Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for November 2019

Breaking the Pred Rules!

I had tapered 4 weekly down to 3mg but was suffering a lot of pain. The Rheumatology Advice Line suggested going back to 5mg but after 2 days of 5mg I went to...

I had tapered 4 weekly down to 3mg but was suffering a lot of pain. The Rheumato...

Bignorhill

•5 years ago

7 Replies

Big time flare up so now on 7.5 😱 update

Hi all, as you know I had a big flare up after dropping from 5mg to 4mg as my doctor asked me to, silly me don’t think ! Still on 7.5mg but dropping to 7mg on...

Hi all, as you know I had a big flare up after dropping from 5mg to 4mg as my do...

Margaret1951

•5 years ago

38 Replies

Good blood test results... but what does it mean?

After 4 months on Pred, started at 15mg, tapering 1mg at a time and currently on 10, I requested another blood test, and the markers are right down - ESR was...

After 4 months on Pred, started at 15mg, tapering 1mg at a time and currently on...

Ebn49

•5 years ago

5 Replies

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Truro Meet Up Group.

Truro Meet Up Group are meeting on Monday 11th November 2pm, upstairs at Truro Golf Club. Everyone most welcome.

Truro Meet Up Group are meeting on Monday 11th November 2pm, upstairs at Truro G...

Pollyanna16

•5 years ago

1 Reply

Good visit with ophthalmologist.

The ophthalmologist wonderful high intelligent woman, worked with my mom in the past very kind not to mention knowledgeable, confirmed my GCA. She is retina...

The ophthalmologist wonderful high intelligent woman, worked with my mom in the ...

susieq051

•5 years ago

4 Replies

Changing from Prednisolone to Hydrocortisone?

I was having problems with tapering with pred I’m down to 5mg but getting further has been challenging. I saw my Endocrinologist this week and talked about my...

I was having problems with tapering with pred I’m down to 5mg but getting furthe...

Suffolklady

•5 years ago

23 Replies

Knee replacement

Thank you everyone for your experiences and good wishes. I feel more reassured now. Still terrified, but yes looking forward to being able to go up and down...

Thank you everyone for your experiences and good wishes. I feel more reassured n...

Kyrenia

•5 years ago

2 Replies

Pred at lunchtime & flu

Newbie questions, sorry! Doctor said to take Pred in morning with food. I never eat breakfast and don’t fancy any food that time of day, but know Pred must be...

Newbie questions, sorry! Doctor said to take Pred in morning with food. I never ...

Pixix

•5 years ago

94 Replies

Is it a flair or dur to tapering?

Hi. I have gone down from 15 mg pred. (2 months) to 12,5 mg one month ago. First 2 weeks went fine, then the tiredness sneaked in on me and my son started to...

Hi. I have gone down from 15 mg pred. (2 months) to 12,5 mg one month ago. Firs...

krillemy

•5 years ago

27 Replies

Cold sore on nose

I am taking mtx 20 and pred 30 mgs. I presume I am immunosuppressed and have developed a cold sore on the end of my nose. Should i see gp as it probably herpes...

I am taking mtx 20 and pred 30 mgs. I presume I am immunosuppressed and have dev...

Vaggers

•5 years ago

5 Replies

See ophthalmologist today November 8 for double vision exam hoping to have good news

Well we shall see if any damage done from GCA the double vision is not always there. But I noticed something last night I had no double vision while testing...

Well we shall see if any damage done from GCA the double vision is not always th...

susieq051

•5 years ago

10 Replies

Got heartburn on 60 mg prednisone

Just started this problem really not sure what over the counter or ask md. I have heart burn not all the time just usually at night. I have tried baking soda...

Just started this problem really not sure what over the counter or ask md. I hav...

susieq051

•5 years ago

12 Replies

Reddened nail beds - pred side effect?

I have reddened nail beds on my thumbs and now starting on my index fingers and also some pitting on one thumb. Could this be a side effect of prednisone? I...

I have reddened nail beds on my thumbs and now starting on my index fingers and ...

Viola1

•5 years ago

4 Replies

Update, sorry it's been so long.

so last week at the rheumatologist she reduced my prednisone to 40 mg and we're going on a tapir to get the 20 in a month. Because 80 really didn't take away...

so last week at the rheumatologist she reduced my prednisone to 40 mg and we're...

twriller

•5 years ago

7 Replies

No Wonder I’m Lacklustre

Wow!...

Hidden

•5 years ago

32 Replies

Knee Replacement

Hi I was diagnosed with GCA//PMR in October 2017. I started on 40 mgs and have with difficulty and the DSM reduced to 4mmgs. It is planed that I have a knee...

Hi I was diagnosed with GCA//PMR in October 2017. I started on 40 mgs and have w...

Kyrenia

•5 years ago

7 Replies

Have I got PMR?

I haven’t had my pmr confirmed, my symptoms are not as severe as those described by some people’s postings, and my blood tests normal. I did have more...

I haven’t had my pmr confirmed, my symptoms are not as severe as those describe...

Barjac

•5 years ago

8 Replies

Prednisilone

Hi, l have now been put back on 20mg, l was off it for 5 weeks but pain came back, been back on it for 4 days, first side effects rearing their ugly heads,...

Hi, l have now been put back on 20mg, l was off it for 5 weeks but pain came bac...

Fifelassieo

•5 years ago

10 Replies

Fundraising - we need your Support

Hi all, If you have a few minutes to spare, could you click on the link below and fill in a short form to vote for PMRGCAuk. We are applying for a fund of...

Hi all, If you have a few minutes to spare, could you click on the link below an...

Hidden

•5 years ago

34 Replies

UK Cannabis trial to include chronic pain

At last; a large medical trial to test use of cannabis to control symptoms in certain conditions. There’s an article in The Guardian today outlining the...

At last; a large medical trial to test use of cannabis to control symptoms in ce...

Hidden

•5 years ago

18 Replies

Three Rays of Light, written by Prof. Bhaskar Dasgupta

Dear all, THREE RAYS OF LIGHT SUNDAY 24TH NOVEMBER AT 6PM BHAVAN CENTRE, WEST LONDON we are delighted to let you know that our President, Professor Bhaskar...

Dear all, THREE RAYS OF LIGHT SUNDAY 24TH NOVEMBER AT 6PM BHAVAN CENTRE, WEST LO...

Hidden

•5 years ago

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Is it prednisolone or prednisone interfering with diabetes

Hi everyone , I am really struggling at the moment , not sure if it a reaction to prednisolone or prednisone with type 2 diabetes ,after taking 35mg of...

Hi everyone , I am really struggling at the moment , not sure if it a reaction t...

Stradbroke13

•5 years ago

24 Replies

Thank you for your support

Hi Just wanted to thank those of you who kindly replied - I do appreciate your advice and support. It got so bad last night that I took some extra pred anyway...

Hi Just wanted to thank those of you who kindly replied - I do appreciate your ...

wendythom

•5 years ago

3 Replies

Taper after going from 1.5mg Pred to 4.5mg

Hello! Just a quick question. A couple months ago I made the mistake of reducing from 2mg prednisone to 1.5mg, with no alternating doses. Adrenal problems...

Hello! Just a quick question. A couple months ago I made the mistake of reducing...

Heidi_SF

•5 years ago

11 Replies

Brufen is helping

Hi everyone I wondered if I could get your opinions. After starting steroids again in August (I too was driven to focus on getting to club zero! ) I have...

Hi everyone I wondered if I could get your opinions. After starting steroids a...

JulieR2

•5 years ago

5 Replies

Upset by new Rhumy

Hi everybody, last time i visited my Rhumy was apparently in March I was on 6mg pred I am now on 4 mg all seems ok I did go back to 6 mg in August due to...

Hi everybody, last time i visited my Rhumy was apparently in March I was on 6mg ...

sailorman

•5 years ago

10 Replies

cataract surgery lenses

Hello again, and thank you for all your input re this process, now I have to decide, how much I have to pay for the 2 lenses suggested by surgeon, I am in...

Hello again, and thank you for all your input re this process, now I have to dec...

arvine

•5 years ago

3 Replies

Testing for gluten

Has anyone Docs suggested being tested for gluten to determine if the inflammation is causing the elevated blood work...However, an accurate one cannot be done...

Has anyone Docs suggested being tested for gluten to determine if the inflammati...

georgedog

•5 years ago

13 Replies

Just reporting in ...

Hi Everyone, Don’t know if you remember my swinging pred up/downer after a flare and great advice from the experts on here. After a couple of weeks since last...

Hi Everyone, Don’t know if you remember my swinging pred up/downer after a flare...

LemonZest11

•5 years ago

8 Replies

New Med for PMR?

Just a quick note about myself first. I’m 51 years old (live in the US) and was diagnosed in late June (symptoms started in May). The Rheumatologist, still...

Just a quick note about myself first. I’m 51 years old (live in the US) and was ...

Dogloverx8

•5 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2019

Breaking the Pred Rules!

Big time flare up so now on 7.5 😱 update

Good blood test results... but what does it mean?

Truro Meet Up Group.

Good visit with ophthalmologist.

Changing from Prednisolone to Hydrocortisone?

Knee replacement

Pred at lunchtime & flu

Is it a flair or dur to tapering?

Cold sore on nose

See ophthalmologist today November 8 for double vision exam hoping to have good news

Got heartburn on 60 mg prednisone

Reddened nail beds - pred side effect?

Update, sorry it's been so long.

No Wonder I’m Lacklustre

Knee Replacement

Have I got PMR?

Prednisilone

Fundraising - we need your Support

UK Cannabis trial to include chronic pain

Three Rays of Light, written by Prof. Bhaskar Dasgupta

Is it prednisolone or prednisone interfering with diabetes

Thank you for your support

Taper after going from 1.5mg Pred to 4.5mg

Brufen is helping

Upset by new Rhumy

cataract surgery lenses

Testing for gluten

Just reporting in ...

New Med for PMR?

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