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[yorkieme]

Just checking in to let everyone know that I am keeping up to speed with this valuable source of information and advice,in particular with those who have recently joined and who are going through a similar pattern to me.Thank you to everyone.

My own situation continues to cause me a great deal of confusion,a GP who I initially had great confidence in,a Rheumatologist who doesn't want to listen,and of course the enormous pressure on everyone within the NHS at this present time.

I received a letter a few days ago after my appointment with the Rheumatologist in which she lists a number of issues,one being that she believes I shouldn't have been put on steroids and that they may have caused me some damage ?

So they start the loop again,more blood tests etc,etc, but no definitive conclusion as to what I have/don't have.Fingers crossed things progress,I find the uncertainty a bit difficult.

Good luck to all of you,I wish you as much pain free time as possible.

[Hidden]

I hope it gets sorted asap!🌻

[yorkieme in reply to Hidden]

Thank you.You people are teaching me to be patient so that helps.

[PMRpro Ambassador]

Did she detail what damage????

[yorkieme in reply to PMRpro]

My apologies to the Rheumatologist,I should know how important accurate wording can be/is; I have advised him to reduce down to 25mg a day as I am concerned that he has now been harmed by the high dose steroids. Exact words.

Initially my G.P. put me on 15mg on the basis of PMR,he then increased this to 60mg day after reading my medical record and seeing that I had my eyes looked at with regard to floaters early December,this allowed him to believe possible GCA. I am now on 25mg day but with pain in my shoulders,wrists,hands.(when I first presented it was in my shoulders,across the back of my neck,arms,buttocks,upper thighs,) The pain only changes in severity throughout each day but that is managed by my G.P. prescribing Codeine every four/five hours. My CRP is 61 ESR 58 as of 11th May.

[PMRpro Ambassador in reply to yorkieme]

If codeine is helping the pain it certainly is a contributing factor to disbelieving PMR - but just be careful you don't get constipated with it because that can be very painful too!