learning a little how to cope with this pmr then Dr phones me and says she needs to get me off the preds due to all my side effects so from...

Thought I was learning a little how to cope with this pmr then Dr phones me an...

Cosmos22Marigold

•3 years ago

17 Replies

New to PMR

I was diagnosed with PMR 4 weeks ago. I started on 15mg Prednisolone and now have reduced to 12.5mg on the advice of my doctor. I don't really know what to...

I was diagnosed with PMR 4 weeks ago. I started on 15mg Prednisolone and now h...

Ahuriri

•3 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2021

On prednisone since 2015......😔

Prednisolone and prednisone

COVID & Steroid users - not good news

New and Looking for those that get it...

Muscle myopathy

New Member Seeking advice on having the vaccine for covid-19 while having Roactemra 162 mg weekly injection for Giant Cell Arteritis (GCA).

One small step

Diet for PMR

PMR caused by statin (high cholesterol) drugs?

Walking with PMR

Splitting Prednisone

Calcium supplement

Has Pmr come back?

Covid vaccine has spiked my PMR

COVID jab and planned reduction within first three weeks

Supplements

Flare not under control

Out of Remission. Starting over...

Wrong diagnosis

Added five

LIVER DISEASE AFTER PREDNISONE

Positive feedback

Itching/burning legs

Timing of Predisone

Tocilizumab extension due to pandemic

New to PMR.

waiting

Another Vaccine Question

Feeling low

New to PMR

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