Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,267 members • 37,932 posts

All posts for December 2020

Knee pain

Good morning my lovely PMR family,could I please ask your advice .I took my last steroid on 30th October 2020. I had PMR for 3 years and was told by my Rummy...

Good morning my lovely PMR family,could I please ask your advice .I took my last...

Hodgey58

•3 years ago

5 Replies

Adcal-D3 and Alendronic Acid

When pred was first prescribed I was also prescribed Adcal-D3 and Alendronic Acid. Why? Are these reduced as the pred is reduced, now on 8 down from 20?

When pred was first prescribed I was also prescribed Adcal-D3 and Alendronic Ac...

Bncc

•3 years ago

9 Replies

Taper concern

I am day 2 into a pred taper. I usually suffer for about a week each time I taper. The withdrawals are just starting My whole family have just tested...

I am day 2 into a pred taper. I usually suffer for about a week each time I tape...

Leepeelee

•3 years ago

8 Replies

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Severe rash

Has anyone had a severe itchy rash when reducing dosage of prednisolone.

Enid500

•3 years ago

9 Replies

Food

Hi all. I been reading all yr comments and realized there's a lot about food, is there foods u shouldn't eat or foods should be.

Hi all. I been reading all yr comments and realized there's a lot about food, i...

Hidden

•3 years ago

4 Replies

Watery hooded & puffy eyes

Im suffering from watery eyes, and the water runs in to my glasses. My eyelids are hooded and look like slits and I have huge bags underneath them just to...

Im suffering from watery eyes, and the water runs in to my glasses. My eyelids a...

HappyDiamonds

•3 years ago

31 Replies

Urine frequency

Hi, can anyone tell me if pred makes you urinate frequently. I've been several times today and was just wondering. I haven't had more fluids than normal....

Hi, can anyone tell me if pred makes you urinate frequently. I've been several t...

genius64

•3 years ago

14 Replies

Increasing dose advice if you are infected with Covid 19

Why is it that the NHS has constantly bombarded me with the same emails and letters reminding me that I am extremely vulnerable and the precautions I should...

Why is it that the NHS has constantly bombarded me with the same emails and lett...

South123

•3 years ago

11 Replies

Pred reduction

Firstly may I take this opportunity of wishing you all success in managing PMR/GCA in 2021, especially those wise members whose advice and input has been...

Firstly may I take this opportunity of wishing you all success in managing PMR/G...

Gunflash

•3 years ago

11 Replies

Does this sound like GCA - and what next?

Hi all, I'm actually posting on behalf of my Mum. Will try and keep this succinct but it's going to be difficult! So, Mum is 60 with advanced renal cell...

Hi all, I'm actually posting on behalf of my Mum. Will try and keep this succinc...

Corda1983

•3 years ago

23 Replies

Pain threshold?

Am I being a wimp & just need to man up? I really don’t know how I’m meant to feel or if the level of aches & pain I’m experiencing is ‘normal’ or as expected...

Am I being a wimp & just need to man up? I really don’t know how I’m meant to f...

Stiffknees

•3 years ago

31 Replies

Third time lucky?

Keeping fingers crossed, this is now my third attempt , tapering to zero . First attempt after GCA in June 2016, second PMR November 2017 and then third PMR...

Keeping fingers crossed, this is now my third attempt , tapering to zero . First...

DevonMichael

•3 years ago

17 Replies

PMR or Arthritis

Is it possible to have a relatively mild case of pmr? Some years ago I had PMR and was on prednisone for two years. I now have some of the symptoms but I...

Is it possible to have a relatively mild case of pmr? Some years ago I had PMR ...

Crowsfeet

•3 years ago

45 Replies

Looking for a rheumatologist with an open mind.

Hello all, thanks for your informative posts and I wish you all a happy 2021. I am looking for a recommendation for a rheumatologist who has an open mind when...

Hello all, thanks for your informative posts and I wish you all a happy 2021. I ...

EggAndBacon

•3 years ago

13 Replies

Avoid abbreviations?

As a newbie here I'd appreciate a guide to the commoner abbreviations e.g. DVT.( I demonstrate my ignorance-but it's not a crime ) Pred (there I go) has...

As a newbie here I'd appreciate a guide to the commoner abbreviations e.g. DVT....

jezzard

•3 years ago

7 Replies

Will Preds help?

My husband suffers with 'Sleep fighting'. Two nights ago he had a really bad session and hurt my left hand. Across the knuckles is swollen and fingers are...

My husband suffers with 'Sleep fighting'. Two nights ago he had a really bad ses...

Dambusters

•3 years ago

13 Replies

Actemra

Hi guys, I have just started self injecting Actemra once a week as the drugs I started on have not worked in reducing my discomfort. Has anyone found this...

Hi guys, I have just started self injecting Actemra once a week as the drugs I s...

Keepingsane

•3 years ago

17 Replies

Tingling arms and hands

Morning all Hope everyone has had a good Christmas weekend? It’s nice to have time off to relax from work. 🤗 Sorry for the long post. I tapered off...

Morning all Hope everyone has had a good Christmas weekend? It’s nice to have ...

carolBF

•3 years ago

9 Replies

can i take glucosamine chondroitin with turmeric plus msm with the prednisone and the usual calcium ,vitamin d etc.

Im doing well on my tapering. Just starting down to 6mg prednisone for my PMR. My daughter likes to do natural suppliments and just gave me a large jar of this...

Im doing well on my tapering. Just starting down to 6mg prednisone for my PMR. M...

Paperroses

•3 years ago

4 Replies

Cant believe how quick pain returns

I take 3x5mg every morning but somehow this morning I dropped 1 and didnt notice until just now when it was the time of the day where I deep clean my kitchen...

I take 3x5mg every morning but somehow this morning I dropped 1 and didnt notic...

Hidden

•3 years ago

6 Replies

Thankyou and Happy Christmas from PMRpro

You will have noticed I haven't posted much over the weekend - but I have read every comment! If I replied to everything I'd never stop ... Thank you for all...

You will have noticed I haven't posted much over the weekend - but I have read e...

PMRpro

Ambassador•3 years ago

63 Replies

GCA - reaction to Pred reduction?

Hello, I hope everyone has had a Christmas thus far in the range of "perfectly alright" to "wonderful". I just wondered: started Pred treatment in mid August...

Hello, I hope everyone has had a Christmas thus far in the range of "perfectly ...

Frewen1

•3 years ago

27 Replies

Almost 4 months since GCA diagnosis and can't get my shoes on for swollen ankles.

Hello again folks. Just a bit concerned over the holiday period, as my ankles and blood pressure (156/88 this morning) have gradually got worse and I'm...

Hello again folks. Just a bit concerned over the holiday period, as my ankles a...

strawclutching

•3 years ago

37 Replies

Pred and Thrombosis

Hi, Still relatively new here. Was diagnosed with PMR in August and put on 20mg Pred/day. It was like someone had waved a magic wand – the pain vanished...

Hi, Still relatively new here. Was diagnosed with PMR in August and put on 20mg ...

Lauterbach

•3 years ago

29 Replies

Too soon for a taper?

Hello, I have learnt a lot from this site, thank you to everyone. Diagnosed with PMR on 6 July 2020 I started on 30mg for 5 days, then down to 25, and 20 and...

Hello, I have learnt a lot from this site, thank you to everyone. Diagnosed with...

SNOWYROSE

•3 years ago

8 Replies

GCA?

My friend is suffering excruciating pain in her eye: her eye is inflamed and swollen around it: the hospital yesterday diagnosed blepharitis but anti biotics...

My friend is suffering excruciating pain in her eye: her eye is inflamed and swo...

Maisiek

•3 years ago

7 Replies

PMR - GLAUCOMA - D-DIMER RAISED

I was diagnosed with PMR in July and started on 20mg of Prednisolone. Had taped down to 9 mg end November . For the last few years (since 2015) also I have...

I was diagnosed with PMR in July and started on 20mg of Prednisolone. Had taped ...

2009jayne

•3 years ago

10 Replies

Blood test results

I went for my blood test results earlier this week mostly good - ESR 10, hba1c 38, cholesterol 3.9 but my kidney function has gone down and I have to have a...

I went for my blood test results earlier this week mostly good - ESR 10, hba1c 3...

Koalajane

•3 years ago

20 Replies

Checking symptoms

Hi all. This is my 4th day of pred 15mg in morning I'm taking with youghut as some of yr suggestions cause I'm not a breakfast person but I just wanted to...

Hi all. This is my 4th day of pred 15mg in morning I'm taking with youghut as s...

Hidden

•3 years ago

6 Replies

Hi.

Hi to all the people on this forum,thank you so much for the help you have giving me.hope you all had a lovely xmas.talk in the year.happy new year.hope 2021...

Hi to all the people on this forum,thank you so much for the help you have givin...

Flosy

•3 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2020

Knee pain

Adcal-D3 and Alendronic Acid

Taper concern

Severe rash

Food

Watery hooded & puffy eyes

Urine frequency

Increasing dose advice if you are infected with Covid 19

Pred reduction

Does this sound like GCA - and what next?

Pain threshold?

Third time lucky?

PMR or Arthritis

Looking for a rheumatologist with an open mind.

Avoid abbreviations?

Will Preds help?

Actemra

Tingling arms and hands

can i take glucosamine chondroitin with turmeric plus msm with the prednisone and the usual calcium ,vitamin d etc.

Cant believe how quick pain returns

Thankyou and Happy Christmas from PMRpro

GCA - reaction to Pred reduction?

Almost 4 months since GCA diagnosis and can't get my shoes on for swollen ankles.

Pred and Thrombosis

Too soon for a taper?

GCA?

PMR - GLAUCOMA - D-DIMER RAISED

Blood test results

Checking symptoms

Hi.

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