Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for February 2021

I forgot what you do when you are using the tapering method and have a flare

Hi, I have been tapering from 3 to 2.5 and using THE Method and now as I am going to the part where you are almost all on the new dose I'm flaring. Lots of...

Hi, I have been tapering from 3 to 2.5 and using THE Method and now as I am goin...

bluegirl7

•4 years ago

8 Replies

Officially tapering as of today~!

Sometimes I am confused as to whether this is attempt 3 or 4, I think it is 3. In July of 2020 I got down to 8 mg of Medrol but started having blurriness in my...

Sometimes I am confused as to whether this is attempt 3 or 4, I think it is 3. I...

Grammy80

•4 years ago

4 Replies

Looking for info on Prof. Dasgupta

Prof Dasgupta. His name is mentioned frequently. Can someone provide a link or website for him. Thank you!

Prof Dasgupta. His name is mentioned frequently. Can someone provide a link or...

Jumpshot

•4 years ago

5 Replies

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Addition of Methotrexate?

I have been keeping a low profile since my diagnosis in August 2020. Reducing from 20mg of Prednisolone down to 9mg. However although the symptoms are now...

I have been keeping a low profile since my diagnosis in August 2020. Reducing fr...

Pinkly

•4 years ago

20 Replies

Dispersible aspirin

I would be interested to learn whether any members have been prescribed dispersible aspirin and whether they take anything other than omeprazole as protection...

I would be interested to learn whether any members have been prescribed dispersi...

fitzida

•4 years ago

17 Replies

Rheumatologist call- not PMR?

Hi everyone- i just had my first phone call appt with the rheumatologist who thinks I dont have PMR? The reasons he gave are that it took around 10 days to be...

Hi everyone- i just had my first phone call appt with the rheumatologist who thi...

Lyndalou62

•4 years ago

10 Replies

Husband newly diagnosed.

My husband was diagnosed with PMR two weeks ago. He had been in severe pain and was hardly able to move about because of the stiffness. He was like this for a...

My husband was diagnosed with PMR two weeks ago. He had been in severe pain and ...

GeorgeReilly

•4 years ago

10 Replies

Methotrexate

I would be very grateful if people could tell me about their experiences of moving from prednisolone to methotrexate. Thank you.

I would be very grateful if people could tell me about their experiences of movi...

SQQQ

•4 years ago

4 Replies

Methotrexate - liver function

After having my annual blood test from GP (separate to regular rheumy blood tests) my liver function marker is showing 48. As I don’t drink alcohol my GP...

After having my annual blood test from GP (separate to regular rheumy blood test...

Lizardsyl

•4 years ago

3 Replies

Steroids side effects

I'm new here I was wondering if anyone on steroids get very bad shaking is it part of the treatment with steroids?

I'm new here I was wondering if anyone on steroids get very bad shaking is it pa...

Rrnijmv

•4 years ago

12 Replies

Temporal biopsy

I have to have a temporal biopsy in the next couple of weeks and feeling a little scared. Looking for reassurance xx

I have to have a temporal biopsy in the next couple of weeks and feeling a littl...

Rosina1871

•4 years ago

24 Replies

Are Lymph nodes a sign of active PMR?

I was diagnosed a little over a year ago, now down to 3 my pred and feeling well there. Last blood work showed almost normal levels of CRP and ESR. However,...

I was diagnosed a little over a year ago, now down to 3 my pred and feeling well...

Orchid732

•4 years ago

5 Replies

CBD Oil

Is anyone been prescribed CBD Oil? Is it making a difference ?

Ferbow

•4 years ago

3 Replies

Flare

Morning Advice needed please I had a bad flare last week and couldn’t stand the pain in me hips any longer, called the doctor Thursday morning he said to...

Morning Advice needed please I had a bad flare last week and couldn’t stand th...

carolBF

•4 years ago

2 Replies

Inflammation up

As always when in doubt I reach out on this incredible tool for our PMR survival. I did my 3 month blood test, they took 7 samples in all. Everything was...

As always when in doubt I reach out on this incredible tool for our PMR survival...

Southmead

•4 years ago

6 Replies

Starting Pred - opinions on GP’s dose schedule?

My GP has now decided to start the Pred and instructions are 20 mgs daily 10 morning and 10 evening for the first three days, then 15 mgs same way for the next...

My GP has now decided to start the Pred and instructions are 20 mgs daily 10 mor...

alliebc

•4 years ago

16 Replies

I've been here before.

7.5mg down to 7mg is not going according to plan. I have made a decision after several difficult days with various aches and pains to stop the reduction (have...

7.5mg down to 7mg is not going according to plan. I have made a decision after s...

IdasMum

•4 years ago

14 Replies

How fast can I reduce dose after brief increase?

This follows on from my posts last week. In short, I was on 2.5mg pred after taking 4 years to reduce from 15mg. Then I had a potential GCA scare and my dose...

This follows on from my posts last week. In short, I was on 2.5mg pred after tak...

Jontie

•4 years ago

8 Replies

Anti Anxiety Medication

Quick question Does anyone take medication to manage their stress levels when tapering to a lower dose to avoid flares ?

Quick question Does anyone take medication to manage their stress levels when ...

golfnutter

•4 years ago

11 Replies

HR/Employer, how best to deal with them, any experiences/guidance you would be able to share?

My Occupational Health recommendation is a reasonable adjustment of reduction of working hours on a permanent basis. It can feel daunting dealing with HR, and...

My Occupational Health recommendation is a reasonable adjustment of reduction of...

maxistar

•4 years ago

41 Replies

Vaccine

Getting my first shot of the Moderna vaccine today. I’m taking 7mg of prednisone and due to give myself my Actemra shot two days later. Is there any info about...

Getting my first shot of the Moderna vaccine today. I’m taking 7mg of prednisone...

Blackcatlover

•4 years ago

23 Replies

Numbers

Hi all, just wondering if there are any statistics concerning the people who have PMR. Over the years, have these numbers gone up and why. What do we do that...

Hi all, just wondering if there are any statistics concerning the people who hav...

jimcarlow75

•4 years ago

16 Replies

Tapering advice

Tapering advice please. I was diagnosed with PMR aged 55 feb 2020. I’ve been taking pred starting at 15mg for 1 year... had to increase after reaching 1mg...

Tapering advice please. I was diagnosed with PMR aged 55 feb 2020. I’ve been ta...

40abba

•4 years ago

15 Replies

Mother Nature has been angry Downunder ...

Hello Everyone, I’m not sure if you are aware of the challenges that Mother Nature has thrown at Western Australia over the past week? We have had cyclones,...

Hello Everyone, I’m not sure if you are aware of the challenges that Mother Natu...

LemonZest11

•4 years ago

28 Replies

Out of the Loop

Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very difficult day for me since I had my first Covid jab. An opportunity my husband...

Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very d...

Marilyn1959

•4 years ago

31 Replies

Which arm

Hello lovely people I am having the Oxford Vaccination tomorrow and wonder about which arm to have it in. May sound a daft question but I am very right...

Hello lovely people I am having the Oxford Vaccination tomorrow and wonder abou...

Pippah45

•4 years ago

20 Replies

DEXA Result

Well impressed. Had my DEXA yesterday ( Sunday) morning. Text from from my Doctor this morning telling me I have no signs of Osteoporosis or Osteopenia. Well...

Well impressed. Had my DEXA yesterday ( Sunday) morning. Text from from my Doc...

Bcol

•4 years ago

17 Replies

Toobusyforthis

Hi all..I’ve just been told my doctor suspects I have PMR I’ve had a Blood test done last Thursday and are waiting to hear back ..I’ve been reading up on PMR...

Hi all..I’ve just been told my doctor suspects I have PMR I’ve had a Blood test...

Toobusyforthis

•4 years ago

28 Replies

The covid vaccine

Hi all I have been offered the vaccine but am really worried about having it as, by all accounts there has not been enough trials with people who have a...

Hi all I have been offered the vaccine but am really worried about having it as,...

LinnieR

•4 years ago

6 Replies

Timing of PPI and Pred

Hi ladies and gents- just a very quick question- How long a gap should be left after taking PPI before taking Pred. Sorry if this has been asked many times...

Hi ladies and gents- just a very quick question- How long a gap should be left a...

Lyndalou62

•4 years ago

37 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2021

I forgot what you do when you are using the tapering method and have a flare

Officially tapering as of today~!

Looking for info on Prof. Dasgupta

Addition of Methotrexate?

Dispersible aspirin

Rheumatologist call- not PMR?

Husband newly diagnosed.

Methotrexate

Methotrexate - liver function

Steroids side effects

Temporal biopsy

Are Lymph nodes a sign of active PMR?

CBD Oil

Flare

Inflammation up

Starting Pred - opinions on GP’s dose schedule?

I've been here before.

How fast can I reduce dose after brief increase?

Anti Anxiety Medication

HR/Employer, how best to deal with them, any experiences/guidance you would be able to share?

Vaccine

Numbers

Tapering advice

Mother Nature has been angry Downunder ...

Out of the Loop

Which arm

DEXA Result

Toobusyforthis

The covid vaccine

Timing of PPI and Pred

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