Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2020

Methotrexate or Sulfasalazine, the lesser of two evils?

I recently posted about a flare of hand pain on reducing from 4mg to 3 over Christmas; I wanted to add this development to that post but couldn't find it so if...

I recently posted about a flare of hand pain on reducing from 4mg to 3 over Chri...

karenfizz

•4 years ago

21 Replies

Liver

Anyone have decreased liver function on prednisone. What do you do ? Is there alternate drug that doesn’t cause this? So many questions from me.

Anyone have decreased liver function on prednisone. What do you do ? Is there al...

Libertylane

•4 years ago

7 Replies

I probably have PMR

Hello, I've just seen the GP who thinks I probably have PMR. Dr Google had already suggested this when I looked up my symptoms of very painful neck, arms,...

Hello, I've just seen the GP who thinks I probably have PMR. Dr Google had alre...

Melti

•4 years ago

10 Replies

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lock a post

It has been recommend that we lock our posts. How do I do that?

Linny3

•4 years ago

16 Replies

Is it a flare or ???? weather??

I am currently down to 3 mg of prednisone and was feeling great! Up until a week ago, back to school, a 3 day school week............when I wake up my ankles...

I am currently down to 3 mg of prednisone and was feeling great! Up until a wee...

Musiclady18

•4 years ago

6 Replies

Hello Fran

Welcome, and thank you.

Dontwannabesick

•4 years ago

Be the first to reply

Be Careful!

I am writing to say that those skin tears so many of us get...from the thin skin from prednisone and whatever inattentiveness, faulty balance, toddler kick, or...

I am writing to say that those skin tears so many of us get...from the thin skin...

yogabonnie

•4 years ago

24 Replies

Can I drop AdCal as long as I'm taking high dose Vitamin D?

I saw my GP this morning and my markers indicate that my GCA flare is over - I certainly feel much better. Because I had kidney stones at the same time as...

I saw my GP this morning and my markers indicate that my GCA flare is over - I ...

maria40

•4 years ago

24 Replies

Hello from an admin

Hi everyone, I joined recently as one of the admins of the site. I work for PMRGCAuk and firstly wanted to say hello and to wish you all a happy new year. This...

Hi everyone, I joined recently as one of the admins of the site. I work for PMRG...

Fran_Benson

Partner•4 years ago

Shingles vaccine and blood tests

Thanks all for your replies on the vaccine and blood tests. I will ask if vaccine is live when time comes (3 years yet) and see if I can register to see blood...

Thanks all for your replies on the vaccine and blood tests. I will ask if vacci...

Daffodilia

•4 years ago

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Blood tests

I only had one blood test for PMR at the start - gp seems to say no point in checking when on pred as will be ok as I feel ok - why do so many people on forum...

I only had one blood test for PMR at the start - gp seems to say no point in che...

Daffodilia

•4 years ago

16 Replies

Shingles vaccination

Should I have this if I have had or have PMR please?

Daffodilia

•4 years ago

2 Replies

Trying to come to terms with PMR.

Hi I am a 62 year old female diagnosed with PMR end of November 2019, so very early days for me. Still trying to come to terms with the diagnosis. Not a lot of...

Hi I am a 62 year old female diagnosed with PMR end of November 2019, so very ea...

Rebel21

•4 years ago

10 Replies

Cholesterol levels and PMR/GCA

Can PMR/GCA raise cholesterol levels?

Mstiles

•4 years ago

13 Replies

Blood sugar

Just checked blood sugar two hours after eating. I have really been careful about sugar etc and it was 164. Not eating much and have lost weight what else can...

Just checked blood sugar two hours after eating. I have really been careful abou...

Libertylane

•4 years ago

6 Replies

A peek......

...part of me....they work~!

Grammy80

•4 years ago

3 Replies

'Twas a good day~!!! A new way to see and read~!

Today I went to a low vision specialist~!!! The Iris Foundation had recommended it (I think that is the Iris Fund in the UK) She is an opthamologist who...

Today I went to a low vision specialist~!!! The Iris Foundation had recommended...

Grammy80

•4 years ago

8 Replies

Life after AFib

Just checking in after my initial post about afib. Visiting my son and his family. Giovanni is a camera ham but happy to sit with me in my chair. I’ve had...

Just checking in after my initial post about afib. Visiting my son and his fami...

Nitrobunny

•4 years ago

6 Replies

What is related to PMR and GCA and what isn’t?

Hi fellow impatient patients and hello to those of us who have learned to become more Zen about this illness. I have been lucky enough to get down to 3 mg...

Hi fellow impatient patients and hello to those of us who have learned to become...

doubtfully

•4 years ago

11 Replies

Ear and throat pain

Did anyone have ear and throat pain with GAC on and off ?

Libertylane

•4 years ago

24 Replies

Alternative ways to cope with PMR

Hello, This is my first introductory post . I’m not happy to be a PMR sufferer but glad I’ve joined this community. I hope to get some sense of the journeys...

Hello, This is my first introductory post . I’m not happy to be a PMR sufferer b...

Bennijax

•4 years ago

5 Replies

Got my bloodwork back.and my crp is still 7 after taking prednisone for 8 months.Does any one else have difficulty getting that dow?

I was sick with a bronchial cold last month.Would that affect the crp?

Hunter134

•4 years ago

7 Replies

It's back

Bit confused, cannot update my profile, I input the details, click continue and when I log on again the updates have not been added. s The above is not the...

Bit confused, cannot update my profile, I input the details, click continue and ...

Mischevious

•4 years ago

6 Replies

Synacthen Test

I’m due to have a Synacthen test next week and have to switch from Steroids to Hydrocortisone from tomorrow for 5 days. Can anyone who has had this test tell...

I’m due to have a Synacthen test next week and have to switch from Steroids to H...

Orpheus82

•4 years ago

27 Replies

Jaw pain with GCA

Can someone explain what the "jaw" problems are like when one suspects GCA. I thought I had TMJ problems but they are not getting better. Don't know whether...

Can someone explain what the "jaw" problems are like when one suspects GCA. I t...

Robinre

•4 years ago

7 Replies

What happens when its gone?

66 yrs old, male, PMR since May 2018, 6.5mg Pred, no symptoms except fatigue in the afternoon. Theoretically, if the PMR has gone into remission or just plain...

66 yrs old, male, PMR since May 2018, 6.5mg Pred, no symptoms except fatigue in ...

rick518

•4 years ago

6 Replies

My previous post!

I certainly did not mean to offend with my previous question . It was an honest enquiry and not at all intended to be “rude” I think I will withdraw from the...

I certainly did not mean to offend with my previous question . It was an honest ...

SurreyFlower

•4 years ago

38 Replies

Daft question???

Can I please ask, does anyone else get a pounding in their head when they put their head down? As soon as my head goes on the pillow it starts, it’s so strong...

Can I please ask, does anyone else get a pounding in their head when they put th...

Dee02

•4 years ago

12 Replies

Twitching

Has anyone had muscle twitching from prednisone.? Is it serious?

Libertylane

•4 years ago

9 Replies

Flexible cystoscopy

Has anyone on here had this procedure

Fifelassieo

•4 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

Methotrexate or Sulfasalazine, the lesser of two evils?

Liver

I probably have PMR

lock a post

Is it a flare or ???? weather??

Hello Fran

Be Careful!

Can I drop AdCal as long as I'm taking high dose Vitamin D?

Hello from an admin

Shingles vaccine and blood tests

Blood tests

Shingles vaccination

Trying to come to terms with PMR.

Cholesterol levels and PMR/GCA

Blood sugar

A peek......

'Twas a good day~!!! A new way to see and read~!

Life after AFib

What is related to PMR and GCA and what isn’t?

Ear and throat pain

Alternative ways to cope with PMR

Got my bloodwork back.and my crp is still 7 after taking prednisone for 8 months.Does any one else have difficulty getting that dow?

It's back

Synacthen Test

Jaw pain with GCA

What happens when its gone?

My previous post!

Daft question???

Twitching

Flexible cystoscopy

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