I tapered off steroids 6 weeks ago after 2 years and the side effects have stopped me sleeping, sent my blood sugar levels high, and the fatigue was incredible. Blood sugar now nearly back to my normal.
My doctor thought a lot of my muscle pain was the result of the long term use of steroids, To be fair since not taking them a lot of my muscle pain has now disappeared, since getting PMR all my muscles can not stretch very well this causes small pulled muscles in my calf’s muscles , and shoulders.
I now still have painful hips which are slowly getting better with rest.
however I now have tingling from my elbows to my fingertips all night, which is stopping me sleeping and waking me up. My fatigue is a little better but I have really bad days since stopping steroids.
Because of weakness and trapped nerves over the last 6 years I have had Two shoulder decompressions operations and the nerves cut in both elbows. Is this the reason for the tingling now?
I also had covid at the beginning of November mildly.
since being diagnosed with PMR It’s the little things I miss like being able to walk straight instead of waddling like a duck, going for a walk without lying down for 2 hours after, Being able to brush my hair without being carful not to pull muscles when lifting my arms,
Being able to sit up all the time instead of needing to lie down with a cushion to support my hips.
And to be out of pain for just one day.
I am 51 and still feel a lot older.
This is just a theory
I had a gastric band fitted 6 years ago which coincides with the start of my shoulder pain. Is my body trying to get rid of a foreign body inside it? Which has made my inflammatory levels high? Contributing to PMR?
Any thoughts welcome
Written by
carolBF
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The hands tingling COULD be carpal tunnel syndrome - the pred may have been keeping it at bay - but it depends which fingers are affected. However, even mild Covid can remain in the form of long Covid and that can have neurological effects.
Surgery itself can be a trigger for PMR - but I don't know how the body reacts to the silicon that is usually used for gastric bands. We did have a lady who had had vaginal mesh surgery and developed PMR soon afterwards - but we all know that has been something of a disaster.
Thank you for my reply, That is so interesting about covid causing neurological effects, this tingling in my whole hands up to my elbows has been much worse since I had covid.
I am down to have my band removed as it has slightly eroded to my stomach, we will see if it makes a difference.
Hopefully they will rebook my op after the new year.
Hi, I think your own theories relating to your state of health are pretty insightful. Anything I say would be a guess.I experience something like restless leg syndrome in my legs and sometimes my arm or arms. It could be described as very mild pins and needles. It is very irritating and also keeps me awake. The last couple of nights I have taken a multi vitamin and mineral orange drink in half a pint of water and a Magnesium tablet. To my amazement the symptom disappeared and I was able to sleep. This maybe a fluke, it may have been the rehydration, the large dose vit C and B12 or the Magnesium which is great for cramp. It might be worth a try.
There is an OTC product available here in Ontario called Night Formula Magnesium. It contains 150 mg of Magnesium and 3 mg Melatonin. I take it at night and have found it very helpful for sleeplessness and leg cramps . Prior to finding this I used to take the Magnesium at night because that is when the cramps were more of a problem.
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