Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for May 2020

Skin Problem

Anyone else out there experience this. I have two very very tiny areas on my face of what appears to be thin skin, it will heal over and look better for...

Anyone else out there experience this. I have two very very tiny areas on my fa...

remission

•4 years ago

5 Replies

Balance problems

I was diagnosed with PMR three years ago and prescribed 40mg Prednisolone because there was a possibility that I had GCA - thankfully I didn’t - and have...

I was diagnosed with PMR three years ago and prescribed 40mg Prednisolone becaus...

Janann25

•4 years ago

33 Replies

Aching

Have reduced down to 3mg from 25mg over year and a half. Just had one set back. My ESR and CRP are excellent. Why do I ache so badly when I go from sitting to...

Have reduced down to 3mg from 25mg over year and a half. Just had one set back. ...

Robinsnest72

•4 years ago

24 Replies

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Flare up

Down to 3mg of prednisalone, having a flare up so have gone back up to 4. I am reading that some people are going up by 5mg. If you are doing this then when...

Down to 3mg of prednisalone, having a flare up so have gone back up to 4. I am r...

Hollieby

•4 years ago

4 Replies

Pred side affects

Please tell me if anyone else is suffering terrible mood swings and feeling irritable. On and off I've been feeling like this for a few weeks and tried so...

Please tell me if anyone else is suffering terrible mood swings and feeling irri...

Hidden

•4 years ago

50 Replies

Injuries in the garden use caution to remove plasters/dressings!

Someone posted a great post and recommended arm protection the other day - I bought the arm protection but hadn't opened it yet! I managed to carve a chunk...

Someone posted a great post and recommended arm protection the other day - I bou...

Pippah45

•4 years ago

27 Replies

Pain in the Neck

I have a painful throat, not a sore throat, it’s more the sort of pain I had before my diagnosis of GCA was made and Steroids started, I asked my GP if I...

I have a painful throat, not a sore throat, it’s more the sort of pain I had be...

Jane-s

•4 years ago

12 Replies

Flare Up

Does anyone know the magic number one needs to increase the prednisone by when you experience a flare up...I was down to 5 mg and doing the drop dead slow...

Does anyone know the magic number one needs to increase the prednisone by when ...

remission

•4 years ago

11 Replies

Prednisone taper and fever

I have been on prednisone for 10 years. After doses of 60 40 30 20 15 10 milligrams, I am finally down to where the prednisone does less harm. I never...

I have been on prednisone for 10 years. After doses of 60 40 30 20 15 10 mill...

phebamom

•4 years ago

16 Replies

GCA

Is there a cure for GCA

Lilymaerose

•4 years ago

6 Replies

Side effects from flu injection and On Prednisolone

Hi I was on 90mg Pred in January for PMR and Temporal Arteritis.Now down to 32mg. I was very sick and in hospital but they just wanted to reduce me fast.I...

Hi I was on 90mg Pred in January for PMR and Temporal Arteritis.Now down to 32mg...

Raewynne

•4 years ago

13 Replies

Metformin for weight

Has anyone been given the drug Metformin to help the Cushing syndrome when on steroids? I know that at the moment it is trivial when life is as it is but I am...

Has anyone been given the drug Metformin to help the Cushing syndrome when on st...

Bubble56

•4 years ago

35 Replies

PMR diagnosis

After being diagnosed with PMR and not GCA, my pred was dropped from 40mg to 15mg. When on 40mg my severe symptoms disappeared. Now I’m back down to 15mg my...

After being diagnosed with PMR and not GCA, my pred was dropped from 40mg to 15m...

jessiem

•4 years ago

19 Replies

Flare

Hi hope you are all keeping safe?😊 I am posting an update from 2 weeks ago when I wrote I am jogging, All was going very well, until I did a hour weeding in...

Hi hope you are all keeping safe?😊 I am posting an update from 2 weeks ago whe...

carolBF

•4 years ago

5 Replies

The Actemra journey ...

Hello Everyone, It’s been several weeks since I was on here seeking advice about the PET scan and its efficacy in regard to GCA diagnosis. Because my CRP was...

Hello Everyone, It’s been several weeks since I was on here seeking advice about...

LemonZest11

•4 years ago

11 Replies

Here is an update on the Rock Garden....

...honoring PMRGCAuk among others...still a work in progress. xoxo all of you! Now I've been asked to turn a rock into a bluebird or chickadee???? I'll...

...honoring PMRGCAuk among others...still a work in progress. xoxo all of you! ...

Grammy80

•4 years ago

6 Replies

Very dry scaly skin

Hi, I recently came of pred (2nd time round) and am feeling pretty fit but the skin on my body, legs and arms is very, very dry and I wonder whether anybody...

Hi, I recently came of pred (2nd time round) and am feeling pretty fit but the s...

Urtica

•4 years ago

32 Replies

Pain caused?? By bra strip

Hi dear all! Me; three years PMR, one major flare, now again on three mg prednisone, slowly getting better, mostly.. Since quite a long time I have had a lot...

Hi dear all! Me; three years PMR, one major flare, now again on three mg prednis...

Kaaswinkel72

•4 years ago

42 Replies

Fatigue exhaustion sob

The prednisone has taken care of my flare up I am symptom free but the exhaustion fatigue and sob are still horrible does this ever resolve I thought if the...

The prednisone has taken care of my flare up I am symptom free but the exhaustio...

sara44

•4 years ago

12 Replies

New patient.

Hello everyone. I am Alison and have been waiting to be diagnosed as having Polymyalgia for three months. Today the blood tests were more positive for it than...

Hello everyone. I am Alison and have been waiting to be diagnosed as having Poly...

Francesbarbara

•4 years ago

21 Replies

Going back on prednisone

I was on prednisone for 3 years. I tapered of and went on ibuprofen . In that 3 years got rareskin cancer that oncologist said could have been because of my...

I was on prednisone for 3 years. I tapered of and went on ibuprofen . In that 3 ...

England05

•4 years ago

13 Replies

Fibromyalgia

Just some advice from anyone that may know. A friend of mine was diagnosed with Fibro years ago. However, she is in so much pain and taking so many...

Just some advice from anyone that may know. A friend of mine was diagnosed with...

Hidden

•4 years ago

23 Replies

I have PMR and may have had Covid 19 recently.

I want to share this as it may alleviate some fears. Im not 100% sure but either I had the worse cold ever or Covid. I have been in isolation for the past 9...

I want to share this as it may alleviate some fears. Im not 100% sure but either...

Paperroses

•4 years ago

20 Replies

Taking Red Reishi Supplements

red reishi supplements. I have 2 friends with cancer who have been helped by taking red reishi to boost their immune system. does anyone know if this would be...

red reishi supplements. I have 2 friends with cancer who have been helped by tak...

briantucker

•4 years ago

3 Replies

Are there people with PMR who choose not to take pred?

When I first learned about prednisone, I was abstracted by the choice before me: take pred with all it's side effects or live with this debilitating disease....

When I first learned about prednisone, I was abstracted by the choice before me:...

LIVEORDIEHEREIAM

•4 years ago

78 Replies

Ibuprofen with Prednisolone?

Evening. I seem to remember reading on here that some members mentioned that they sometimes take a one off, larger than normal dose of brufen with a meal to...

Evening. I seem to remember reading on here that some members mentioned that the...

Phoenix51

•4 years ago

10 Replies

Sign up to the COVIDENCE UK Study and contribute to the fight against coronavirus. - Another chance to help

A team of doctors, scientists, public health specialists and health economists from six universities – Queen Mary University & Kings College, London, The...

A team of doctors, scientists, public health specialists and health economists f...

PMRpro

Ambassador•4 years ago

15 Replies

Calcium / Vitamin D supplements

Regarding Calcium / Vitamin D supplements do I still need to take the supplement when on very low doses of pred (below 2 mg ) I am presently taking 1 tablet of...

Regarding Calcium / Vitamin D supplements do I still need to take the supplement...

JOHNONE28

•4 years ago

8 Replies

Is this my PMR or am I now suffering from arthritis

I have been on Pred for just over three years and with some difficulty got down to 5 mg .All was going quite well for several months though i was not entirely...

I have been on Pred for just over three years and with some difficulty got down ...

Tiny_Tim

•4 years ago

39 Replies

GCA flair

I joined this ago ages ago and have been so appreciative of reading relevant stuff and the help and information I have gleaned since my diagnosis of PMR in...

I joined this ago ages ago and have been so appreciative of reading relevant stu...

Washbrook

•4 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2020

Skin Problem

Balance problems

Aching

Flare up

Pred side affects

Injuries in the garden use caution to remove plasters/dressings!

Pain in the Neck

Flare Up

Prednisone taper and fever

GCA

Side effects from flu injection and On Prednisolone

Metformin for weight

PMR diagnosis

Flare

The Actemra journey ...

Here is an update on the Rock Garden....

Very dry scaly skin

Pain caused?? By bra strip

Fatigue exhaustion sob

New patient.

Going back on prednisone

Fibromyalgia

I have PMR and may have had Covid 19 recently.

Taking Red Reishi Supplements

Are there people with PMR who choose not to take pred?

Ibuprofen with Prednisolone?

Sign up to the COVIDENCE UK Study and contribute to the fight against coronavirus. - Another chance to help

Calcium / Vitamin D supplements

Is this my PMR or am I now suffering from arthritis

GCA flair

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