Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,610 members • 38,757 posts

All posts for August 2020

Should I increase Pred. to 15 mg on my own?

So I finally got my GP to refer me to a Rheumatologist. He also gave me another refill of Pred. 10 mg. Monday I will hear from the girls in the office for...

So I finally got my GP to refer me to a Rheumatologist. He also gave me another ...

Dydee

•4 years ago

13 Replies

Throat clearing

I haven't posted on here for a long time as I've been doing pretty well but I do keep up with other peoples posts. I have gone down from 15mg pred to 5mg in a...

I haven't posted on here for a long time as I've been doing pretty well but I do...

lindtbunnynut

•4 years ago

41 Replies

New meds being added to Pred

The Rheumy has contacted my GP recommending that Sulfasazaline and Hydrocycloroquine be added to my Pred (currently tapering to 7 mg - lowest I have every...

The Rheumy has contacted my GP recommending that Sulfasazaline and Hydrocycloroq...

Theziggy

•4 years ago

9 Replies

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Another Actemra question

Not seeing my Rheumy til September so thought I would ask this question After you finish your year with Actemra does the CRP start To climb again if your GCA...

Not seeing my Rheumy til September so thought I would ask this question After yo...

Darcy2000

•4 years ago

12 Replies

The Salt Room ...

Hi Everyone, thought I would tell you about what has happened to me over the last couple of days. I have been travelling quite well on 6 mgs of pred and...

Hi Everyone, thought I would tell you about what has happened to me over the la...

LemonZest11

•4 years ago

116 Replies

Moonface! Help!

Hi all - a quick and simple question. Moonface! I have become a gerbil with a face like a football after massive flair and going up to 30mg pred (now down to...

Hi all - a quick and simple question. Moonface! I have become a gerbil with a fa...

Loyd

•4 years ago

31 Replies

UNDERSTANDING GP

I love my GP he rang me yesterday for my usual monthly call, I told him I was having trouble reducing below 121/2mg. He's ordered some bloods and told me to do...

I love my GP he rang me yesterday for my usual monthly call, I told him I was ha...

sampete

•4 years ago

10 Replies

I sure took my time!

I learned a real lesson about stoicism. Fit 65 year old male. Routinely undertaking 1000 cal plus cardio workouts. I have struggled recently with stiffness...

I learned a real lesson about stoicism. Fit 65 year old male. Routinely undert...

Hidden

•4 years ago

47 Replies

Genetic connection

Is there a Genetic connection or articles written about the genetic relationship of PMR and more specifically GCA? My mum seemed to suffer a lot with similar...

Is there a Genetic connection or articles written about the genetic relationship...

Darcy2000

•4 years ago

16 Replies

I'm new here, put on pred for PMR/GCA

My GP decided my headaches and body pain needed 40mg of prednisone. Awaiting duplex ultrasound and CT scans. Pain and headaches improved dramatically, but 9...

My GP decided my headaches and body pain needed 40mg of prednisone. Awaiting dup...

RestlessOwl

•4 years ago

11 Replies

How about some good news~!!!

First of all, since deleting some of my medications, my GFR blood test increased from 35 to 42, maybe not celebratory but in the right direction and I'm...

First of all, since deleting some of my medications, my GFR blood test increased...

Grammy80

•4 years ago

41 Replies

20mg to 15mg Pred too quick?

My mum has been told her steroids are to be reduced from the current 20mg to 15 next week. We haven't seen or spoken to the actual Rheumatologist for months...

My mum has been told her steroids are to be reduced from the current 20mg to 15 ...

Jeromekjerome

•4 years ago

17 Replies

Actemra question

Started Actemra 2 weeks ago on a weekly basis for GCA/PMR .My CRP which was hovering between 30 to 40 has dropped to 2.7 ...does this appear normal? I Am on 15...

Started Actemra 2 weeks ago on a weekly basis for GCA/PMR .My CRP which was hove...

Darcy2000

•4 years ago

6 Replies

Does paracetamol offer equivalent relief for Paramylgia Rheumatica as steroids?

I have reduced my steroids to .5 mg from 15mg 2 years ago because of the side effects. I am hoping that paracetamol will give me relief but my symptoms have...

I have reduced my steroids to .5 mg from 15mg 2 years ago because of the side ef...

aquadeus

•4 years ago

8 Replies

pain relief

Hi i am waiting to been diagnosed but wondered if there are any stronger painkillers that you could recommend, that maybe helped i am currently on co-codamol...

Hi i am waiting to been diagnosed but wondered if there are any stronger painkil...

snoopy29

•4 years ago

37 Replies

PMR risk

How much risk is there of getting anything from anyone if someone has PMR and not on any medication? Also if you caught anything would you have a flare up or...

How much risk is there of getting anything from anyone if someone has PMR and no...

Kingstontown1

•4 years ago

8 Replies

Prednisolone or Prednsoine ?

Can you tell me what is the difference between Prednisolone and Prednsoine ? Do they do the same thing or does one have less side effects?

Can you tell me what is the difference between Prednisolone and Prednsoine ? D...

Lacelady

•4 years ago

11 Replies

Carpal Tunnel PMR

Thank you all for your help. Will contact GP and keep pushing to see if I can get an appt with a rheumatologist, which have previously failed to get. Will...

Thank you all for your help. Will contact GP and keep pushing to see if I can g...

Marjorie237

•4 years ago

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Prednisolone & Operation

I normally take my Prednisolone dosage for the day about 9.00 am with a banana and a milky cup of coffee. I am having an operation shortly and cannot eat after...

I normally take my Prednisolone dosage for the day about 9.00 am with a banana a...

Delonghi

•4 years ago

9 Replies

Prednisone vs Methylprednisolone

I went to my rheumatologist today with comp!aunts and she decided to try a different steroid. Anyone familiar with or have experience with Methylprednisolone...

I went to my rheumatologist today with comp!aunts and she decided to try a diffe...

Luciejc

•4 years ago

9 Replies

Medicare coverage question!

Just signed up for Medicare part A & B, little did I realize how complicated Medicare coverage is.. Govt funded, should have given me a clue. Hahaha My...

Just signed up for Medicare part A & B, little did I realize how complicated Med...

Swannrise

•4 years ago

23 Replies

Methotrexate and me...........or not as the case may be!

Really needing a bit of advice here - I have had RA for years and have managed it just fine with a balance of diet and lifestyle. In February this year I...

Really needing a bit of advice here - I have had RA for years and have managed i...

Ladyblue74

•4 years ago

17 Replies

DMARDS

Anyone had any experience of Sulfasalazine or Hydroxychloroquinine??my Rheumy wants me to consider these as am unable to reduce below 5 mg Pred

Anyone had any experience of Sulfasalazine or Hydroxychloroquinine??my Rheumy wa...

bakingD

•4 years ago

28 Replies

Today is my first day without prednisone, let's see?

Diagnosed in November 2018 and started prednisone 20 mg, tried to taper over that time with relapses. My rheumy had me start methotrexate 20 mg, once a week,...

Diagnosed in November 2018 and started prednisone 20 mg, tried to taper over tha...

Musiclady18

•4 years ago

23 Replies

Carpal Tunnel/PMR

Hi have now reached the 2 year mark with PMR. Managed to get down to to 2mg Pred but about 5 weeks ago began to get the most painful wrists bilateral....

Hi have now reached the 2 year mark with PMR. Managed to get down to to 2mg Pred...

Marjorie237

•4 years ago

8 Replies

Revivetic medic

Hi all, does anyone use this machine to help PMR stiffness etc ? Thanks

Gellybabie

•4 years ago

15 Replies

Hand issues - PMR related or not?

I was in to see my #3 rheumy recently. The only 2 issues I had for discussion were extreme fatigue and inflammation of the hands. mainly the right middle...

I was in to see my #3 rheumy recently. The only 2 issues I had for discussion w...

Raven1955

•4 years ago

12 Replies

AA or not?

I recently had a dexa scan and the results show I now have osteoporosis, after having osteopenia for some years. I have had pmrgca for five years and been...

I recently had a dexa scan and the results show I now have osteoporosis, after h...

DDKRM

•4 years ago

8 Replies

tapering on GCA

Hello everyone I've only posted once before and I thought I was doing fine, if slowly! I was diagnosed with GCA (only) at the beginning of January and this...

Hello everyone I've only posted once before and I thought I was doing fine, if s...

Renaissance

•4 years ago

3 Replies

Nightime Pred and Food ?

I'm taking 20mg (enteric gastro resistant) at approx midnight and that time is is working well in terms of remaining almost symptom free. I am just...

I'm taking 20mg (enteric gastro resistant) at approx midnight and that time is ...

Jondoyle

•4 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

Should I increase Pred. to 15 mg on my own?

Throat clearing

New meds being added to Pred

Another Actemra question

The Salt Room ...

Moonface! Help!

UNDERSTANDING GP

I sure took my time!

Genetic connection

I'm new here, put on pred for PMR/GCA

How about some good news~!!!

20mg to 15mg Pred too quick?

Actemra question

Does paracetamol offer equivalent relief for Paramylgia Rheumatica as steroids?

pain relief

PMR risk

Prednisolone or Prednsoine ?

Carpal Tunnel PMR

Prednisolone & Operation

Prednisone vs Methylprednisolone

Medicare coverage question!

Methotrexate and me...........or not as the case may be!

DMARDS

Today is my first day without prednisone, let's see?

Carpal Tunnel/PMR

Revivetic medic

Hand issues - PMR related or not?

AA or not?

tapering on GCA

Nightime Pred and Food ?

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