My mum lost all vision due to GCA last week, is on 60mg oral Pred. Still has jaw pain and is experiencing slight hearing loss.
my original post: healthunlocked.com/pmrgcauk...
I have 3 questions if anyone can help:
1- Hearing has been much worse than usual - can anybody tell me if this is to do with GCA and if the steroids will reverse it or is it permanent like the vision loss? Also can patients with GCA develop complete hearing loss?
2- We were told there could be small vessels deep in her brain that might be damaged too that we don't know about -that might cause a stroke - do the steroids still help to prevent this or is it like a time bomb? Her new ultrasound temple and under arm artery scan, MRI and MRA scans were negative.
3- Her jaw still hurts after about 4 chews on food - is this permanent like the eyes - or can this damage be reversed with the steroids?
Thank you - we have an appointment with the GP on Thursday - I want them to bring forward the booked follow-up with the rheumatologist which is scheduled for 21st Nov to find out about this. Do I need an urgent appointment? If so how?