Last night was my third Actemra shot. This morning I was in less pain and had a lot more energy than usual. I went out early this morning and washed my car windows. Then I took windex cleaner (that you attach to a garden hose) and cleaned all but 2 of my house windows on the outside. My husband came out and joking said, "I should take another shot of that stuff if it gets me moving like it did this morning." I think he would have liked to try it
Unfortunately it gives me a really horrible headache all night and makes my vision really odd. Luckily I take it before bed so the vision problem doesn't bother be too much.
Make it a Good Day
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Linny3
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Golly Linny3. I am still exhausted - Metformin I think. The headaches would scare me because of GCA. Talk to your Dr. I know it’s a funny story but we have only been using Tocilizumab for GCA for a relatively short period. Well in the U.K. anyway.
I always think about GCA. So sorry you have it! The headache I get from Actemra wakes me a few times and then I can sleep. It is usually gone by morning. I get headaches very easily and have had a pred. headache for years. Just one of the side effects I get.
Sorry, it’s pretty on top for me right now. Consequently I am seeing it everywhere. I am also prone to headaches, at least a cotton wool head most days. My GCA headache was not severe like some people’s. I spoke to my Rheumatologist today, I am on Tocilizumab /Actemra (4 doses so far) GCA diagnosed for about 7 weeks, and down to 10 mgs of Pred. she always asks me about headaches. Of course you know your own body. I could do with an energy burst, like yours.
OH said I was like a car that had been given a new engine! (well he was a mechanic!)...alas a distant memory now....I certainly don`t ever expect that again, just normal energy to lead a relatively normal life........
Every time things get a tiny bit easier, something else crops up......
I agree 100%. My diabetic eye test has come back with some background retinopathy and I’m exhausted and sick from Metformin. I think ( for the first time, ever) I am staying in bed today. My Rheumatologist suggested that some of the fatigue could be because of the psychological blows. It doesn’t feel like that, but it hasn’t helped.
Is there not an alternative to Metformin....I know someone else that was taken off and given something else....I have said all along, as does my sister many years younger than me with RA.......fatigue can be the biggest battle.....😕
I am afraid PMRPro is right. It has been remarkable so far. I still worry about GCA though. I will be off Pred in about 15 weeks at this rate, then it’s just Toc and me flying alone.
I started Actemra just before lockdown and it has given me so much energy that I have been gardening like never before. After 3 months, I was coming in for lunch after a morning's gardening, tripped and fell and fractured my humerus - not at all funny! 7 weeks on, I've just got rid of the sling and have started exercises to try and get my arm back into shape.
I always get a headache for couple days after Actemra,but i have not had the energy you had ☹ mabey next time though i have been on it for 17 months now.xx
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