Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,236 posts

All posts for December 2019

GCA OR TRIGEMINAL NEURALGIA!!

Im not sure if I'm having a flare of my GCA or its an attack of Trigeminal Neuralgia. I'm currently down to 6mg of preds since 6th Dec and have a sore scalp...

Im not sure if I'm having a flare of my GCA or its an attack of Trigeminal Neur...

Lanza23

•5 years ago

16 Replies

Pred Hair (male) Head & Facial

I would like to point out to the Mods and others, that my post of OH's Christmas Beard was in no way a "Holiday Photo" and was posted some hours before the...

I would like to point out to the Mods and others, that my post of OH's Christmas...

Nuff1

•5 years ago

16 Replies

Looking for advice

Anyone found anything to relieve morning pain and stiffness? Co Codamol not doing much ,awaiting hip op.

Anyone found anything to relieve morning pain and stiffness? Co Codamol not doin...

Seagu11

•5 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Just chatted with a gentleman with GCA

A friend told me she had a friend who's husband lost his sight completely due to GCA and gave me his phone number after giving him a heads-up. He is 79 also...

A friend told me she had a friend who's husband lost his sight completely due to...

Grammy80

•5 years ago

18 Replies

Aunty Bees Advent Calendar . Dec 15. A bit of Stress Relief. The PMR/ GCA No.1 .... The Chronically Painful Christmas Alphabet!

So , if you like me , occasionally find that things feel a bit frazzled and tempers frayed at this point in the run up to Christmas , you might also be...

So , if you like me , occasionally find that things feel a bit frazzled and temp...

Blearyeyed

•5 years ago

58 Replies

GCA AND Flu symptoms, should I increase my Preds?

Help needed for a newby, Reduced down to 40mg Preds Oct 15, and have again experienced double vision 1, 23 Nov, constant tinnitus since last review, night...

Help needed for a newby, Reduced down to 40mg Preds Oct 15, and have again exper...

cool4bob

•5 years ago

18 Replies

PMR/unspecified arthritis /methotrexate

Just wondered if any of you lovely people have been given methotrexate and how you have coped with taking it? Following on from previous posts re my husband...

Just wondered if any of you lovely people have been given methotrexate and how y...

alysonkerry-

•5 years ago

40 Replies

If we don't laugh, we'll cry....

Having PMR and/or GCA is NO laughing matter. They are both long term, cruel, serious illnesses that turn our lives upside down. It's obvious we all need...

Having PMR and/or GCA is NO laughing matter. They are both long term, cruel, se...

Hidden

•5 years ago

10 Replies

Large grateful THANK YOU!

I only know one thing is this season of peacefulness and Thanking GOD that I found people who not only helped from clear across the world but around my nation....

I only know one thing is this season of peacefulness and Thanking GOD that I fou...

susieq051

•5 years ago

1 Reply

I was given the wrong dosage of Prednisone....?

Haunting question....did this matter. When I woke on August 5, 2019, and was blind in one eye I called the ambulance since I live alone. After multiple...

Haunting question....did this matter. When I woke on August 5, 2019, and was bl...

Grammy80

•5 years ago

12 Replies

What kind of diet do you recommend as a PMR patient?

My husband and I are having the discussion on what kind of diet is best for me having PMR and now having an A1C of 6.5. Can you tell me what would be...

My husband and I are having the discussion on what kind of diet is best for me h...

singingloud

•5 years ago

17 Replies

Worst flu ever!

Can I ask you good people for some advice? I haven’t had an actual flu for years but now in spite of getting the flu and pneumonia jabs, I’ve come down with...

Can I ask you good people for some advice? I haven’t had an actual flu for years...

GerriMc

•5 years ago

11 Replies

So fragile!

Just as my right hip was making a good, gradual recovery (after physio, exercises & ultrasound)- my left one's gone! Sacroiliac again I suspect. But is it...

Just as my right hip was making a good, gradual recovery (after physio, exercise...

Portobello

•5 years ago

26 Replies

Aunty Bees Advent Calendar. Dec 14. Peace and Goodwill to All " Men" and Hardworking Volunteers. A Break from Festivities today!

Dear All Aunty Bee is taking a holiday today so that our Hardworking Volunteers can deal with some Forum business. So today's message will simply be , Let's...

Dear All Aunty Bee is taking a holiday today so that our Hardworking Volunteers...

Blearyeyed

•5 years ago

5 Replies

Weather and flares?

Has anyone found a correlation between inclement weather and PMR flares? I am down to 4.0 mg prednisone (for about a month). I have been having increased...

Has anyone found a correlation between inclement weather and PMR flares? I am d...

jackswife

•5 years ago

38 Replies

ESR

Just wanting to ask a question. Had my blood work done and have been feeling quite well so felt my CRP would be good. I know by how I feel what my blood...

Just wanting to ask a question. Had my blood work done and have been feeling qui...

Robinsnest72

•5 years ago

2 Replies

Any info or help appreciated~! Methylpred and Actemra

I woke up on August 5, this year, and was blind in my left eye. I was diangosed that day with GCA. The previous week I had gone to the Doctor but was...

I woke up on August 5, this year, and was blind in my left eye. I was diangosed...

Grammy80

•5 years ago

21 Replies

OH's Christmas Beard

As mentioned

Nuff1

•5 years ago

8 Replies

Aunty Bees PMR , GCA and Chronic Pain Sufferers Advent Calendar. Dec 13. National Christmas Jumper Day , My Past Efforts and a little Quiz .

Happy National Christmas Jumper Day ! Or whichever Winter Festivals Jumper you prefer , as I have friends that happily join in the celebrations , and giving...

Happy National Christmas Jumper Day ! Or whichever Winter Festivals Jumper you p...

Blearyeyed

•5 years ago

49 Replies

Prolia Denounced -

Denosumab and osteoporosis, more doubts than evidence Independent experts in the pharmaceutical industry denounce the improbable effectiveness and excessive...

Denosumab and osteoporosis, more doubts than evidence Independent experts in the...

Ruadh

•5 years ago

11 Replies

? PMR flare without raised ESR or CRP

Hope this isn’t a naive question but is it possible to have a PMR flare without raised ESR or CRP levels? I was diagnosed two and a half years ago and started...

Hope this isn’t a naive question but is it possible to have a PMR flare without ...

Plantmad

•5 years ago

10 Replies

Started tapering with some issues

Firstly I feel I should correct something I said in my first post. I stated that the GP had increased my initial pred dose from 15mg to 20mg. I don't know...

Firstly I feel I should correct something I said in my first post. I stated that...

Mack100

•5 years ago

13 Replies

update on my mum- blind from GCA

My mum lost her vision in both eyes on 5th November due to misdiagnosis (2 GPs, a neurologist and the A&E dept missed it). Since then it has been almost non...

My mum lost her vision in both eyes on 5th November due to misdiagnosis (2 GPs, ...

Jeromekjerome

•5 years ago

51 Replies

Should I take MTX following norovirus?

I am just recovering from a horrible bout of the norovirus. I still feel very fragile and vaguely nauseous all the time, with a jaded appetite. I am due to...

I am just recovering from a horrible bout of the norovirus. I still feel very fr...

Vaggers

•5 years ago

6 Replies

Blood sugar question

Hi just wanted to ask if anyone knows how often i should get my blood sugar checked as when I spoke to the dr the other day regarding the fact that I was just...

Hi just wanted to ask if anyone knows how often i should get my blood sugar chec...

Poppylop

•5 years ago

36 Replies

High Lymphocytes

The GP rang me this afternoon to say my latest blood test showed I have a higher than normal level of lymphocytes. Has this happened to anyone else? My CRP is...

The GP rang me this afternoon to say my latest blood test showed I have a higher...

Jampad

•5 years ago

2 Replies

A cautionary tale

A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone...

A cautionary tale for those of us who have used or are using opiates for pain. ...

Nitrobunny

•5 years ago

15 Replies

Aunty Bees Advent Calendar. Dec 12. Another Nativity ! Another Show! A bit of Fun and tips to help in your decision to go.

There's a big decision that we all need to vote upon across the Country tonight in the PMR , GCA and Chronic Pain Community. No! I'm not talking about the 'E'...

There's a big decision that we all need to vote upon across the Country tonight ...

Blearyeyed

•5 years ago

41 Replies

Bumps in the road. PMR tapering seems to have provoked GCA

Bumps in the road I first posted here around 3 weeks ago when I got the news I had PMR, well I had that news 2 or 3 years ago but didn't understand so stopped...

Bumps in the road I first posted here around 3 weeks ago when I got the news I h...

Travs

•5 years ago

21 Replies

Tripping the light fandango

After having a few awful months had to up pred to 7.5 now managed to get back to 6 mg had recurring UTI’s and now pre diabetic thought I’d cheer myself up so...

After having a few awful months had to up pred to 7.5 now managed to get back to...

Visby

•5 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2019

GCA OR TRIGEMINAL NEURALGIA!!

Pred Hair (male) Head & Facial

Looking for advice

Just chatted with a gentleman with GCA

Aunty Bees Advent Calendar . Dec 15. A bit of Stress Relief. The PMR/ GCA No.1 .... The Chronically Painful Christmas Alphabet!

GCA AND Flu symptoms, should I increase my Preds?

PMR/unspecified arthritis /methotrexate

If we don't laugh, we'll cry....

Large grateful THANK YOU!

I was given the wrong dosage of Prednisone....?

What kind of diet do you recommend as a PMR patient?

Worst flu ever!

So fragile!

Aunty Bees Advent Calendar. Dec 14. Peace and Goodwill to All " Men" and Hardworking Volunteers. A Break from Festivities today!

Weather and flares?

ESR

Any info or help appreciated~! Methylpred and Actemra

OH's Christmas Beard

Aunty Bees PMR , GCA and Chronic Pain Sufferers Advent Calendar. Dec 13. National Christmas Jumper Day , My Past Efforts and a little Quiz .

Prolia Denounced -

? PMR flare without raised ESR or CRP

Started tapering with some issues

update on my mum- blind from GCA

Should I take MTX following norovirus?

Blood sugar question

High Lymphocytes

A cautionary tale

Aunty Bees Advent Calendar. Dec 12. Another Nativity ! Another Show! A bit of Fun and tips to help in your decision to go.

Bumps in the road. PMR tapering seems to have provoked GCA

Tripping the light fandango

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