Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for January 2021

I'm new here and have seen a rheumy. During his examination he looked at both my hands turned them over, but said nothing. Is this usual?

Had a lengthy session with him (one and a half hours) and he arranged to write to my GP and suggest I have a trial on steroids and an US scan. Today I had my...

Had a lengthy session with him (one and a half hours) and he arranged to write t...

merril

•4 years ago

17 Replies

Second Covid Vaccination

We had ours this morning Thursday 7th .We attended the same huge centre as last time the difference being...... more staff and stewards than patients. we...

We had ours this morning Thursday 7th .We attended the same huge centre as last...

saunders123

•4 years ago

11 Replies

If I'm taking Fosamax should I still be taking my K2 and Calcium?

I've been on Fosamax for the past two months and I've continued to take my K2 and calcium. Is this okay or should I stop the supplement? My last bone scan...

I've been on Fosamax for the past two months and I've continued to take my K2 an...

singingloud

•4 years ago

14 Replies

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Ibuprofen?

Is it true that ibuprofen doesn’t help with PMR pain?

LemonZest11

•4 years ago

21 Replies

Reminder about political posts

Dear members, a reminder not to use the site for political posts. While we wish for calm in America and for all those affected by the recent events please keep...

Dear members, a reminder not to use the site for political posts. While we wish ...

Fran_Benson

Partner•4 years ago

BBC programme

Did anyone see the programme on BBC this evening about the immune system ? It was very interesting

Did anyone see the programme on BBC this evening about the immune system ? It wa...

Devonspinner

•4 years ago

110 Replies

Allergies and the Covid vaccines

This is a very readable article about allergies in the context of the Covid vaccines from a reliable source which I thought you would all be interested in:...

This is a very readable article about allergies in the context of the Covid vacc...

PMRpro

Ambassador•4 years ago

14 Replies

temporal arteritis but only 24?

Hi there, Wondering if anyone could help. Over the past month I've been experiencing symptoms of shoulder and hip discomfort. These definitely haven't been...

Hi there, Wondering if anyone could help. Over the past month I've been experien...

youngandworried

•4 years ago

6 Replies

What is classed as low dose steroids

Hello All, I don’t post often but follow everyday. I was diagnosed with pmr Dec 2018, I’m currently on 9mgs of pred (had 2 flares) and starting to reduce to...

Hello All, I don’t post often but follow everyday. I was diagnosed with pmr Dec...

Iloveholidays

•4 years ago

6 Replies

Is Polymyalgia Linked to Leukaemia

Source: Scand J Rheumatol . 1977;6(3):145-7. doi: 10.3109/03009747709095438. Polymyalgia rheumatica and chronic lymphatic leukaemia J von Knorring, O...

Source: Scand J Rheumatol . 1977;6(3):145-7. doi: 10.3109/03009747709095438. P...

Estellemac

•4 years ago

10 Replies

Newly diagnosed - what do I need to ask my consultant on first visit?

I am waiting to be officially diagnosed been on 10 mg pred. reduced in 3 months since symptoms started in October, I have been bruising lots lately, I have had...

I am waiting to be officially diagnosed been on 10 mg pred. reduced in 3 months ...

Littlejan22

•4 years ago

15 Replies

Shingles and PMR

Does anyone know if susceptibility to shingles is increased by having PMR? I've just had a shingles bout and have PMR.

Does anyone know if susceptibility to shingles is increased by having PMR? I've ...

ian1951

•4 years ago

7 Replies

How long does it take?

Advice? Finished taking pred 3 weeks ago and symptoms have come back. It took 10 months to go from 15mg but I had many side effects so am “putting up” with...

Advice? Finished taking pred 3 weeks ago and symptoms have come back. It took ...

KerryIreland

•4 years ago

6 Replies

Covid Vaccine Jab and PMR

I had my first vaccnination for the Covid on Saturday and felt no ill side affects. I have been on Prednesalone for PMR since June, started on 30 mg and now...

I had my first vaccnination for the Covid on Saturday and felt no ill side affec...

Ladyoak

•4 years ago

6 Replies

Room spinning/dizziness

Hi - has anyone experienced dizzy spells when reducing pred to a low dose please? Currently trying to get to 1.5 from 2mg. I am having pain as I usually do...

Hi - has anyone experienced dizzy spells when reducing pred to a low dose please...

Bloomsbury123

•4 years ago

42 Replies

confused

Hi, i have unexplained neck, shoulder, arm and leg pain, started gradually 3 months ago and is slowly getting worse. two differing opinions from doctors - one...

Hi, i have unexplained neck, shoulder, arm and leg pain, started gradually 3 mon...

Hidden

•4 years ago

11 Replies

Covid-19: Are both vaccines safe with prednosilone?

I've been offered a 'jab'this week.

jezzard

•4 years ago

13 Replies

Leg cramps

Really bad leg cramps tonight

Hidden

•4 years ago

9 Replies

Bruising

Hi there Does anyone know when you are on pred if you bruise more easily??

TINYdes

•4 years ago

35 Replies

Painful knees

Sorry I should have said started in 2018 not 2019 sorry my mistake🙁

Serilhac

•4 years ago

1 Reply

Same place pain

Does everyone get the worse of their pain in same place? Mine is all over but my knee hip and neck always seem to be worse even after days of hardly any pain...

Does everyone get the worse of their pain in same place? Mine is all over but my...

Hidden

•4 years ago

12 Replies

Doesn't prednisone make COVID vaccine less effective for us?

I am in the US and we watch the reactions to the vaccine in the UK. We are being told that drugs like prednisone will make it less efficacious for us. So our...

I am in the US and we watch the reactions to the vaccine in the UK. We are bein...

bluegirl7

•4 years ago

14 Replies

The new PMRGCAuk website

Happy New Year everyone! Our new website went live over the Christmas break and the address for it is www.pmrgca.org.uk. We're still working on some of the...

Happy New Year everyone! Our new website went live over the Christmas break and ...

Fran_Benson

Partner•4 years ago

45 Replies

Some advise please

Just been prescribed Alondronic acid what do you people think about this drug do you think it's a good idea I have got a Brocken arm so consultant advised me...

Just been prescribed Alondronic acid what do you people think about this drug do...

Choosepink

•4 years ago

15 Replies

Another Covid research opportunity for rheumatological patients

Researchers conducting a COVID-19 UK-based online research survey are looking for people with rheumatological diseases to report their experiences with...

Researchers conducting a COVID-19 UK-based online research survey are looking fo...

PMRpro

Ambassador•4 years ago

17 Replies

Shielding.

I dont know what to do,as I had to shield in april,may,june and july,was going back to work in sept,but my boss rung to stay off till end of oct,went back for...

I dont know what to do,as I had to shield in april,may,june and july,was going b...

Flosy

•4 years ago

17 Replies

Anyone had fungal infection?

My diagnosis of PMR and GCA was a year ago. Tapered from 60mg pred to 5.5mg in the year...now staying on 5.5mg . Slight pain in shoulders. The latest thing to...

My diagnosis of PMR and GCA was a year ago. Tapered from 60mg pred to 5.5mg in t...

agingfeminist

•4 years ago

5 Replies

Does anyone suffer with chronic lower back pain & complete loss of bladder control?

Diagnosed Sept 2020, but had all PMR Symptoms from 2016. Dad & Grandad also had it but in their 70's i am 59.

Diagnosed Sept 2020, but had all PMR Symptoms from 2016. Dad & Grandad also had ...

Lowercwmtwrch

•4 years ago

8 Replies

Prednisone causes reduction pain not PMR

I recently posted my technique for reducing prednisone under 8 mg of continual dose. My rheumatologist explained to me that under 8 mg of prednisone our own...

I recently posted my technique for reducing prednisone under 8 mg of continual d...

MarkyMark60

•4 years ago

16 Replies

Any experience of having GCA and Actemra (TCZ) being discontinued while still trying to taper steroids

Diagnosed with GCA June 2019. Tried to taper Prednisolone but had a few flares so was prescribed TCZ (weekly injections) to see if it would help. I succeeded...

Diagnosed with GCA June 2019. Tried to taper Prednisolone but had a few flares s...

Alpineflower

•4 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2021

I'm new here and have seen a rheumy. During his examination he looked at both my hands turned them over, but said nothing. Is this usual?

Second Covid Vaccination

If I'm taking Fosamax should I still be taking my K2 and Calcium?

Ibuprofen?

Reminder about political posts

BBC programme

Allergies and the Covid vaccines

temporal arteritis but only 24?

What is classed as low dose steroids

Is Polymyalgia Linked to Leukaemia

Newly diagnosed - what do I need to ask my consultant on first visit?

Shingles and PMR

How long does it take?

Covid Vaccine Jab and PMR

Room spinning/dizziness

confused

Covid-19: Are both vaccines safe with prednosilone?

Leg cramps

Bruising

Painful knees

Same place pain

Doesn't prednisone make COVID vaccine less effective for us?

The new PMRGCAuk website

Some advise please

Another Covid research opportunity for rheumatological patients

Shielding.

Anyone had fungal infection?

Does anyone suffer with chronic lower back pain & complete loss of bladder control?

Prednisone causes reduction pain not PMR

Any experience of having GCA and Actemra (TCZ) being discontinued while still trying to taper steroids

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