Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2020

Wanting to get off pred asap

Been on Pred since beginning March 15ml gradually reduced 12.5, 10, to now 9mm , my aches and pains kicked in 2nd week of 10ml stayed on further 2 weeks im in...

Been on Pred since beginning March 15ml gradually reduced 12.5, 10, to now 9mm ,...

Gellybabie

•4 years ago

15 Replies

Sorry

Meant DEPO

Dcctrains

•4 years ago

1 Reply

Fundraising - We Need Your Support

Dear all, Ecclesiastical are offering charities the chance to win a grant of £1,000 with their Movement for Good Awards again. Can you support us with this...

Dear all, Ecclesiastical are offering charities the chance to win a grant of £1,...

Hidden

•4 years ago

7 Replies

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Risk

Am I at risk. I am on 5mg prednisolone and have been for just over 20 years. I have PMR and the consultant provides a DEPOSIT every 3 months This has been...

Am I at risk. I am on 5mg prednisolone and have been for just over 20 years. I...

Dcctrains

•4 years ago

9 Replies

Azathioprine

I started Azathioprine about 5 months ago to help me reduce my Pred dose. I started on 50mg and then up to 100mg daily. At the time I was unable to get below...

I started Azathioprine about 5 months ago to help me reduce my Pred dose. I star...

studiomaster1

•4 years ago

29 Replies

'22 Secrets of People Who Take Prednisone'

Bet you know many, if not all of these.... and MORE! https://themighty.com/2017/06/secrets-people-prednisone-side-effects/

Bet you know many, if not all of these.... and MORE! https://themighty.com/2017...

Hidden

•4 years ago

6 Replies

Advice?

Newly diagnosed with PMR. Had a tapering dose of Prednisone (50mg x3 days, 40mg x 1 week, 30mg x 1 week and now on 20mg until I go back to Rheumatologist for...

Newly diagnosed with PMR. Had a tapering dose of Prednisone (50mg x3 days, 40mg...

DianneRose409

•4 years ago

39 Replies

i have pmr in lower legs does anyone else have this

i have had this for about 12 months

potplants

•4 years ago

5 Replies

Changing time of pred dose ?

Hi I was just wondering if anyone takes pred at night. I have got on much better with it since dose lower , now on 5 mg which I normally take about 5 a.m but...

Hi I was just wondering if anyone takes pred at night. I have got on much better...

Devoid

•4 years ago

7 Replies

Blood test

My last three blood test have flagged up a low igM My Gp has asked my permission to contact Haematology to see if further tests are needed. Has this been a...

My last three blood test have flagged up a low igM My Gp has asked my permissi...

Dozzer

•4 years ago

6 Replies

My long awaited rheumatologist appointment.

On September 13th, 2017 my first doctor said I had PMR and prescribed 20mg prednisone after 30 days because of fatty deposits around my collarbone he told me...

On September 13th, 2017 my first doctor said I had PMR and prescribed 20mg predn...

Lanakay

•4 years ago

41 Replies

BP labile & dizzy spells & arm pain

My bp has been extremely labile for about 3 months. Occasional dizzy spells and even fainted 3 times (always going from lying down to standing). Just got 48 hr...

My bp has been extremely labile for about 3 months. Occasional dizzy spells and ...

Spanky2019

•4 years ago

15 Replies

Ecclesiastical Movement for Good awards

Yesterday I received an email from Ecclesiastical Giving about their 2020 Movement for Good awards. At first I couldn't think why they were contacting me, but...

Yesterday I received an email from Ecclesiastical Giving about their 2020 Moveme...

Marijo1951

•4 years ago

13 Replies

prednisolone taper

Hi all.. Was diagnosed with “atypical GCA” in March 2018... I developed a headache and then double vision due to paralysis of my Cranial nerve (VI). 60mg...

Hi all.. Was diagnosed with “atypical GCA” in March 2018... I developed a headac...

membership

•4 years ago

7 Replies

Exercise Boundaries?

New to PMR, around 3 months in, I feel much better for continual walking and stretching as the day goes on, I want to increase fitness levels through jogging...

New to PMR, around 3 months in, I feel much better for continual walking and str...

Underpars

•4 years ago

20 Replies

White blood cell count elevated in FBC test. Further test required in 4 weeks

Had routine bloods taken yesterday. No general health problems, but on steroids since July 2018, struggling to get below 10mg and a few PMR flares. Bloods:...

Had routine bloods taken yesterday. No general health problems, but on steroids ...

Hidden

•4 years ago

22 Replies

PMR- a plain English description

PMR is an autoimmune disorder that causes your immune system to not be able to recognise your body as "self" so it attacks cells in the blood vessels and...

PMR is an autoimmune disorder that causes your immune system to not be able to r...

ignatz

•4 years ago

14 Replies

Blood type

Has there ever been a study done on the incidence of PMR and blood type_?

yogabonnie

•4 years ago

44 Replies

Covid 19 worries

Hello Everyone, Wanted to give this posting another try now that I am not out the house as much and seemingly just squatting in my own house, LOL. I am now...

Hello Everyone, Wanted to give this posting another try now that I am not out th...

julesster22

•4 years ago

17 Replies

On missing a dose of prednisone

Every once in a while when I go to take my morning dose of prednisone (4 mg) I discover that I didn't take it the previous morning. I then just go ahead with...

Every once in a while when I go to take my morning dose of prednisone (4 mg) I d...

skipspmr

•4 years ago

2 Replies

Survey from Leeds for patients about tapering steroids

https://healthunlocked.com/vasculitis-uk/posts/143351381/please-read-the-leaflet-and-then-do-the-survey?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=noti

https://healthunlocked.com/vasculitis-uk/posts/143351381/please-read-the-leaflet...

PMRpro

Ambassador•4 years ago

56 Replies

What Next

I was diagnosed with PMR last August, put on 15mg Pred. All went well till started to slow taper. Pains back. So put myself back to 15mg. Doctor was not happy...

I was diagnosed with PMR last August, put on 15mg Pred. All went well till start...

Libs66

•4 years ago

10 Replies

Signs of flares and duration of tapering doses

I was diagnosed with GCA in January.I am on 40 mgs of prednisolone daily with accompanying meds omeprazole, low dose aspirin, Adcal, Alendronic Acid, Statins....

I was diagnosed with GCA in January.I am on 40 mgs of prednisolone daily with ac...

Skysey

•4 years ago

14 Replies

Muscle weakness

Hi. I have been taking prednisolone since January last year and am now slowly going down from 3.5mg to 3mg. So far so good. However I have noticed some muscle...

Hi. I have been taking prednisolone since January last year and am now slowly go...

Healthworrier

•4 years ago

19 Replies

Prednisolone and Covid 19

Be interesting to know if anyone who is one Prednisolone has had Covid 19 and how it has affected the outcome.

Be interesting to know if anyone who is one Prednisolone has had Covid 19 and ho...

jaycee444

•4 years ago

52 Replies

New PMR Diagnosis

Hi! I'm new to this site and from what I have read so far it is really informative. I have recently been diagnosed with PMR & I'm fairly young to have this...

Hi! I'm new to this site and from what I have read so far it is really informati...

AMDRunning

•4 years ago

11 Replies

Sob

Severe sob especially with exertion low o2 says. Is it gca what are the dynamics of this

Severe sob especially with exertion low o2 says. Is it gca what are the dynamics...

sara44

•4 years ago

12 Replies

Tapering

I am on 11mg prednisone Should I go to 10.5 for my taper or 10 ?

MRSKI

•4 years ago

7 Replies

Fuzzy brain

I am fairly well with my mostly GCA and sometimes moderate PMR and so very grateful for all of you over the years. Currently, I am trying to reduce from 3 mg...

I am fairly well with my mostly GCA and sometimes moderate PMR and so very grate...

Asbeck

•4 years ago

31 Replies

Best time to take prednisone?

What time of day is best to take pred?...I am on 5 - 5 1/2 a day taking 4 1/2 - 5 in AM and 1 or 1/2 late in evening. I wake up with several body aches and...

What time of day is best to take pred?...I am on 5 - 5 1/2 a day taking 4 1/2 - ...

izzyart

•4 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2020

Wanting to get off pred asap

Sorry

Fundraising - We Need Your Support

Risk

Azathioprine

'22 Secrets of People Who Take Prednisone'

Advice?

i have pmr in lower legs does anyone else have this

Changing time of pred dose ?

Blood test

My long awaited rheumatologist appointment.

BP labile & dizzy spells & arm pain

Ecclesiastical Movement for Good awards

prednisolone taper

Exercise Boundaries?

White blood cell count elevated in FBC test. Further test required in 4 weeks

PMR- a plain English description

Blood type

Covid 19 worries

On missing a dose of prednisone

Survey from Leeds for patients about tapering steroids

What Next

Signs of flares and duration of tapering doses

Muscle weakness

Prednisolone and Covid 19

New PMR Diagnosis

Sob

Tapering

Fuzzy brain

Best time to take prednisone?

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