PMR Seronegative Polyarthritis: PMR... - PMRGCAuk

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PMR Seronegative Polyarthritis

Constance13
Constance13
β€’70 Replies

PMR - Seronegative Arthritis - Gout attacks and three other "nasties".

HAPPY FIRST OF ADVENT EVERYONE.πŸ’₯β„οΈπŸ’πŸ’ƒπŸ‘΅πŸ»

Don't think I'll send this one to my rheumatologist!!!

70 Replies
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I'm impressed Constance! πŸ‘πŸ‘πŸ‘

PMRpro
PMRproAmbassador

Your rheumy does KNOW you are hypermobile Constance?

Constance13
Constance13 in reply to PMRpro

He won't accept it - not at my age!!πŸ‘΅πŸ»πŸ€ͺ

PMRpro
PMRproAmbassador in reply to Constance13

What I mean is that that could well account for some of your joint pain - Ehlers-Danlos syndromes.

Constance13
Constance13 in reply to PMRpro

Oh shoosh!πŸ˜‚ I've got enough illnesses to cope with.πŸ‘΅πŸ»

jinasc
jinasc in reply to Constance13

Wow, never in my life have I been able to touch my toes........it used to drive the Gym teacher at school so cross.

Constance13
Constance13 in reply to jinasc

You can remember that far back?? πŸ€ͺ

DorsetLady
DorsetLadyPMRGCAuk volunteer in reply to Constance13

Watch it...she’s on the booze already!

It's the first of Advent.πŸ˜‚

Husband just said "you can't run up the stairs like me though". That's put me in my place!πŸ€ͺ

πŸ˜‚πŸ˜‚πŸ˜‚

Pastit
Pastit in reply to PMRpro

It seems to me that when the medical professionals don't know what it is, they call it a syndrome.

DorsetLady
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

I’m not hyper mobile - but I can still do that - despite replacement knee, hip and shoulder! But I am a bit younger than Constance.

πŸ˜‚ We "oldies" can show them. πŸ’₯

PMRpro
PMRproAmbassador in reply to DorsetLady

I could do it - not quite with hands flat on the floor though now. But an MSK "specialist" informed me since I could do that and he couldn't, I didn't have back problems!!!

DorsetLady
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

That’s rubbish!

Constance13
Constance13 in reply to PMRpro

Well he's right really, isn't he? How many people with back problems can touch the floor?

PMRpro
PMRproAmbassador in reply to Constance13

An awful lot! It's hamstrings that stop men touching the floor!

Constance13
Constance13 in reply to PMRpro

I learn something every day!

jinasc
jinasc in reply to PMRpro

Wonder if he would have said 'hip to knee too long'. I never understood why the osteo guy said that. πŸ€”

PMRpro
PMRproAmbassador in reply to jinasc

I think there are optimum bone lengths and ratios for joint movement - if the hip to knee length is too long or short it could lead to muscle problems maybe?

jinasc
jinasc in reply to PMRpro

Yes, that is what the Acu guy thought had helped to cause the Piris...............

I never thought about what he said till I read your post.

Longtimer
Longtimer in reply to PMRpro

I was told years ago by a physio no-one should ever be asked to do what Constance is doing.....

Why? You did mean the "bend", didn't you???πŸ˜‚

Yes, she said it`s too much strain on the back for anyone to do, thinking about it we would normally bend our knees to pick things up etc....well I would have to....have scoliosis at top of my back (across bra line) and OA in facet joints at base of spine....both painful today, damp conditions!

DorsetLady
DorsetLadyPMRGCAuk volunteer in reply to Longtimer

I had a touch of spondylitis in lumbar region according to last DEXA scan so probably shouldn’t do it, but going down from cat pose (on hands and knees) to β€œsit” on hips in pilates does stretch the back nicely!

Going down on hands and knees would "cripple" me! Arthritis in hips, knees and wrists.

PMRpro
PMRproAmbassador in reply to Constance13

Not arthritis - must be scar tissue but it is like knives unless the surface is VERY soft

DorsetLady
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

Yep!

DorsetLady
DorsetLadyPMRGCAuk volunteer in reply to Constance13

Well as know one new knee and hip...but as PMRpro says floor needs to be cushioned for operated knee - have a padded bench at Pilates....and if I’m at home, cushion!

One wonders if there will ever be a cure for Arthritis??

I shouldn't think so! There's no cure for old age and arthritis is just one of the things (I would say most of the time) that can't be cured. And what can't be cured must be endured!

PMRpro
PMRproAmbassador in reply to Longtimer

I can only pick something up by bending like that - bend zee knees is an ability that is long past!

PMRpro
PMRproAmbassador in reply to Longtimer

Funny - my physio asked me to demonstrate that during her assessment!

Longtimer
Longtimer in reply to PMRpro

Dosen`t surprise me....don`t have much faith in Physios to be honest....they all say different things....but then so do Rheumies!.....

PMRpro
PMRproAmbassador in reply to Longtimer

I have to say, the physios here are far better than most I've come across in the NHS

Constance13
Constance13 in reply to PMRpro

I can get free physio appointments (as you know) but I find I 'hurt' for the next couple of days - so I don't bother.

PMRpro
PMRproAmbassador in reply to Constance13

Think you need to give your therapist more feedback - good ones adjust their expectations.

Constance13
Constance13 in reply to PMRpro

I don't think they really believe I have arthritis because I can move everything so well and I don't swell up too badly. It IS unusual!

About two years ago my GP sent me to NHS physio, he said we don't do hands on, we give you exercises to do....must say at that moment I felt like I could put my hands on!!......have had to pay since....after MR I in February was sent exercises by email....have rung her since for advice...her reply, sit in chair and soften your muscles!!!....grrrrr

You gotta laugh!πŸ˜‚

You certainly do! πŸ˜„

When I trained as a physio 60! years ago we were very much 'hands on'. and as far as I am concerned that should still be the case. I am amazed and shocked at the modern idea of handing out of sheets of exercises. You don't need detailed knowledge of anatomy and physiology to do that. We spent ages instructing and checking that exercises were done correctly. Rant over...

Absolutely agree, and I had paid to see a Rheumatologist!.....who then instructed her to advise me about exercises for facet joint OA in the lower spine .......but it was emails and a phone call.....shocking....I may as well have gone on youtube!

Longtimer
Longtimer in reply to PMRpro

Perhaps trained differently?.....

PMRpro
PMRproAmbassador in reply to Longtimer

They see you, f2f, and work with you for 3/4 hour, up to 12 sessions. And give you homework - but stuff that is easy to do right at home.

Longtimer
Longtimer in reply to PMRpro

Think I'll move to my favourite place.....Lake Garda!......πŸ˜‰

PMRpro
PMRproAmbassador in reply to Longtimer

Except that isn't where I live - I'm further north in Suedtirol/Alto Adige, autonomous region with its own healthcare system ...

Longtimer
Longtimer in reply to PMRpro

Have been to several places in Italy, but haven't heard of where you are....will be nosey and look that up!...

PMRpro
PMRproAmbassador in reply to Longtimer

kronplatz.com/en

It is wonderful - and we speak German which saves me struggling in a third language ;)

The restaurant page for Bruneck is actually our village - but we aren't Bruneck ...

Longtimer
Longtimer in reply to PMRpro

Certainly looks lovely, ....and to speak the language is everything, ....I have lovely memories of the Dolomites....we went up in a coach, but stopped at a beautiful village half way up with lovely chalets.....

Longtimer
Longtimer in reply to PMRpro

Found it on the map looks wonderful, have never been that far north....

123-go
123-go in reply to PMRpro

He's just jealous!

Suffererc
Suffererc in reply to PMRpro

πŸ˜‚πŸ˜‚πŸ˜‚πŸ€ΈπŸΎβ€β™‚οΈπŸ€Έβ€β™€οΈ

Goodness me, my OA in my back hurts looking at that!.....impressed!

Impressive! I can touch my toes, no problem, but never put my hands flat on the floor like that. This morning I decided not to do my exercises. I crawled out of bed, could hardly walk, knee really bad, my shoulder was killling me and then a foot decided to join the party. Instead I fed the cats then quietly read the comics instead of exercising and felt much better. The sun is shining after days of fog and drizzle so will go out shortly for a little hobble before watching YouTube version of Advent I service.

I guess we still save the Advent calendars for Dec 1st though, don't we? Someone gave me a Pukka Tea Advent calendar!β˜•

Constance13
Constance13 in reply to HeronNS

Four Sundays before Christmas we start Advent in Germany.

I bought OH a calendar (and one for myself of course) for the first time since the the children were young (ones 53 and the other is 50 now).πŸ˜‚

We don't open the first box until 1st December though.

Needless to say they contain alcohol (little bottles of liqueurs) etc.

Hope life is treating you well (except for all the pain). Take care. πŸ’πŸΎπŸΈπŸ’₯

HeronNS
HeronNS in reply to Constance13

Same for us Anglicans. But the Advent calendars are all designed with 25 days, ending on Christmas Day. My children always got the traditional calendars, you know, the ones with the biblical quotations or story of Christmas with a nice picture under each flap. My tea Advent Calendar and hubby's chocolate calendar are the first ones I've ever had with physical refreshment rather than spiritual! Just came in from my walk. I really thought the knee brace would help more than so far it has. Not sure what else I can do. Tomorrow I'll ask for referral to orthopod and then in a few years we'll see if I need one or two knee replacements.... :D

Ipadmom
Ipadmom in reply to HeronNS

My granddaughter gave me an advent calendar with different flavors of caramel candies for each day. I cheated and have eaten almost half. 😏

Constance13
Constance13 in reply to Ipadmom

Naughty, naughty!!πŸ˜‚πŸ’₯

HeronNS
HeronNS in reply to Ipadmom

😁πŸ₯³

Downward facing dog! I can still do that, weirdly.

PMRpro
PMRproAmbassador in reply to SheffieldJane

And what comes after too????????

SheffieldJane
SheffieldJane in reply to PMRpro

Nothing on one leg, so the crane’s out.

PMRpro
PMRproAmbassador in reply to SheffieldJane

I couldn't get up again from the next stage ...

PMRpro
PMRproAmbassador in reply to SheffieldJane

The move or to pick you up? ;)

SheffieldJane
SheffieldJane in reply to PMRpro

Neither or both.

I started doing downward dog again when I discovered it was a handy halfway step to getting up off the floor!

Wow, jus t looked that up!.....well done.....It says for strength and mobility....I have neither....I feel very inadequate!....πŸ˜•

How strange just last week I bent down to see if I can still touch my toes, yes I can! Slipped over in the mud had a devil of a job getting up though.

Oh my goodness!! You're all so 'active'. My one walk a day seems completely inadequate. I'm really impressed and feel encouraged (if not a little shamed!) into sorting out some pilates, yoga or whatever for PMR (seen there's lots of stuff available on YouTube) I tried.....in a gentle fashion!.....to touch my toes, but hamstrings said a big fat "NO!!" πŸ˜„Thankyou for your 'conversations' that always give me food for thought, encourage me to think outside the box and frequently make me smile or laugh. I love all of you.

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