Sometimes I am confused as to whether this is attempt 3 or 4, I think it is 3. In July of 2020 I got down to 8 mg of Medrol but started having blurriness in my right eye so went back up to 16 mg per day. Since November 2020 I've been on 12 Medrol per day along with Actemra. I had mentioned in a post, my present rheumy in Indiana switched me to prednisone, 15 mg per day. Today I took 14 mg and shall for a month. If all goes well I will go to 13 mg daily, at that time I will see the Doctor again in April.
At my appointment yesterday, he would set up an order for labs before my next visit...but I was amazed when he said, "We cannot rely on lab work alone." So I told him about all my wise friends in England who spoke of this~!!! I really like this fellow as he is intent on making sure I retain vision in my right eye and yet works closely with my internist to protect my 80-year-old body, mainly my kidneys. I've already decided that if it means I take 10 for whatever my forever is...10 it will be.
Without all of you, this journey would have been so different. You have been my backbone and my heart. I know you are all with me step by step. I'm excited and a tad nervous....but this time (because of all of you) if my right eye gets wonky, I'll just increase the steroids myself. π