What to do at 7.5mg

[IdasMum]

Hello it's me.

I have just finished 12 days at 7.5mg after deciding to drop the 7.5mg x 3 and just get on with it. My CRP 2 weeks ago was 9 and I have and do feel well. My energy levels are good (for me) and apart from feeling dosy a couple of times per day have energy to clean/cook and do things.

But......am aching. Just between my shoulder blades. Feels like the old myofascial pain when on much higher doses of Pred. Am certain it's not a flare and am hoping you will reassure me it's not.

I really want to stick with 7.5, the lowest I have been in 3 years

[DorsetLady PMRGCAuk volunteer]

“Am certain it's not a flare and am hoping you will reassure me it's not.”

We can’t reassure you, but we can certainly hope you are right in your certainty!

Just a thought - Are you sure you’re not doing a little too much because you feel better?

[IdasMum in reply to DorsetLady]

I'm not doing lots.

Just have energy to clear up in the kitchen etc.

A bit of sweeping and a bit of mopping but the aches were already there.

I might see if I can get an app with my osteopath for a good stretching.

[DorsetLady PMRGCAuk volunteer in reply to IdasMum]

Might be worth a try, but don’t let him/her be too vigorous. Did it help previously?

[IdasMum in reply to DorsetLady]

Yes, she was good. I am able now to turn my head to the right without pain and 'catching'. She is gentle.

[IdasMum in reply to IdasMum]

So, I have an appt with my osteopath on 29th.

The pain/ache is not constant. Right now I can't feel it.

Having said that, I might feel it tomorrow as we've just lugged heavy furniture around to bring me into the warm lounge from out under the cold stairs.

I sound like Harry Potter, but the stairs are open and my desk and laptop are under the mezzanine. I was cold and now after 30 mins of lugging, sliding, sweeping and cleaning I am way too hot lol

Mark has been unwell for a week (getting better now) so I have taken up the slack. This included bringing in the wood for the woodburner, our only source of heating and doing all the jobs I normally expect him to do.

I have felt fine and stop and rest in between.

I am leaning towards I am doing too much (or more depending on your view point).

On a PMR level I feel good and have more energy once I get going in the morning. I'm getting around to coming down to 7mg on one day when I next do my pills.