Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,232 posts

All posts for July 2019

Fat face

Thanks for your replies - I am watching weight but this appeared overnight on Sunday - I think I have read it is water retention rather than fat so this...

Thanks for your replies - I am watching weight but this appeared overnight on Su...

Daffodilia

•5 years ago

8 Replies

flares

thanks for your reply, I do flat walls now, I also play bowls but leave aday or two inbetween, some days quite rarely I feel quite good and I think It's...

thanks for your reply, I do flat walls now, I also play bowls but leave ad...

Sailormo

•5 years ago

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Unpredictable stages of recovery

This is good new story. We need those as well. PMR from May 2018, with severe tired ness. About a month ago, when I was on 1 mg prednisone the tiredness went...

This is good new story. We need those as well. PMR from May 2018, with severe t...

Kaaswinkel72

•5 years ago

6 Replies

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Fat face

Aaarrgghh does acupuncture help the fat face thing! Just been struck down after 8 months on preds - hate it and painful too

Aaarrgghh does acupuncture help the fat face thing! Just been struck down after ...

Daffodilia

•5 years ago

9 Replies

Previously Posted Tapering Prednisone Schedule

Hello, Someone posted a Prednisone reduction schedule around mid June of 2019, that I believe was developed by a Swedish physician and it was an up and down...

Hello, Someone posted a Prednisone reduction schedule around mid June of 2019, t...

Nurse-162

•5 years ago

4 Replies

PMRGCAuk North East meeting

Just a small reminder that we host our second meeting in the North East next Tuesday 16th July 1.00-3.30pm at St. Aidan’s Parish Church Hall, Front Street,...

Just a small reminder that we host our second meeting in the North East next Tue...

Skinnyjonny

•5 years ago

1 Reply

Problems with Alendronic Acid

Hi, Just looking for some advice as regards taking alendronic acid or risedronate acid. The story so far: I have had GCA for 11 years. I went along to a talk,...

Hi, Just looking for some advice as regards taking alendronic acid or risedronat...

Stkeyna

•5 years ago

4 Replies

Recent Dexa scan results

I was diagnosed with PMR in April 2018 and then GCA in June 2018. I needed 25mg of prednisone to control symptoms at first, the i took 60 mg and then 65 mg...

I was diagnosed with PMR in April 2018 and then GCA in June 2018. I needed 25mg...

Viola1

•5 years ago

4 Replies

New Support Group

New Support Group Hi I am Tom, the Support Group Organiser for the new Whitstable PMRGCA Support Group, we had our first meeting on 21st June 2019, our next...

New Support Group Hi I am Tom, the Support Group Organiser for the new Whitstab...

T2305

•5 years ago

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flare ups

Hi thanks for your advice I had been tapering 1mg month after seeing rhemuy.and when II felt bad I went back 12mg for a couple of days but it couldn't have...

Hi thanks for your advice I had been tapering 1mg month after seeing rhemuy.and ...

Sailormo

•5 years ago

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Remission from PMR

If it takes 5.9 years to get in remission from PMR, is that from the time you start on Prednisone or from the time when you started experiencing symptoms of...

If it takes 5.9 years to get in remission from PMR, is that from the time you st...

Summerrental

•5 years ago

27 Replies

ninevoices' short story competition

ninevoices' short story competition is raising funds for PMRGCAuk. You have to be in it to win it as they say so please take a look at:...

ninevoices' short story competition is raising funds for PMRGCAuk. You have to ...

BromleyPen

•5 years ago

5 Replies

Off Piste 2 BACK GARDEN RAISED BEDS.

Just to let you see the raised beds, 2 years down the line. It is raining today so photo is a bit misty. Bed on left hand side separates the hard stand and...

Just to let you see the raised beds, 2 years down the line. It is raining today...

jinasc

•5 years ago

9 Replies

What to do about hip bursitis?

I recently tapered down from 15 to 12.5 mg of prednisone and things seemed to be going well. However, on Thursday I went for a hike and I guess it was either...

I recently tapered down from 15 to 12.5 mg of prednisone and things seemed to be...

Navion

•5 years ago

17 Replies

Reducing pred

Hi looking for advice. Trying to reduce pred down to 10 as advised for cat pet scan .reducing from 40 for suspected GCSEs , negative biopsy but blood test...

Hi looking for advice. Trying to reduce pred down to 10 as advised for cat pet s...

Devoid

•5 years ago

9 Replies

flare ups

another flare up forgot meds for one day was on holiday found them in my pocket next day,bad pain bad tummy,had to rest a couple of days the heat didn't help....

another flare up forgot meds for one day was on holiday found them in my pocket ...

Sailormo

•5 years ago

3 Replies

Managing PMR after 1 year

I was diagnosed with PMR in late June 2018 after being told I just had a stiff back by the GP and by a Physio. I was given back exercises to do but found it...

I was diagnosed with PMR in late June 2018 after being told I just had a stiff b...

Bignorhill

•5 years ago

14 Replies

Statins and PMR: Thought you might be interested in this - especially if you take statins

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3402515/#s1title This is a study from The Netherlands about the association between statin use and the development...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3402515/#s1title This is a study fr...

PMRpro

Ambassador•5 years ago

23 Replies

Goodbye and thanks for all the fish

Well, yesterday was the appointment with my Rheumy which because of my first consultation going so badly, I held out no great hope for as he had talked over...

Well, yesterday was the appointment with my Rheumy which because of my first con...

Theziggy

•5 years ago

20 Replies

Ying Yoga

Hi everyone, I have had pmr for about three years and I’m now down to 1mg of Pred. Is anyone else doing Ying Yoga.? Sometimes I feel really good, other times...

Hi everyone, I have had pmr for about three years and I’m now down to 1mg of Pre...

poly-susie

•5 years ago

5 Replies

Update on pmr or not?!

Back to rhuemo today so that they could do pain score to put me forward for biologics.was meant to withdraw completely from steroids before this test but...

Back to rhuemo today so that they could do pain score to put me forward for biol...

Mollieharry

•5 years ago

1 Reply

GP Visit

Recently I’ve been very breathless and today I saw my GP about it only to learn that I’ve got a heart problem. On top of PMR! What ever will it be next? So...

Recently I’ve been very breathless and today I saw my GP about it only to learn ...

stellafmdm

•5 years ago

19 Replies

Waiting for diagnosis

Hi. I had a temporal artery biopsy on Friday, results in 3 weeks. My esr and crp were both normal My doctor is convinced I don't have gca and I think the...

Hi. I had a temporal artery biopsy on Friday, results in 3 weeks. My esr and crp...

Linda3009

•5 years ago

33 Replies

New to this

Diagnosed with PMR in May 2019 Not sure how long before diagnosed I may have had it . swollen finger since early 2018 Frozen shoulder February 2019 Both...

Diagnosed with PMR in May 2019 Not sure how long before diagnosed I may have had...

Captinron

•5 years ago

8 Replies

Bad day today should I up my Prednisolone

Started on 40 mgs of Prednisone last December. My doctor has me reducing every 5 weeks, so I am now on 7 mgs. I have coped quite well, but today have very sore...

Started on 40 mgs of Prednisone last December. My doctor has me reducing every 5...

Wayfair

•5 years ago

4 Replies

Slowly reducing from 2.5-2mg need some advice please

Hi everyone one hope things are improving for you all. In my 3rd year PMR and taking it slow but not sure if this is a slight flare or not. Since about March...

Hi everyone one hope things are improving for you all. In my 3rd year PMR and ta...

9lives

•5 years ago

12 Replies

All ok but.......

Diagnosed March 2018 PMR - 10 Mg prednisone. Severe claudication in right calf, very weak pulse. Re-diagnosed oct 2019 GCA , Vasculitis 60 mg...

Diagnosed March 2018 PMR - 10 Mg prednisone. Severe claudication in right calf, ...

aladymo

•5 years ago

30 Replies

Alonderic Acid alternatives help

Cannot tolerate Alendronic Acid. What are the alternatives and has anyone tried them and have they been successful please?

Cannot tolerate Alendronic Acid. What are the alternatives and has anyone tried ...

Wayfair

•5 years ago

19 Replies

Off Piste and for Poopadoop

Here goes, raised bed one day after it had been put in. I have another two in the back and two in the front. Wow it worked, I have learnt something new once...

Here goes, raised bed one day after it had been put in. I have another two in t...

jinasc

•5 years ago

26 Replies

Three lines of numbers and letters.

Can anyone tell me why I am getting this with every message I get and what can be done to get rid of it. It makes no sense and just gets in the way. It has...

Can anyone tell me why I am getting this with every message I get and what can b...

prunus

•5 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

Fat face

flares

Unpredictable stages of recovery

Fat face

Previously Posted Tapering Prednisone Schedule

PMRGCAuk North East meeting

Problems with Alendronic Acid

Recent Dexa scan results

New Support Group

flare ups

Remission from PMR

ninevoices' short story competition

Off Piste 2 BACK GARDEN RAISED BEDS.

What to do about hip bursitis?

Reducing pred

flare ups

Managing PMR after 1 year

Statins and PMR: Thought you might be interested in this - especially if you take statins

Goodbye and thanks for all the fish

Ying Yoga

Update on pmr or not?!

GP Visit

Waiting for diagnosis

New to this

Bad day today should I up my Prednisolone

Slowly reducing from 2.5-2mg need some advice please

All ok but.......

Alonderic Acid alternatives help

Off Piste and for Poopadoop

Three lines of numbers and letters.

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