My most exhausting day is -: the day I have to... - PMRGCAuk

PMRGCAuk

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My most exhausting day is -

Constance13 profile image
β€’31 Replies

the day I have to shower. I hate it! HOW I miss my bath. Today I've made a mistake - I showered in the morning - now I'm knackered for the rest of the day!!

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Constance13 profile image
Constance13
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31 Replies
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SheffieldJane profile image
SheffieldJane

Having a shower is soo tiring, I agree.

powerwalk profile image
powerwalk

I tend to have my shower in the evening, I did it in the morning recently, seemed to take me forever and I felt I'd used up half the day!!! Ridiculous! Mind you, I always loved my bath at weekend, my favourite time, now that even has no joy, its work. Not sure what that's all about!!!

β€’ in reply topowerwalk

I keep saying l’ll take my shower in the evening, then l’m too tired so back to the morning 🚿

Constance13 profile image
Constance13β€’ in reply to

That's why I had a shower this morning - too tired the last three evenings.πŸ˜‚πŸ˜‚

linda49 profile image
linda49

I share that exhausted feeling too Constance. I try to reduce the effort as much as possible by using an adjustable stool in the shower and then wearing a dressing gown afterwards instead of using a towel to get dried. It helps!

Constance13 profile image
Constance13β€’ in reply tolinda49

Got the t- shirt!!πŸ˜‚πŸ˜‚

piglette profile image
piglette

I love a shower as it seems to massage my aching shoulders.

It's now only hard work the water spray hurts my shoulders. Ouchy.

Constance13 profile image
Constance13β€’ in reply to

I wonder how long it would be before people stopped sitting next to me.πŸ˜‚πŸ˜‚

β€’ in reply toConstance13

I often think that as my friend gets in the car.

Constance13 profile image
Constance13β€’ in reply to

Oh dear!πŸ˜‚

β€’ in reply toConstance13

My family are on strict orders to tell me when I am smelly. πŸ‘ƒ

Blearyeyed profile image
Blearyeyedβ€’ in reply to

At least we have a reason to smell if we do .

My Family make some terrible whiffs especially if they eat Sprouts or take their shoes off and there is no excuse for that πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚

Constance13 profile image
Constance13β€’ in reply toBlearyeyed

No excuse for eating sprouts or taking their shoes off if you are near??

Blearyeyed profile image
Blearyeyedβ€’ in reply toConstance13

They shouldn't be within a hundred yards of anybody when they take their shoes off , Phewie!!!

Blearyeyed profile image
Blearyeyed

Shower then Physio then quick shower this morning , slept for three hours this afternoon , not the best way to get over the lack of sleep from insomnia .

Can't do the bath either . I'm all legs , and either get stuck with shoulders or knees freezing out of water or it gets to my hips and I can't get out.

Oh the joys of being 48 and having GCA/ PMR!

Constance13 profile image
Constance13β€’ in reply toBlearyeyed

Wait till you're 84 and see what you feel like!!πŸ˜‚πŸ˜‚πŸΎπŸΈπŸ’₯

Blearyeyed profile image
Blearyeyedβ€’ in reply toConstance13

I'm expecting to feel the same but at least have a few more years fun to blame for it😘

Arflane97G profile image
Arflane97Gβ€’ in reply toBlearyeyed

I am 58 and for a good few months I could barely manage a shower and a bath was out of the question and I was seriously contemplating taking the bath out and having a wet room installed! Now I have a bath every morning as helps with the early morning stiffness. I use a variety of bath salts, oils etc with some frankincense oil and it is lovely. Things do get better, take care and best wishes

Constance13 profile image
Constance13β€’ in reply toArflane97G

Last sentence - I don't think so. I've had PMR for 8 years, even the doctor said "it is a very aggressive form and you'll probably be on pred for life". I am only on 4 mg now though so I'm not too worried.

Blearyeyed profile image
Blearyeyedβ€’ in reply toArflane97G

Thank you , yes I do love a good soak , I think I could just do with a bigger bath , like Cleopatra πŸ˜‹πŸ˜˜

BoaterAnnie profile image
BoaterAnnie

It's the hair washing that is hard for me. It's not too bad while I am doing it, but the next day I always pay the price. I used to wash my hair every other day, but now I am down to once per week. My hair is super dry, so by the end of the week, I have frizz like the wicked witch of the west. Now I find the whole thing extremely distressing because I am losing so much hair. It's quite frightening. I have a shower and come out in tears (which I know is silly. I have bigger problems than losing hair.)

Constance13 profile image
Constance13β€’ in reply toBoaterAnnie

You are right - it's the hair washing that does me in. My hair was very fine when I was young and I couldn't have it long (much to my disappointment) because it got 'scraggy'. I saw a five year old girl the other day and she had tmost beautiful hair half way down her back and it was naturally waved. I was actually jealous of a five year old girl (I'm 80) πŸ˜‚πŸ˜‚.

My hair now is dry, since PMR struck,

and sticks out all over the place. However, I haven't lost any of it thank goodness.

I'm mad! There is an amazing hairdresser 200 yards from where I live and I can lie down while she washes it. It's all very upmarket but only costs €45 for wash, cut and blow dry, but I have to WALK there - I'm just as tired when I get there as when I wash my hair myself!!

β€’ in reply toBoaterAnnie

Try not to worry too much re hair. Since I cut back from everyday to weekly I notice it more. But I think that because a weeks worth of natural fall out for me now. Daily you don't notice but weekly there's loads. I had to shower 3 times in a business week and realised hardly any hair.... Back to the once and loads of it.

Since latest setback, am taking morning shower as too tired at night. Fatigue from am shower improving each time. Hopefully means I’m getting stronger. At least that’s what I’m telling myself. πŸ€—

maria40 profile image
maria40β€’ in reply to

I've recently developed a tendency to feel as though I'm losing my balance when my eyes are shut in the shower. What's that all about? Eyes open and I'm fine and enjoy it - when I get round to it.

β€’ in reply tomaria40

Oh, definitely my balance is off in the shower and keep my eyes open and if have to briefly shut ( face washing), I hold on to the wall. My balance has been off overall since I started on pred. I walk carefully. πŸ™πŸ€—

Yellowbluebell profile image
Yellowbluebell

I love baths and hate showers with a vengeance but getting out of the bath has been interesting to say the least!! I used to use the taps to haul myself up but since moving our new bath has its tap down one side and its controls are up at shower level!! In the old one i often had a real wave motion going as i revved up to push myself out and have been known to be on all fours stark naked calling for OH. I still wont give up my baths though even if i have to sit on the loo to recover from the effort of getting out!!

scats profile image
scatsβ€’ in reply toYellowbluebell

You do paint such a lovely picture!

These last two months I have been able to get out of the bath much easier than before thank goodness. Now every morning I soak my aching thighs before rubbing in magnesium oil. I believe this has helped me move more freely and strengthed my muscles.

Constance13 profile image
Constance13β€’ in reply toYellowbluebell

If I had a bath still I would certainly use it. My daughter has one but the last time I used it (about 9 months ago) I 'fainted' out of it'. Luckily my husband heard it and came to my rescue. Since then neither my husband or my daughter will allow me to use it.☹️

Yellowbluebell profile image
Yellowbluebell

I have had sea sick from the waves i created trying to get out of my bath!! Definitely not a pretty site although i am informed it was funny!!

Soaking muscles is always good as far as i am concerned and adding magnesium afterwatds sounds goodx You are basically giving yourself a massage.x

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