Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for November 2019

Ad Cal C

As soon as I started taking pred, I a year ago, I was prescribed Ad Cal C to protect the bones. I have to see a consultant this week as my kidneys are not...

As soon as I started taking pred, I a year ago, I was prescribed Ad Cal C to pr...

Wayfair

•5 years ago

16 Replies

Flu shot for seniors

Hello all, I’m about to get my flu shot and am wondering if the vaccine for seniors is stronger and would cause any more side effects or reactions?...

Hello all, I’m about to get my flu shot and am wondering if the vaccine fo...

Mstiles

•5 years ago

10 Replies

Day 1 of Pred

Well today I started on Pred 50mg after yesterday’s and this mornings Dr reviews. BP was also higher 150/100 when I went in so gave me pills for that also....

Well today I started on Pred 50mg after yesterday’s and this mornings Dr reviews...

Jc554

•5 years ago

13 Replies

Want to take advantage of all our features? Just log in!

CHANGES TO PMR

CHANGES TO PMR, HOW DO I TELL IF IT HAS CHANGED TO GCA

harveyp1

•5 years ago

3 Replies

Best time to take prednisone

Hi there I would be very grateful to get peoples opinions on the best time to take meds. My husband has been recently diagnosed with PMR and started on 15mg of...

Hi there I would be very grateful to get peoples opinions on the best time to ta...

alysonkerry-

•5 years ago

8 Replies

Brave New Medicine: A Doctor’s Unconventional Path to Healing Her Autoimmune Illness

Hmmmm, I thought it might be worth a read... I'll let you know, after I receive and read. Brave New Medicine: A Doctor’s Unconventional Path to Healing Her...

Hmmmm, I thought it might be worth a read... I'll let you know, after I receive...

Hidden

•5 years ago

12 Replies

Is it?? A little flare or not?

Hi all! About 2 months ago I slipped on some loose sugar in the supermarket, I didn't fall and managed to save myself from cannoning into a couple of kids and...

Hi all! About 2 months ago I slipped on some loose sugar in the supermarket, I d...

MamaBeagle

•5 years ago

21 Replies

Steroids.

Hi. Guys I haven’t been on here for a while, so much has happened since my last post. So let’s start from the beginning. 10 years ago I thought I had a normal...

Hi. Guys I haven’t been on here for a while, so much has happened since my last ...

Chazzi

•5 years ago

4 Replies

Cannabis not effective for pain

CANNABIS should not be prescribed for chronic pain, the NHS funding watchdog has ruled, in a decision that campaigners called “devastating”. Guidance released...

CANNABIS should not be prescribed for chronic pain, the NHS funding watchdog has...

piglette

•5 years ago

4 Replies

GCA

Hi, another newbie. Had mild pain in temples for around 8 days and been to hospital for bloods. They think could be GCA and have prescribed 50mg steroid which...

Hi, another newbie. Had mild pain in temples for around 8 days and been to hospi...

Jc554

•5 years ago

3 Replies

Missed Pred dose

Hi All I've just realised that I forgot to take my Pred this morning. Should I take it now or just miss it out completely. I'm on 11mg

Hi All I've just realised that I forgot to take my Pred this morning. Should I t...

Magster54

•5 years ago

19 Replies

GCA/PMR changes plans

I've read many posts of other sufferers lamenting to do past activities. This post may seem crazy, sad or possibly familiar. I was dx with gca 8 months ago. I...

I've read many posts of other sufferers lamenting to do past activities. This po...

Spanky2019

•5 years ago

17 Replies

pins and needles in hands, and pain waking me at night now

hello, well, another issue, don,t know if this may be related to our pmr problems, but last while, pins and needles, left hand asleep , has been waking me up,...

hello, well, another issue, don,t know if this may be related to our pmr problem...

arvine

•5 years ago

12 Replies

The perils of feeling better but not that much better

Over the last couple of weeks I've been a lot more active than I've been for a ages. I've actually been doing small amounts of housework. I've felt a bit as if...

Over the last couple of weeks I've been a lot more active than I've been for a a...

Louisepenygraig

•5 years ago

27 Replies

Pred and Metformin?

After 6 months on Pred for PMR, tapering without problems from 15mg to 7 mg, I have had an HbA1c test and the score is 72. For the previous 4 years, my Type 2...

After 6 months on Pred for PMR, tapering without problems from 15mg to 7 mg, I h...

Cross-stitcher

•5 years ago

11 Replies

Annapurna IV Expedition (7525m) - Summary

We’ve just returned from the high Himalaya in Nepal. We’ve had a truly memorable epic adventure which had everything you would expect from a high altitude...

We’ve just returned from the high Himalaya in Nepal. We’ve had a truly memorable...

Skinnyjonny

•5 years ago

19 Replies

Hearing Loss and GCA

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5706380/ Under-recognized as is tinnitis.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5706380/ Under-recognized as is ti...

LilyBark

•5 years ago

2 Replies

Steroids and cartilage regeneration

If cortisone injections have to be limited because they damage cartilage, what are the implications for oral corticosteroids and exacerbation of...

If cortisone injections have to be limited because they damage cartilage, what a...

HeronNS

•5 years ago

20 Replies

Reducing prednisolone

On my way down from 50mg for a while now I got to 25mg for two weeks and then to 20mg. Not sure if it's the pred but I have one quite swollen gland in my...

On my way down from 50mg for a while now I got to 25mg for two weeks and then t...

Pippah45

•5 years ago

6 Replies

Dopamine links to some AI diseases and maybe PMR/GCA ?

'Dopamine has emerged as a fundamental regulator of inflammation. In this regard, it has been shown that dopaminergic signalling pathways are key players...

'Dopamine has emerged as a fundamental regulator of inflammation. In this regard...

Rimmy

•5 years ago

19 Replies

Possible Inflammatory Arthritis

I have a phone app at lunchtime ( Rheum) following in from a very unsatisfactory face app 6 weeks ago. Nothing was mentioned about Inflammatory A until I saw...

I have a phone app at lunchtime ( Rheum) following in from a very unsatisfactory...

Breconblue

•5 years ago

4 Replies

Assistance Allowance

I am debating whether to Appeal against a decision for the above. I was amazed by the lack of knowledge and understanding of GCA when a decision maker rang me....

I am debating whether to Appeal against a decision for the above. I was amazed b...

Cairn

•5 years ago

13 Replies

What to do at 7.5mg

Hello it's me. I have just finished 12 days at 7.5mg after deciding to drop the 7.5mg x 3 and just get on with it. My CRP 2 weeks ago was 9 and I have and do...

Hello it's me. I have just finished 12 days at 7.5mg after deciding to drop the...

IdasMum

•5 years ago

5 Replies

Flu jab - still sitting on the fence

Sorry, it's me back again, still sitting on the fence about whether to have which flu jab. I have the choice of the one with the adjuvant, which I'm scared of...

Sorry, it's me back again, still sitting on the fence about whether to have whic...

Myosotis

•5 years ago

15 Replies

Introducing myself

Hi, I'm Penny, I was diagnosed last year and since being on pred it has restored my mobility which is important to my job in education with children with SLD...

Hi, I'm Penny, I was diagnosed last year and since being on pred it has restored...

Tuppence55

•5 years ago

8 Replies

Hearing & Jaw still affected after full sight loss

My mum lost all vision due to GCA last week, is on 60mg oral Pred. Still has jaw pain and is experiencing slight hearing loss. my original post:...

My mum lost all vision due to GCA last week, is on 60mg oral Pred. Still has jaw...

Jeromekjerome

•5 years ago

23 Replies

Hell all 6.7mg pred had to go up 1mg yesterday

Hello can anyone please advise, managed to reduce pred to 6.5mg dropping 0.5 per month .... last dropped Monday, not feeling that good all week so took 1mg...

Hello can anyone please advise, managed to reduce pred to 6.5mg dropping 0.5 per...

suszannah

•5 years ago

11 Replies

Best time to take Preds

Best time to take preds? I was at 7.5mg and it all went horrid when I got a chest infection, I had forgotten how painful it was, don’t know weather this was...

Best time to take preds? I was at 7.5mg and it all went horrid when I got a ch...

_multistrada

•5 years ago

6 Replies

Two things!

1. Everything I put in my mouth seems sweet. (Husband hasn't noticed it, so it must be me)! 2. My urine is almost colourless although I only drink about 1...

1. Everything I put in my mouth seems sweet. (Husband hasn't noticed it, so it ...

Constance13

•5 years ago

40 Replies

Steroid withdrawal syndrome?

Hello all. It's been a while since I posted here. Having been diagnosed with probable fibromyalgia, I thought that was the end of things. However, I notice...

Hello all. It's been a while since I posted here. Having been diagnosed with pro...

Linda3009

•5 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2019

Ad Cal C

Flu shot for seniors

Day 1 of Pred

CHANGES TO PMR

Best time to take prednisone

Brave New Medicine: A Doctor’s Unconventional Path to Healing Her Autoimmune Illness

Is it?? A little flare or not?

Steroids.

Cannabis not effective for pain

GCA

Missed Pred dose

GCA/PMR changes plans

pins and needles in hands, and pain waking me at night now

The perils of feeling better but not that much better

Pred and Metformin?

Annapurna IV Expedition (7525m) - Summary

Hearing Loss and GCA

Steroids and cartilage regeneration

Reducing prednisolone

Dopamine links to some AI diseases and maybe PMR/GCA ?

Possible Inflammatory Arthritis

Assistance Allowance

What to do at 7.5mg

Flu jab - still sitting on the fence

Introducing myself

Hearing & Jaw still affected after full sight loss

Hell all 6.7mg pred had to go up 1mg yesterday

Best time to take Preds

Two things!

Steroid withdrawal syndrome?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2019

Ad Cal C

Flu shot for seniors

Day 1 of Pred

CHANGES TO PMR

Best time to take prednisone

Brave New Medicine: A Doctor’s Unconventional Path to Healing Her Autoimmune Illness

Is it?? A little flare or not?

Steroids.

Cannabis not effective for pain

GCA

Missed Pred dose

GCA/PMR changes plans

pins and needles in hands, and pain waking me at night now

The perils of feeling better but not *that* much better

Pred and Metformin?

Annapurna IV Expedition (7525m) - Summary

Hearing Loss and GCA

Steroids and cartilage regeneration

Reducing prednisolone

Dopamine links to some AI diseases and maybe PMR/GCA ?

Possible Inflammatory Arthritis

Assistance Allowance

What to do at 7.5mg

Flu jab - still sitting on the fence

Introducing myself

Hearing & Jaw still affected after full sight loss

Hell all 6.7mg pred had to go up 1mg yesterday

Best time to take Preds

Two things!

Steroid withdrawal syndrome?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

The perils of feeling better but not that much better