Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,570 members • 38,638 posts

All posts for August 2020

Difficulty in reading posts

I'm trying to read the posts and it takes me to a join page , can anyone help

kate1978

•4 years ago

6 Replies

Muscle pain again

I would really like to know if I am alone. After what seems like forever, I weaned myself off of Prednisone, slowly but the right way. After only 3 weeks I...

I would really like to know if I am alone. After what seems like forever, I wean...

Amber1414

•4 years ago

5 Replies

REMISSION!

It is with great pleasure that I announce I am finally in remission! After 4 years dealing with PMR I am back and a better version of me! I want to thank...

It is with great pleasure that I announce I am finally in remission! After 4 ye...

Marie1479

•4 years ago

34 Replies

Want to take advantage of all our features? Just log in!

Mild PMR, atypical PMR or not PMR at all?

Hi All I haven’t yet been diagnosed, but my GP is very firmly leaning towards a PMR verdict. We have a telephone consultation next Monday to finalise. I’m not...

Hi All I haven’t yet been diagnosed, but my GP is very firmly leaning towards a ...

PurpleNDH

•4 years ago

16 Replies

Funny Actemra experience

Last night was my third Actemra shot. This morning I was in less pain and had a lot more energy than usual. I went out early this morning and washed my car...

Last night was my third Actemra shot. This morning I was in less pain and had a ...

Linny3

•4 years ago

20 Replies

polymyalgia or rhumatoid arthritis

Hi everyone i have just joined today for some much needed information, currently waiting for a rhumatology app , but back in march I was an active healthy 49...

Hi everyone i have just joined today for some much needed information, currently...

snoopy29

•4 years ago

29 Replies

Taper, to stick for another week or move on?

Morning all, beautiful morning here (NW) and no thunderstorms during the night, much to the delight of the the bowwows, but due more today. Anyway, I have been...

Morning all, beautiful morning here (NW) and no thunderstorms during the night, ...

Bcol

•4 years ago

9 Replies

Pmr or withdrawals

Quick question? I’ve had more success with the last 3 pred tapers than all previous ones. The difference is that the last 3 tapers have triggered mild...

Quick question? I’ve had more success with the last 3 pred tapers than all prev...

Leepeelee

•4 years ago

6 Replies

PMR v LORA -Rheumy reccomendation

Is it possible to have PMR without a very high initial CRP?mine was mildly elevated and 2/3 rheumies think I have PMR Only was reading in Kate’s book that it...

Is it possible to have PMR without a very high initial CRP?mine was mildly eleva...

bakingD

•4 years ago

4 Replies

I wake up with my face bright pink and feeling very warm

I'm guessing its the prednisone, currently tapering 8mg to 7.5. I also get very hot at times. The coloring fades from my face after I'm up awhile.

I'm guessing its the prednisone, currently tapering 8mg to 7.5. I also get very...

Paperroses

•4 years ago

8 Replies

Swelling in feet & fingers: caused by coming off Pred or reaction to TCZ? Have had blood work done, nothing there.

Swelling in feet/fingers.........no weight gain; just uncomfortable swelling

jarn

•4 years ago

7 Replies

Split dosage for residual PMR pains

Hi Looking for advise on possible effect of splitting my Preds dosage. I have had a great reduction in pain and stiffness but still have mild pain in my right...

Hi Looking for advise on possible effect of splitting my Preds dosage. I have ha...

Verwood

•4 years ago

7 Replies

Methotrexate

Good afternoon ladies and gents' I hope you are all as well as can be while enjoying the lovely weather. I wonder if once again some of you might be king...

Good afternoon ladies and gents' I hope you are all as well as can be while enjo...

yorkieme

•4 years ago

10 Replies

Peculiar Sensation

For a couple of days now I have had the sensation of a hair on the end of my nose, but there is nothing there. I looked on the internet and found something...

For a couple of days now I have had the sensation of a hair on the end of my nos...

SheffieldJane

•4 years ago

44 Replies

No show for me also (Bonbows)

Choco Holic Hi, I was wondering the same thing. I haven’t received my daily briefing today (11 August) and can’t start my day till I’ve read it🙁. What’s going...

Choco Holic Hi, I was wondering the same thing. I haven’t received my daily brie...

Bonbows

•4 years ago

2 Replies

~Interesting reading Medical News Today August 10, 2020

For those who enjoy research the above worth a read despite new information for me and some I've read previously. medicalnewstoday.com/articles/312734...

For those who enjoy research the above worth a read despite new information for ...

Megams

•4 years ago

8 Replies

Eye Test

Morning all Just updating that all was fine with my eye test yesterday - need a slightly stronger lens, but nothing unexpected there. Have a lovely Tuesday...

Morning all Just updating that all was fine with my eye test yesterday - need a ...

SanG55

•4 years ago

3 Replies

Different attitude this time around

I went into remission from PMR in Jan 2020 after just 13 months of PMR. I was initially devastated with the diagnosis as I was active and healthy before this....

I went into remission from PMR in Jan 2020 after just 13 months of PMR. I was in...

Rosina1871

•4 years ago

10 Replies

The Meaning of Inner Peace

I thought you may like this to make you feel calm. The Meaning of Inner Peace IF you can always be cheerful, ignoring aches and pains, If you can resist...

I thought you may like this to make you feel calm. The Meaning of Inner Peace IF...

piglette

•4 years ago

23 Replies

NOT PMR> but a laugh for the day.

this is NOT PMR related. But made me laugh out loud. So true about so many! (if directed I'll take it down....

this is NOT PMR related. But made me laugh out loud. So true about so many! (if ...

yogabonnie

•4 years ago

48 Replies

Weight loss

Since covid I've put a stone in weight. Managed over 6 week to loose 9lbs. I'm male 65 plus 5'11 tall and now weigh 14.5lbs. I did weigh 15 stone. I want to...

Since covid I've put a stone in weight. Managed over 6 week to loose 9lbs. I'm m...

Bobbury

•4 years ago

30 Replies

Rheumatologist Appointment

Hi all, I finally have a rheumy appt in two weeks after much persistence from myself and GP. I was diagnosed in April and on Friday learnt that I now have...

Hi all, I finally have a rheumy appt in two weeks after much persistence from my...

SanG55

•4 years ago

14 Replies

Methylprednisolone bolus injections MAY help with COVID19 ..similar idea of suppressing immune system in severe cases but

https://www.jacionline.org/article/S0091-6749(20)30740-5/pdf?fbclid=IwAR3shNAMIAVOuSFhCxR9qCd7JRenDzxbLTDTRjNYTv3xOl7fNBfXeRZZW-4 I just came across this. As...

https://www.jacionline.org/article/S0091-6749(20)30740-5/pdf?fbclid=IwAR3shNAMIA...

Jan_Noack

•4 years ago

3 Replies

Prednisolone dosage timing

Feeling much better 90%+, after nearly a mouth on Pred and planing to reduce dosage by 10% from mid week. I have seen the post about time of taking Pred at...

Feeling much better 90%+, after nearly a mouth on Pred and planing to reduce dos...

Verwood

•4 years ago

4 Replies

Mild Case of PMR?

Can you have a mild case of PMR? I started having problems in October which primarily involved bilateral hip tightness mostly in the early morning upon...

Can you have a mild case of PMR? I started having problems in October which pri...

Migala

•4 years ago

7 Replies

Awful head sweating during hot weather or any exertion

Any advice about profuse head sweating during the hot weather. Any exercise or

Pinkpepper

•4 years ago

27 Replies

Update to still in pain and depressed

I want to thank everyone for your support and so very helpful replies to me, I’m sorry if I worried anyone with my despair about life. Thank you for...

I want to thank everyone for your support and so very helpful replies to me...

Mstiles

•4 years ago

12 Replies

Bit bothered

Possibly having a flare so increased to 10mg from 4.5mg today. Had planned to stay on 10mg for few days or a week. Been reading some latest posts and comments...

Possibly having a flare so increased to 10mg from 4.5mg today. Had planned to st...

SuziCutie

•4 years ago

10 Replies

Things have gone from bad to worse

I’m sorry I haven’t been in touch but I am under the professor at the oxford orthaepedic hospital in oxford even though I have moved to Hampshire now. What is...

I’m sorry I haven’t been in touch but I am under the professor at the oxford ort...

shekinah66

•4 years ago

7 Replies

Swelling blooms!

Can't believe there are more than a dozen blooms suddenly. Must be heat and excess watering.

Can't believe there are more than a dozen blooms suddenly. Must be heat and exc...

diana1998

•4 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

Difficulty in reading posts

Muscle pain again

REMISSION!

Mild PMR, atypical PMR or not PMR at all?

Funny Actemra experience

polymyalgia or rhumatoid arthritis

Taper, to stick for another week or move on?

Pmr or withdrawals

PMR v LORA -Rheumy reccomendation

I wake up with my face bright pink and feeling very warm

Swelling in feet & fingers: caused by coming off Pred or reaction to TCZ? Have had blood work done, nothing there.

Split dosage for residual PMR pains

Methotrexate

Peculiar Sensation

No show for me also (Bonbows)

~Interesting reading Medical News Today August 10, 2020

Eye Test

Different attitude this time around

The Meaning of Inner Peace

NOT PMR> but a laugh for the day.

Weight loss

Rheumatologist Appointment

Methylprednisolone bolus injections MAY help with COVID19 ..similar idea of suppressing immune system in severe cases but

Prednisolone dosage timing

Mild Case of PMR?

Awful head sweating during hot weather or any exertion

Update to still in pain and depressed

Bit bothered

Things have gone from bad to worse

Swelling blooms!

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive