Could do with advise

[Harrywogan]

Are you always in some kind of pain with pmr and should you cut pred if you are in pain my gp keep saying reduce help.

[DorsetLady PMRGCAuk volunteer]

If your pain is PMR related, then no you shouldn’t be in pain if on the correct dose of Pred, nor should you reduce.

Does your GP think the pain is something other than PMR - or does he just not understand the illness?

Just looked at your previous post- as you’ve only had PMR for 3 years, you may still have a way to go.

[Harrywogan in reply to DorsetLady]

Thanks Dorset Lady I think after 3 years I thought I would be better now after reading other posts I think iam living in cloud cuckoo land.ill stay at 7 for a while .someone told me they took extra for a few days then came back down .

[DorsetLady PMRGCAuk volunteer in reply to Harrywogan]

You might like to have a read though this.......hopefully bring you down to earth😉healthunlocked.com/pmrgcauk...

[Hidden]

Sounds like you have a way to go yet if you are still in pain. Therefore from my experience it's too soon to reduce.

[PMRpro Ambassador]

As I said to your elsewhere - the response to the starting dose is your guide. If you can get to pain-free there then you look for PMR pain-free as you reduce. If PMR pain resurfaces it usually means you have overshot what you are looking for: the lowest dose that gives the same result as the starting dose did. You may have pain after a step down but if it improves over the following week or so then it was probably due to dropping the dose. If it gets worse - you have gone too low and need to go back to the previous dose that was enough.

[suzy1959 in reply to PMRpro]

I wish I could remember what my response was to my starting dose! It was soooo long ago!

[PMRpro Ambassador in reply to suzy1959]

I can still remember that first day, standing outside the pharmacy and swallowing the pills - and getting up, walking downstairs about 6 hours later and back up holding a cup of tea. And then it hit me, what I had just achieved ...

[Longtimer in reply to suzy1959]

I can, vividly!.....never felt that good again. I walked around a lovely large lake with OH, he said we'll you're half way round, how do you feel?...remember I said, if I go back or carry on it's the same!...it was no problem....I raced a friend to a cafe, she said I want what you're on...she doesn't say that now!

[Janet57 in reply to suzy1959]

I remember walking down the stairs at home normally and when I got to the bottom I suddenly realised what I’d done. What a feeling. 😊