Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,883 posts

All posts for November 2019

My next steps?

I was diagnosed in hospital in June with PMR, just before I was 60. Was put on 10mg of prednisolone. Over the months there was no change in the pain or...

I was diagnosed in hospital in June with PMR, just before I was 60. Was put on ...

Spittal9

•5 years ago

36 Replies

Still problems with tapering

Hi all, hav'nt written for a few weeks but just wanted to fill you in on what's been happening taper wise, as I've said before had the scans, told no GCA, told...

Hi all, hav'nt written for a few weeks but just wanted to fill you in on what's ...

Poppylop

•5 years ago

9 Replies

Vasculitis guidelines support first-line *biologic therapies in certain patients (including GCA patients!)

Just posting because I am pleased to see research, new studies, and updated guidelines (related to GCA and/or PMR) being conducted, discussed and released!...

Just posting because I am pleased to see research, new studies, and updated guid...

Hidden

•5 years ago

11 Replies

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F/u to post- Gca-flare

Rheumatologist wants to see me Monday. Told me to bump prednisone to 40 mg. Was on 15 mg & I was suppose to go to 12.5 mg next week. Disappointed but I guess...

Rheumatologist wants to see me Monday. Told me to bump prednisone to 40 mg. Was ...

Spanky2019

•5 years ago

7 Replies

Gadolinium enhanced MRI improves diagnostic accuracy in PMR!

"If recurrences can be predicted by gadolinium-enhanced MRI, rheumatologists can consider using anti-rheumatic drugs in the early stage for PMR patients."...

"If recurrences can be predicted by gadolinium-enhanced MRI, rheumatologists can...

Hidden

•5 years ago

8 Replies

Itchy rash more

Thanks all for your responses

Daffodilia

•5 years ago

Be the first to reply

The best of late Autumn

Better view from my bed today. Not a bad picture to wake up too. Certainly makes aches and pains more bearable.

Better view from my bed today. Not a bad picture to wake up too. Certainly mak...

Constance13

•5 years ago

34 Replies

Itchy rash more

Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath...

Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocor...

Daffodilia

•5 years ago

35 Replies

Slightly Concerned

Hi everyone. In September I made a spectacular recovery from quite severe PMR after only two doses of Prednisolone. Having reduced from 15mg to 10mg in just...

Hi everyone. In September I made a spectacular recovery from quite severe PMR af...

Mogberi

•5 years ago

19 Replies

Scalp pain advice

You know my story-gca since April 2019. Tapering prednisone- been on 15 mg almost 30 days. Scheduled to go to 12.5 next week. Headache started 2 days ago on...

You know my story-gca since April 2019. Tapering prednisone- been on 15 mg almos...

Spanky2019

•5 years ago

10 Replies

Bumped my head

My morning hasn’t started off so great. I managed to give my head a whack with the door of my hatchback when in tried to close it while looking the other...

My morning hasn’t started off so great. I managed to give my head a whack w...

Mstiles

•5 years ago

27 Replies

Day 3

Hi guys and gals, back again. Currently on day three 50mg Pred. I’ve notice that the pain in my temple is almost gone when I wake up but by about 1 or 2pm it’s...

Hi guys and gals, back again. Currently on day three 50mg Pred. I’ve notice that...

Jc554

•5 years ago

17 Replies

Knee Strain and Prednisolone

Hi, I’m currently on around 5mg for PMR and are doing OK - from 15mg June. Unfortunately I have a slight case of ‘runners knee’ since a week ago. I’m a little...

Hi, I’m currently on around 5mg for PMR and are doing OK - from 15mg June. Unfor...

Tonch

•5 years ago

30 Replies

Advice Needed

I was diagnosed with GCA at the end of August and started on 60 mg steroids. I have tapered down and will start on 25 mg tomorrow. I had a couple of setbacks...

I was diagnosed with GCA at the end of August and started on 60 mg steroids. I h...

Jampad

•5 years ago

24 Replies

Methotrexate Side Effects???

Im on 20mg methotrexate injections weekly now and eye pain appears to have increased. I have had lens's replaced in both a couple of years ago and sight has...

Im on 20mg methotrexate injections weekly now and eye pain appears to have incre...

Blomps

•5 years ago

30 Replies

2 Tapers or NOT 2 Tapers......

Hi again everyone - hope you can help. Forgot to mention yesterday whilst visiting my GP she informed me of the latest findings re taking HRT - the risk...

Hi again everyone - hope you can help. Forgot to mention yesterday whilst visiti...

Fredddie

•5 years ago

13 Replies

Prednisone, and weight gain

Most of us have experienced this - it can be a real struggle to control weight when on corticosteroids. Until I tapered to under 12 mg even a very low carb...

Most of us have experienced this - it can be a real struggle to control weight w...

Rimmy

•5 years ago

6 Replies

Reducing

Could someone please tell me the reason for reducing prednisone slowly? Is it because of the withdrawal side effects or does it effect the inflammation coming...

Could someone please tell me the reason for reducing prednisone slowly? Is it be...

Robinsnest72

•5 years ago

12 Replies

PMR

Does anyone notice negative effects on the body when the weather is very cold? For example when temperature is below freezing at night and in the low 40s F,

Does anyone notice negative effects on the body when the weather is very cold? F...

Noosat

•5 years ago

41 Replies

Auntie Bee is falling apart! Not just POTTY but a case of the SANRTs!! Anyone else with this tachycardia , or just me and the Bin of Doom!

Hello Folks , just thought I'd send you an update from a very wet and windy North Wales. I finally received a letter from the Cardiology Department this...

Hello Folks , just thought I'd send you an update from a very wet and windy Nort...

Blearyeyed

•5 years ago

82 Replies

Dr.: You don´t have PMR and PMR is not a disease in the muscles?!

So I went to a new rheumatologist yesterday as my GP will not continue to treat me with pred. after the first rheumatologist said that I do not have PMR with...

So I went to a new rheumatologist yesterday as my GP will not continue to treat ...

krillemy

•5 years ago

41 Replies

Nearly in Club Zero

Well after some time I took what could be my penultimate dose of pred last night. I got to this point with the help of this site, I got the courage to tell the...

Well after some time I took what could be my penultimate dose of pred last night...

JulianJ

•5 years ago

31 Replies

I need to know if anybody out there has ever been given actemera for Giant Cell arterits

What can I expect from this drug. How do they reduce prednisone. I know this injected but will find out Monday all other particular.

What can I expect from this drug. How do they reduce prednisone. I know this in...

susieq051

•5 years ago

30 Replies

"When You Can't Stop Mourning the Person You Were Before Chronic Illness" ~Jamie Jasinski

I believe many of us can relate to this very well written article......

Hidden

•5 years ago

23 Replies

Keeping Calm and Carrying On!

Hi everyone, It has been just over 3 months since I started on Pred at 40mg and now on 15mg. During this time my side effects have reduced and although I get...

Hi everyone, It has been just over 3 months since I started on Pred at 40mg and...

Fredddie

•5 years ago

11 Replies

Very bad appt. with my GP

Well literally got called hypochondriac by my GP and that I brought this all on myself because all I want is Attention. My Gp which is no longer my Gp...

Well literally got called hypochondriac by my GP and that I brought this all o...

susieq051

•5 years ago

23 Replies

So Confused

Friday I had cat scan of my jaw. I was given 150 mgs extra prednisone due to my itchy reaction to contrast. Here is the issue.... I still have jaw pain n...

Friday I had cat scan of my jaw. I was given 150 mgs extra prednisone due to my...

Hidden

•5 years ago

5 Replies

Tomorrow - my first day on Hydrocortisone

So I got my new medication today and I start on 20mg tomorrow, not sure start is the right word as that’s the dose I’ve been told to take for how long I don’t...

So I got my new medication today and I start on 20mg tomorrow, not sure start i...

Suffolklady

•5 years ago

32 Replies

Recurrent bladder infections? common?

Do others have recurrent bladder infections, e coli? I never had them before the PMR and prednisone, and I have no symptoms, just horrible urine odor. The...

Do others have recurrent bladder infections, e coli? I never had them before th...

composition

•5 years ago

10 Replies

Another Query Re Returning Stiffness

OH (age 72,diagnosed PMR/GCA June/July 2018) is currently working through DL's taper from 6mg pred to 5mg and is obviously stiffer hips and knees, has been for...

OH (age 72,diagnosed PMR/GCA June/July 2018) is currently working through DL's t...

Nuff1

•5 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2019

My next steps?

Still problems with tapering

Vasculitis guidelines support first-line *biologic therapies in certain patients (including GCA patients!)

F/u to post- Gca-flare

Gadolinium enhanced MRI improves diagnostic accuracy in PMR!

Itchy rash more

The best of late Autumn

Itchy rash more

Slightly Concerned

Scalp pain advice

Bumped my head

Day 3

Knee Strain and Prednisolone

Advice Needed

Methotrexate Side Effects???

2 Tapers or NOT 2 Tapers......

Prednisone, and weight gain

Reducing

PMR

Auntie Bee is falling apart! Not just POTTY but a case of the SANRTs!! Anyone else with this tachycardia , or just me and the Bin of Doom!

Dr.: You don´t have PMR and PMR is not a disease in the muscles?!

Nearly in Club Zero

I need to know if anybody out there has ever been given actemera for Giant Cell arterits

"When You Can't Stop Mourning the Person You Were Before Chronic Illness" ~Jamie Jasinski

Keeping Calm and Carrying On!

Very bad appt. with my GP

So Confused

Tomorrow - my first day on Hydrocortisone

Recurrent bladder infections? common?

Another Query Re Returning Stiffness

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