Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for December 2019

So much better .

Thank you all for relying to my first post , the theme of advice was that my starting dose of prednisolone at 15mg for a 14st male was probably too low as I...

Thank you all for relying to my first post , the theme of advice was that my sta...

jura19

•5 years ago

5 Replies

relapse PMR

Hi everyone, can anyone advise please I have been on 15ms Prednisolone for one month Doctor advised cutting down to 13mgs which I have done. Now on day 3 and...

Hi everyone, can anyone advise please I have been on 15ms Prednisolone for one m...

Hidden

•5 years ago

8 Replies

Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)

Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA,...

Thought this was an interesting article... wouldn't it be great if ultrasounds ...

Hidden

•5 years ago

24 Replies

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New Patient week 2

Hello I've made it to week 2. Had ups and downs this week but have taken on all the advice given on this site. I now do all I need to do at a gentle pace in...

Hello I've made it to week 2. Had ups and downs this week but have taken on all ...

holty

•5 years ago

24 Replies

Aunty Bees PMR, GCA, and Chronic Pain Sufferers Advent Calendar . Dec 11. Festive Pacing in Action . Who is the Snowman?

Are you , like Me, feeling like this fed up and weary Olaf today ? After yesterday's flame grilled events the only fire left Flaring is in my joints so todays...

Are you , like Me, feeling like this fed up and weary Olaf today ? After yester...

Blearyeyed

•5 years ago

64 Replies

Now I understand my Rhumie

Hi I have just received the report from my Rhumie after my last visit about a month ago. She was not happy that I was reducing so slowly, I explained that I...

Hi I have just received the report from my Rhumie after my last visit about a mo...

sailorman

•5 years ago

11 Replies

Rapid taper before adrenals shut down

I also subscribe to a pmr forum on Facebook. The following was on the site yesterday. The poster has recently been diagnosed and wants to taper to as low as...

I also subscribe to a pmr forum on Facebook. The following was on the site yeste...

Reader7

•5 years ago

14 Replies

Best Ever News

I just got the results of my latest blood tests. When I was diagnosed with GCA my CRP level was 156. Today it is 6. I`m absolutely over the moon and wanted...

I just got the results of my latest blood tests. When I was diagnosed with GCA ...

Jampad

•5 years ago

10 Replies

Any hints to make life a bit more manageable?

I'm a relative newbie to PMR. Yes, I'm reducing my pred dosage...yes I ache a bit when I go down, but I'm now hurting a lot in my neck and one shoulder two...

I'm a relative newbie to PMR. Yes, I'm reducing my pred dosage...yes I ache a b...

Fergyfish

•5 years ago

12 Replies

GP appointments.

Just a post about GP services. I see a number of posts here about access to GPs. Our surgery changed a year or so ago to a different system. I can only comment...

Just a post about GP services. I see a number of posts here about access to GPs....

Daisyfield

•5 years ago

14 Replies

The Holy Grail

Well after three years with PMR I finally managed to taper down , on the Preds to zero . Great I thought that's me back ! What the Doctors , and healthcare...

Well after three years with PMR I finally managed to taper down , on the Preds ...

66Mac

•5 years ago

26 Replies

Bad knees. Update

After seeing my sports doctor today, we decided I should do physio. Not have a cortisone shot.

After seeing my sports doctor today, we decided I should do physio. Not have a ...

alvertta

•5 years ago

6 Replies

Aunty Bees Advent Calendar, Dec 10. IMPORTANT FIRE SAFETY INFO and Help for you to stay Fire Safe with Illness that you may not know.

You know you have got a Chronic Health Issue when your next door neighbours house goes on fire , you live in a Semi Detached and you still wonder whether you...

You know you have got a Chronic Health Issue when your next door neighbours hous...

Blearyeyed

•5 years ago

78 Replies

Painful hip

Does anyone else experience a painful hip? Could this be due to steroids? Now down to 17.5 mgms Or Pilates? Or PMR Or being in my 70’s It’s not severe all the...

Does anyone else experience a painful hip? Could this be due to steroids? Now do...

Jane-s

•5 years ago

20 Replies

Chills

Is there anyone else who has the following: feeling cold, when others are wearing short sleeves, I have to wear long sleeved shirt. Especially a coldness on...

Is there anyone else who has the following: feeling cold, when others are wearin...

Noosat

•5 years ago

18 Replies

Anxiety from taper?

I'm slowly coming down from methyl prednisolone and am doing fine pain wise but when I just went from 6 mg (1.5 tabs) to 4 mg ( methyl is not available in...

I'm slowly coming down from methyl prednisolone and am doing fine pain wise but ...

crochetlover

•5 years ago

13 Replies

Bad knees

Has anyone had cortisone shots in Their knees while on prednisone? I am currently on 18mg . GCA. Started at 60 in October 2018. Due for knee replacement in...

Has anyone had cortisone shots in Their knees while on prednisone? I am current...

alvertta

•5 years ago

21 Replies

Sensitive feet.

I am not sure if this is related to PMR but over the past few years my feet have become quite sensitive to the slightest pressure from socks. I can manage...

I am not sure if this is related to PMR but over the past few years my feet have...

IdasMum

•5 years ago

14 Replies

Aunty Bees Advent Calendar. Dec 9. The one thing 'NOT' to cross off your Christmas 'To Do' List , those Medical Appointments.

Before I get a bit Mumsy on today's Post , I thought I might indulge in my first Christmas Cracker joke. Groans abound . Hard Luck , here it comes .... How do...

Before I get a bit Mumsy on today's Post , I thought I might indulge in my first...

Blearyeyed

•5 years ago

70 Replies

Organ Donor?

Does anyone know if you can qualify to be an organ donor while on pred for GCA, or if you can be a donor after/during remission.

Does anyone know if you can qualify to be an organ donor while on pred for GCA, ...

pugrescue

•5 years ago

13 Replies

Hi , well hello to you all , ive just found myself here .

I DIDNT KNOW YOU ALL EXISTED AND I DIDNT KNOW ANYTHING ABOUT PMR ! ITS QUITE A SHOCK AND A QUICK LEARNING CURVE , IT SEEMS LIKE THIS IS GOING TO BE AN...

I DIDNT KNOW YOU ALL EXISTED AND I DIDNT KNOW ANYTHING ABOUT PMR ! ITS QUITE A S...

jura19

•5 years ago

21 Replies

Uncertainty.

I have what I think is a GCA flare but it is different from what I have experienced previously. I spoke to my GP on the phone - no appointments left today...

I have what I think is a GCA flare but it is different from what I have experie...

maria40

•5 years ago

16 Replies

Tooth extraction update

I saw my dentist today, who I trust totally. After much deliberation it was decided the tooth with the crown had to come out 😫 it took 4 attempts of...

I saw my dentist today, who I trust totally. After much deliberation it was deci...

Iloveholidays

•5 years ago

15 Replies

Accrete D3

Is it ok to cut Accrete D3 tablets in half? I’m thinking 2 tablets a day is too much calcium and 1 isn’t enough so I thought I’d try 1.5 but I’m not sure...

Is it ok to cut Accrete D3 tablets in half? I’m thinking 2 tablets a day is too ...

Suzan62

•5 years ago

17 Replies

Is it PMR related?

I’ve been reducing from 8mg to 7.5 of Prednisolone for three weeks, one of each every other day. A few days ago I noticed my right shoulder was a little achey,...

I’ve been reducing from 8mg to 7.5 of Prednisolone for three weeks, one of each ...

braininjurythepits

•5 years ago

5 Replies

PMR

I have found this site to be invaluable and very informative. I am aged 77 years and diagnosed with PMR in November 2019. I also have osteoporosis and long...

I have found this site to be invaluable and very informative. I am aged 77 years...

Hidden

•5 years ago

1 Reply

My most exhausting day is -

the day I have to shower. I hate it! HOW I miss my bath. Today I've made a mistake - I showered in the morning - now I'm knackered for the rest of the day!!...

the day I have to shower. I hate it! HOW I miss my bath. Today I've made a mi...

Constance13

•5 years ago

31 Replies

PMR

Have fund this site invaluable and so informative thank you. Recently diagnosed with PMR and osteoporosis. Long term osteoarthritis. Have been prescribed...

Have fund this site invaluable and so informative thank you. Recently diagnosed ...

Hidden

•5 years ago

10 Replies

Reducing Symptoms

It is 12:45am here in Canada. Went to bed at 3pm not knowing what was going on. I am reducing from6mg to 5&1/2 on the slow method with no issues. I became so...

It is 12:45am here in Canada. Went to bed at 3pm not knowing what was going on. ...

Robinsnest72

•5 years ago

23 Replies

PMR and Phlebitis Anyone?

HI All, I have had PMR since 2011 but was not diagnosed until 2012. I am one of those who do not show raised blood markers, but had a 'miraculous' recovery on...

HI All, I have had PMR since 2011 but was not diagnosed until 2012. I am one of ...

rockyandzeus

•5 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2019

So much better .

relapse PMR

Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)

New Patient week 2

Aunty Bees PMR, GCA, and Chronic Pain Sufferers Advent Calendar . Dec 11. Festive Pacing in Action . Who is the Snowman?

Now I understand my Rhumie

Rapid taper before adrenals shut down

Best Ever News

Any hints to make life a bit more manageable?

GP appointments.

The Holy Grail

Bad knees. Update

Aunty Bees Advent Calendar, Dec 10. IMPORTANT FIRE SAFETY INFO and Help for you to stay Fire Safe with Illness that you may not know.

Painful hip

Chills

Anxiety from taper?

Bad knees

Sensitive feet.

Aunty Bees Advent Calendar. Dec 9. The one thing 'NOT' to cross off your Christmas 'To Do' List , those Medical Appointments.

Organ Donor?

Hi , well hello to you all , ive just found myself here .

Uncertainty.

Tooth extraction update

Accrete D3

Is it PMR related?

PMR

My most exhausting day is -

PMR

Reducing Symptoms

PMR and Phlebitis Anyone?

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