Covid vaccine has spiked my PMR

[N-London]

I have had PMR and CGA for a few years, CGA has gone, PMR was really improving, down to Prednisolone at 5mg. Was considering with discussion from doctors to now reducing further over the next months but held on due to Covid, was told the steroid could help reduce any effect it may have.

I had the Asrazenica/Oxford vaccine 2 weeks ago. After a few days and until now suffering the worst PMR spike for over 2 years. Anyone else had the same reaction?

[Maisiek]

Sorry to hear this, but just to reassure peeps I’m on 5mg, had the Pfizer and no reaction at all. Hope it settles down .

[Hidden]

It might be a case of 'one size' doesn't fit all. But as they say that if it gives some protection from severe Covid that must be better. But at the moment they haven't got enough info to say the vaccine caused it. I hope you feel better soon.

[PMRpro Ambassador]

Have you reported it with the Yellow Card system?

[N-London in reply to PMRpro]

Doing it now

[MrsNails]

Sorry to hear this - have you reported as per the Yellow Card System as PMRpro mentioned? Are you using the ZOE Covid App as they are very keen on this kind of information.

Have you increased your dose now?

[N-London in reply to MrsNails]

Not reported yet, need to do it this afternoon. Not increased dose either but I am going to have to add much as I hate doing it

[MrsNails in reply to N-London]

It was mentioned on the Seminar on Monday if it triggered a flare, you might have to increase Pred according.

Hope you feel better soon 🌺

[N-London in reply to MrsNails]

Thank you for this. I missed the seminar due to a meeting at work with our US team, wish I had been there to hear.

[MrsNails in reply to N-London]

Shame, are you a Member of PMRGCAuk? If so Fran will send you a link.

[N-London in reply to MrsNails]

Yes I am a member, I was going to attend, then got pulled into a meeting Was there a recording?

I just made a report on yellow card.

[MrsNails in reply to N-London]

Well Done! 👏🏼

Email Fran/Candy l’ll send you a PM with the email address

Angela

[agingfeminist in reply to MrsNails]

I am a member of PMRGCAuk but didn't get info on this seminar. I am afraid I don't know who Fran is. Do let me know how I can contact her.Many thanks.

[MrsNails in reply to agingfeminist]

Will do 😊

[PMRpro Ambassador in reply to agingfeminist]

Fran_Benson and CandyH are listed under Supporting the Community as Administrators at the side of the page on my screen - not sure where on a phone. You can mesage them directly like anyone else and there is also a blue Contact Us button.

[Exflex in reply to MrsNails]

Did they give any indication how much additional Prednisolone to take and for what duration? In doing so does it affect the immune system making use of the vaccine? If I was to guess (yes I’m guessing) I would say it would reduce the effectiveness.I’m on 10mg transitioning to 9mg (using DSNS).

[N-London]

This was a great seminar, so glad I posted on here and got to watch it. Thank you MrsNails

[ab58sf]

I am sorry to hear this. I'm sure it is discouraging. We think the vaccine triggered my PMR and I was told NOT to have any vaccines nor boosters. What does your doctor advise?

[PMRpro Ambassador in reply to ab58sf]

Once it has already been triggered it probably won't cause any more problems. I flared a bit with the second original jab but it went away and no other jabs have been a problem. And I haven't had Covid as far as I know.