Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2020

34 C and humid.🤨

My body feels as though it weighs 100 kilos (I'm 60 kilos)! We've got this heatwave for at least 12 days and it's only day 4 at the moment .🙃 How do you...

My body feels as though it weighs 100 kilos (I'm 60 kilos)! We've got this heat...

Constance13

•4 years ago

40 Replies

Newly diagnosed PMR seeking advice about taking an evening dose of prednisolone

My name is Janet and I am 67 years old. I have until recently been very fit and active, going to the gym to do various classes such as yoga and dance fit and...

My name is Janet and I am 67 years old. I have until recently been very fit and ...

larkthebark

•4 years ago

4 Replies

Stress

Is it ever alright to add 5mg of Prednisone during a stressful time. I’m at 4.5mg and would go up to 9.5mg for a few days. Feeling very stressed. Things should...

Is it ever alright to add 5mg of Prednisone during a stressful time. I’m at 4.5m...

Blackcatlover

•4 years ago

20 Replies

Want to take advantage of all our features? Just log in!

Elevated Eye Pressure

I recently went to get my eyes checked as I had broken blood vessels and the optometrist wanted to keep an eye on them every two months. Since being on...

I recently went to get my eyes checked as I had broken blood vessels and the opt...

Keeping_healthy

•4 years ago

29 Replies

Prednisolone expiry dates

This gave me reassurance about taking the out of date pred...

maria40

•4 years ago

23 Replies

P mr reducing

hi everyone one love info on reducing pred can't seem too get below 4mg been there 3 times now and had too go back up. Tried doing 1/2mg but still no luck. How...

hi everyone one love info on reducing pred can't seem too get below 4mg been the...

Snnib

•4 years ago

43 Replies

Severe reflux

I am reducing my pred dosage, from 15 in March to 7 now. I have always suffered with reflux for which I have been taking esomeprazole for many years but I’m...

I am reducing my pred dosage, from 15 in March to 7 now. I have always suffered ...

AnniesRyder5

•4 years ago

14 Replies

Boston Eye and Ear appointment, finally

How can I put this politely? After much 'patient involvement' with the rheumatologist and the ophthalmologist, I finally have my appointment with the...

How can I put this politely? After much 'patient involvement' with the rheumat...

Grammy80

•4 years ago

65 Replies

Locum suggesting high dose steroids for my knee problem.

I've toyed with posting here as it's been months since I last posted. I hope you're all managing during these extraordinary times we're living in. We've been...

I've toyed with posting here as it's been months since I last posted. I hope you...

IdasMum

•4 years ago

18 Replies

Have lost sense of taste: taste buds changing. Sense of smell is good

Pre-GCA diagnosis, lost sense of taste and therefore, eating became rather sickening. Shed 25pounds in the process. Is this a side effect of PMR? Currently...

Pre-GCA diagnosis, lost sense of taste and therefore, eating became rather sicke...

jarn

•4 years ago

19 Replies

PMR markers dropped

Have just spoken to GP about my latest blood results , a month after he diagnosed PMR. I am not taking pred but started HRT a month ago in the hope it...

Have just spoken to GP about my latest blood results , a month after he diagno...

Aries789

•4 years ago

18 Replies

Does negative ANA mean maybe not PMR?

Good news! My blood test results came back and while my thyroid is totally out of wack my ANA came back negative. I asked the naturopath what that meant since...

Good news! My blood test results came back and while my thyroid is totally out o...

Dydee

•4 years ago

4 Replies

Low dose pred timing

Hi All. I've just read a pinned post re pred timing. It explained the advantages of taking pred at night. However the last para said this might not be...

Hi All. I've just read a pinned post re pred timing. It explained the advantages...

Jontie

•4 years ago

10 Replies

Before Prednisolone

As I have been now on Prednisolone for the best part of a mouth now and the pain and stiffness has decreased dramatically 90% +, I am beginning to question...

As I have been now on Prednisolone for the best part of a mouth now and the pa...

Verwood

•4 years ago

12 Replies

Back to fitness...

Does anyone have a link to a back to fitness guide for PMR sufferers? I'm building up my walking stamina very nicely and am back on my bike, but am really not...

Does anyone have a link to a back to fitness guide for PMR sufferers? I'm buildi...

artisam

•4 years ago

14 Replies

Got blood work results back today

My naturopath drew blood for my thyroid and ANA test last week. Got the results today and no surprise but thyroid's way out of wack. New prescriptions should...

My naturopath drew blood for my thyroid and ANA test last week. Got the results ...

Dydee

•4 years ago

1 Reply

Rheumatologist Long term prednisone low dose

I did not write down the presentation we were given by a wonderful rheumatologist who advised his clients to stay on 2.5/ 3 mg of prednisone. My excuses, I...

I did not write down the presentation we were given by a wonderful rheumatologis...

Kaaswinkel

•4 years ago

2 Replies

Actemra twist

Just saw my rheumatologist today. I’m having some trouble with the veins on my right arm during my monthly IV treatments of Actemra. I had a left side...

Just saw my rheumatologist today. I’m having some trouble with the veins on my r...

Blackcatlover

•4 years ago

11 Replies

Anyone with PMR progressed to RA?

Hello, Have been dealing with PMR diagnosed at 55 2 years 9 months ago. Over all things going pretty well, in this department, until recently. Tapered...

Hello, Have been dealing with PMR diagnosed at 55 2 years 9 months ago. Over all...

JanetGarrettN

•4 years ago

19 Replies

I've taken the in-house antibody test

Even after 6 years of GCA and daily pred and monthly blood tests. I still find it difficult to have blood take from me. That's what the antibody test required...

Even after 6 years of GCA and daily pred and monthly blood tests. I still find i...

Roy46

•4 years ago

8 Replies

SUPPLEMENTS

Ok I'm on low carb eating and have lost 12lb which I'm very proud of. I was advised to take powdered collagen to guard against loss of hair, Biotin for hair...

Ok I'm on low carb eating and have lost 12lb which I'm very proud of. I was advi...

Singr

•4 years ago

14 Replies

A guide to how the immune system works - in Covid world.

The link to this was posted on the Lupus forum - I thought you might enjoy it:...

The link to this was posted on the Lupus forum - I thought you might enjoy it:.....

PMRpro

Ambassador•4 years ago

41 Replies

Flare ...I believe?

Good Morning All. Just a question please, to you “experts” . I won,t run through my history , I believe you have that anyway.? Pre Covid , i was on my journey...

Good Morning All. Just a question please, to you “experts” . I won,t run through...

Stifffingers

•4 years ago

16 Replies

Six years into PMR. What should my GP be testing me for?

I have had PMR for 6 years and have never successfully got below 10mg per day. I recently tried a DSNS to reduce to 9mg over 2 months and I just couldn't do...

I have had PMR for 6 years and have never successfully got below 10mg per day. I...

scrambledegg

•4 years ago

20 Replies

Looking for rheumatologist leads in the U.S. (especially within 100 miles of zip code 12583)

I realize this is a UK-based forum, but I see there are some folks here who are U.S.-based like myself. I'm looking for leads for good U.S. rheumatologists....

I realize this is a UK-based forum, but I see there are some folks here who are ...

benhemp

•4 years ago

3 Replies

Gasping for air

Does anyone wake up.gasping for.air this happens to me.at.least.5 times.per night I'm on 10 mgs predensione and slowly tapering. TIA

Does anyone wake up.gasping for.air this happens to me.at.least.5 times.per nig...

Maggie69

•4 years ago

27 Replies

All over Rheumatic pain

Question: With PMR would you expect to have rheumatic pain in you fingers wrists elbows in short if it has a joint it’s sore and inflexible, after I take my...

Question: With PMR would you expect to have rheumatic pain in you fingers wrists...

_multistrada

•4 years ago

2 Replies

Correction to my update depressed and in pain

I tried the muscle relaxer that my GP prescribed again and it is helping the stiff neck and pain when looking down. It’s a 5 mg pill of cyclobenzsprine....

I tried the muscle relaxer that my GP prescribed again and it is helping the...

Mstiles

•4 years ago

6 Replies

How to proceed

Sometimes I feel like the fog brings with it learning and processing difficulty. When I looked at the dead slow and stop withdrawal process I was obviously in...

Sometimes I feel like the fog brings with it learning and processing difficulty....

Singr

•4 years ago

17 Replies

DEXA Dilemma update

So, I had my private DEXA scan today and sooo glad I decided to shell out for it. Result is, despite taking supplements, watching my diet and eating all the...

So, I had my private DEXA scan today and sooo glad I decided to shell out for it...

Nerak12

•4 years ago

25 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

34 C and humid.🤨

Newly diagnosed PMR seeking advice about taking an evening dose of prednisolone

Stress

Elevated Eye Pressure

Prednisolone expiry dates

P mr reducing

Severe reflux

Boston Eye and Ear appointment, finally

Locum suggesting high dose steroids for my knee problem.

Have lost sense of taste: taste buds changing. Sense of smell is good

PMR markers dropped

Does negative ANA mean maybe not PMR?

Low dose pred timing

Before Prednisolone

Back to fitness...

Got blood work results back today

Rheumatologist Long term prednisone low dose

Actemra twist

Anyone with PMR progressed to RA?

I've taken the in-house antibody test

SUPPLEMENTS

A guide to how the immune system works - in Covid world.

Flare ...I believe?

Six years into PMR. What should my GP be testing me for?

Looking for rheumatologist leads in the U.S. (especially within 100 miles of zip code 12583)

Gasping for air

All over Rheumatic pain

Correction to my update depressed and in pain

How to proceed

DEXA Dilemma update

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive