Alternative ways to cope with PMR

[Bennijax]

Hello,

This is my first introductory post . I’m not happy to be a PMR sufferer but glad I’ve joined this community. I hope to get some sense of the journeys being taken by those of you who share your experiences.

[DorsetLady PMRGCAuk volunteer]

Hi, and welcome,

Nobody’s happy to have PMR, but there are many illnesses that are a lot worse.

Have a look at this - and then come back with any specific questions you may have at any time. Although this forum is UK based, there are plenty of patients from other parts of the globe, so there’s always someone awake! Somewhere!

healthunlocked.com/pmrgcauk...

[PMRpro Ambassador]

PMR is managed with low doses of pred - that is the correct and only way to manage it at present.

[SheffieldJane]

Hello and welcome to the forum Bennijax. Like most shocks, take it a day at a time, building your knowledge base as you go. People are at different stages on here and there is always someone to answer your specific questions. Of all the autoimmune diseases out there, I am relieved that I got PMR and that there is a relatively manageable drug for it. (Prednisalone).

[Bennijax in reply to SheffieldJane]

Thanks

[Daffodilia]

Welcome - this forum is v helpful and the website and Kate Gilbert’s book. I started on 40 mg pred in Oct 18 and now on 5.5 mg - some ups and downs along the way - good luck