Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,269 members • 37,948 posts

All posts for February 2021

Just Coping! GCA ! 3 years now!

Needing some lightness in worry of this extra Covid stuff now! Jabs! Hit & Miss where you are on the list! Spring soon. Always something to look forward too...

Needing some lightness in worry of this extra Covid stuff now! Jabs! Hit & Miss...

Hidden

•3 years ago

17 Replies

Losing the plot

I upped my Pred dose from 3mg to 10mg when I had Covid. I started to lower it , then decided to go back up to 10mg while having some health issues . I then...

I upped my Pred dose from 3mg to 10mg when I had Covid. I started to lower it ,...

Greensleeves

•3 years ago

14 Replies

New to it

Diagnosed with polymyalgia 2 weeks ago. So far so good apart and from feeling tired and a bit grumpy

Diagnosed with polymyalgia 2 weeks ago. So far so good apart and from feeling ...

nicolahg

•3 years ago

36 Replies

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Self inflicted flare up

I had a flare-up of my PMR over the last few days and had put it down to trauma after my horse being put to sleep. I was horrified to find out today that I...

I had a flare-up of my PMR over the last few days and had put it down to trauma ...

Ladyoak

•3 years ago

16 Replies

Nervous

Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a...

Sorry I'm going a bit off piste but I feel very scared. My husband has had troub...

Suet3942

•3 years ago

8 Replies

Fatigue and aching in pelvic girdle

I have been tapering my prednisone 1 mg per month , I am at 7 mg now . I am feeling tired and sleepy especially in the morning to early afternoon before I take...

I have been tapering my prednisone 1 mg per month , I am at 7 mg now . I am feel...

Athena2020

•3 years ago

8 Replies

A pint a day

I mentioned yesterday that I just achieved my first 0 Pred day in two years and without a flare. I put it down to my very slow taper plan but I was just...

I mentioned yesterday that I just achieved my first 0 Pred day in two years and ...

JohnnyQ50

•3 years ago

27 Replies

Covid Vaccine

Hi all getting first jab on Saturday anyone got any advice, iam just wary with being on the steroids what I should expect or can we just get on with it as my...

Hi all getting first jab on Saturday anyone got any advice, iam just wary with b...

Harrywogan

•3 years ago

75 Replies

Blood shot eyes any information please

Truth be know I have not been well really since 2017. Hair loss (alopecia totalise all my hair except my eyes lashes) I'm lucky. Chronic nodular prurigo which...

Truth be know I have not been well really since 2017. Hair loss (alopecia totali...

Hiibilly

•3 years ago

10 Replies

Vaccination scam

I see many of you getting your vaccinations around about now. I received an 'NHS' email today inviting me for mine. Accepted the invitation, chose my date and...

I see many of you getting your vaccinations around about now. I received an 'NHS...

artisam

•3 years ago

18 Replies

Jaw Popping

Well, I finally went to physio and he is working on my jaw. I told him I basically hurt all over but Rhemy says it is OA. He thinks it could be myophasia and I...

Well, I finally went to physio and he is working on my jaw. I told him I basical...

Robinsnest72

•3 years ago

4 Replies

Spaced out

Was diagnosed with Polymyalgia rheumatica 2weeks ago,I’m 73yrs old,I’m taking 15mg prednisolone daily but I’m totally spaced out,any suggestions to lessen the...

Was diagnosed with Polymyalgia rheumatica 2weeks ago,I’m 73yrs old,I’m taking 15...

Petcut

•3 years ago

13 Replies

Clarification please 😊

Ok need a bit of help and guidance please. I am on weekly Tocilizumab injections and my doctors have just informed me that I have a uti, I remember when the...

Ok need a bit of help and guidance please. I am on weekly Tocilizumab injections...

Helipad

•3 years ago

14 Replies

Question please

Good morning,I am into my 6th year PMR/GCA down to 6mg. I have developed a sort of weakness in upper legs, which goes up into my bottom. Any thoughts please?.

Good morning,I am into my 6th year PMR/GCA down to 6mg. I have developed a sort ...

Deeroy2015

•3 years ago

6 Replies

PMR gone or has it?

So after just over 2 years since diagnosis and the usual bumps I eventually tapered to zero pred last November. The PMR symptoms I started with have gone but...

So after just over 2 years since diagnosis and the usual bumps I eventually tape...

Mikeysaab

•3 years ago

22 Replies

PMA one month - Now Grade 2 Diabetes!

I've only been part of your community for a month, having been diagnosed with PMR on January 2nd. I am on the usual 15 mg Pred and have had my first monthly...

I've only been part of your community for a month, having been diagnosed with PM...

Silver-Babe

•3 years ago

10 Replies

Can I have help please with tapering?

Had face to face with rheumy today. Diagnosed six weeks ago and prescribed 7.5mgs Prednisolone daily. My main concern was GCA, the headaches, shoulder and...

Had face to face with rheumy today. Diagnosed six weeks ago and prescribed 7.5m...

merril

•3 years ago

8 Replies

Covid vaccine and PMR

Just wanted to say I had the Pfizer vaccine 17 days ago and felt out of sorts until yesterday - sore arm for a few days, many more aches and felt generally not...

Just wanted to say I had the Pfizer vaccine 17 days ago and felt out of sorts un...

bakingD

•3 years ago

11 Replies

Safe to drop from 60mg pred to 50 after 2 days?

For all those who kindly responded to my question a couple of days ago about what to expect on 60mg pred, I have an update and a further question. I took two...

For all those who kindly responded to my question a couple of days ago about wha...

Jontie

•3 years ago

5 Replies

Me again- flare

After dropping from 4mg to3.5 mg, I am having a lot of pain- neck, arms, shoulders, butt and thighs. Yup a flare. I asked for advice and have added 5mg for the...

After dropping from 4mg to3.5 mg, I am having a lot of pain- neck, arms, shoulde...

Blackcatlover

•3 years ago

28 Replies

Re Vaccinations

Probably with others, I just listened to the Zoe Covid update webinar... the one thing I thought worth repeating here was that indeed, people with auto immune...

Probably with others, I just listened to the Zoe Covid update webinar... the one...

Frewen1

•3 years ago

17 Replies

Getting the prednisolone dose right

Most effective way to take prednisolone? I am new to this organisation and new to polymyalgia rheumatica. Currently I have been prescribed 20mg daily...

Most effective way to take prednisolone? I am new to this organisation and new t...

bussell

•3 years ago

67 Replies

5mg Pred

Hi everybody, I'm new to this post and happily in good health!!!! However, hubby not so. 3 years ago developed PMR --started on 20mg--got down to 7 in a year...

Hi everybody, I'm new to this post and happily in good health!!!! However, hubb...

piggylovesgolf

•3 years ago

6 Replies

Bisphosphonates

I was diagnosed with PMR at the end of January, it did take 4 GP's to finally decide on the problems, my GP started me on 20mg Prednisone which has helped...

I was diagnosed with PMR at the end of January, it did take 4 GP's to finally de...

Yealink

•3 years ago

17 Replies

0 Pred at last

I haven’t posted for over 12 months but thought that I would share that today I dropped to 0 It’s been a 2 year journey and I remember when I first posted on...

I haven’t posted for over 12 months but thought that I would share that today I ...

JohnnyQ50

•3 years ago

25 Replies

Nausea before diagnosis.

I was just wondering if anyone on here had nausea before they were diagnosed? For over a year, I was awakened almost everyday at 4am with severe nausea. After...

I was just wondering if anyone on here had nausea before they were diagnosed? Fo...

SandraLinks

•3 years ago

6 Replies

Stuck

I have been on 24 mgs deflazacort (and up to 40gs) for 3 months because of a flare. I am trying to reduce by 10 percent per fortnight but I don't seem to be...

I have been on 24 mgs deflazacort (and up to 40gs) for 3 months because of a fla...

bBarnabus

•3 years ago

6 Replies

Is this a flare up

Hi, I am after some advice. I had been tapering down for some time, down from 20 mg to 6mg. Then I had my first flare, just over a month ago, sudden pain in...

Hi, I am after some advice. I had been tapering down for some time, down from 20...

Verwood

•3 years ago

4 Replies

3 weeks only on full dose?

Hi, new here and having a browse through old posts. Newly diagnosed with polymalgia and have been started on 15mg of pred. The medication label says to reduce...

Hi, new here and having a browse through old posts. Newly diagnosed with polymal...

Hidden

•3 years ago

7 Replies

Still tapering but.....

So I started tapering in Sept. from 15 mg 1 mg at a time until I hit 10 mg. It went well and I took 2 months for that phase. After a month at 10 I started down...

So I started tapering in Sept. from 15 mg 1 mg at a time until I hit 10 mg. It w...

Dydee

•3 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2021

Just Coping! GCA ! 3 years now!

Losing the plot

New to it

Self inflicted flare up

Nervous

Fatigue and aching in pelvic girdle

A pint a day

Covid Vaccine

Blood shot eyes any information please

Vaccination scam

Jaw Popping

Spaced out

Clarification please 😊

Question please

PMR gone or has it?

PMA one month - Now Grade 2 Diabetes!

Can I have help please with tapering?

Covid vaccine and PMR

Safe to drop from 60mg pred to 50 after 2 days?

Me again- flare

Re Vaccinations

Getting the prednisolone dose right

5mg Pred

Bisphosphonates

0 Pred at last

Nausea before diagnosis.

Stuck

Is this a flare up

3 weeks only on full dose?

Still tapering but.....

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