That is a really bizarre reduction for someone who has been on such high dose pred for 2 months. It was fine down to 10mg but from there it should have been another month or so at least.
Who told you how to taper? And who diagnosed postural hypotension? If you lost consciousness I hope you were sent to A&E for a scan at least?
It doesn't matter why you lost consciousness - and if it was from the impact that actually makes it even more important you have a head scan to rule out damage.
As for appointment - emergency is the word to use and then it should be same day.
I saw the doctor following my first fall. That's when she diagnosed the postural hypotension. In trying to root out the cause of that, she found I had microscopic haematuria, hence the microscopy and follow up scan.
I really feel that all of this is down to rapid steroid reduction.
If you’d been tapering at thy speed from the start you may have been ok but in my opinion once you were held at 50mg for 6 weeks then your option of a fast taper was removed. Your body will almost certainly notice the removal because it was not a quick up quick down like they do for some other condition flare ups.
My withdrawal included a ‘cloud’ of pain all over and around joint areas but without affecting function of the joints.
I have had fibromyalgia for about 8 years. Hard luck...if the diagnosis is correct. The best thing to do is to check the fibromyalgia sites and look for the 18 points in the body...think it’s 18...that can hurt when pressed. My FM was diagnosed by Rheumatologists to whom I was referred by my GP. When we moved house another rheumatologist checked up, too! The exams are thorough and, in my humble opinion, should be performed to diagnose anybody! I had pain in all but 2 places, I know there is a minimum of ‘points’ that you need to have to be pretty sure it’s FM. You can find diagrams of the body with these places clearly marked & check them yourself..it may help? I do have falls with FM (until 2 weeks ago I only had FM, not PMR as well, so it’s easy for me to be clear that it was the FM causing it! I fell off a low raised bed a while ago..fine one minute, spiralling downwards the next, & I had a bad fall up the stairs last winter, breaking a finger & snapping the tendon off the joint. Hope this helps a bit!
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