A letter to my Chronic Pain and Fatigue from Auntie Bleary-eyed aka the Bin Lady!!

[Blearyeyed]

Dear Chronic Pain and Fatigue,

If you are planning to spend the whole day with me could you at least make me a coffee and bring me some biscuits!

Thank you for being my least favourite wastes of time ,

Feeble hugs ,

Auntie Bleary-eyed XXX

😋😂😂😂😂😂😂😂😂😂😂😚😥

Have a great weekend to all those with equally high maintenance invisible friends !😘😘

UPDATE TO ALL

I have stopped replies now on this post to give priority to other posts for the day , but please do read through the replies below if you want a little therapeutic laughter .

And thank you to all my forum friends whom gave me their support with funny comments and cheer for managing to help me get back some of my energy again.

Have a positive weekend Everyone xxx

[Yellowbluebell]

Are you ok? PM mexx

[Blearyeyed in reply to Yellowbluebell]

Yes , the funny thought just came into my head and I thought I'd share it as I bet it's how many of us often feel.

Or am I the only one that talks to their symptoms ?!!😨😲😝

[Yellowbluebell in reply to Blearyeyed]

Why would you assume the rest of us are as mad as you?!! I doubt you were ever normal. Mind you as your mad life usually mirrors mine in far too many ways that means I am heading down the same route!!!!

[Blearyeyed in reply to Yellowbluebell]

Unfortunately shouting comments like that at your chronic illnesses has about as much affect as hinting for your OH to put the kettle on.

Nothing forthcoming , not even an old digestive!!!😋😂😂😂

[scats in reply to Blearyeyed]

Low carb of course!

[Blearyeyed in reply to scats]

I think on this occasion a red cross emergency parcel of a full packet of dark chocolate hobnobs may be the only remedy!

Do you think if I phone up for an emergency house call from the GP they might be available on the NHS ?

I think even my Doctor could manage to fill a prescription of a pack of choccy biscuits and a latte!!😋😂😂😂😂

[PMRpro Ambassador in reply to Blearyeyed]

I doubt it's in their budget ...

[Blearyeyed in reply to PMRpro]

Knowing my luck they send me a cup of weak tea and a custard cream!

[Yellowbluebell in reply to Blearyeyed]

Your gp doesnt even know what a prescription pad is let alone know how to fill it out.!!

[Blearyeyed in reply to Yellowbluebell]

That's why I thought they might do better with a shopping list and a trip to Sainsbury's!😂😂😂

[fmkkm in reply to Blearyeyed]

My new delicacy, blackberries are in right now so I break off a piece of dark chocolate and pop it in my mouth with a blackberry 😋

[Blearyeyed in reply to fmkkm]

If only I could get up enough energy to go and look in the fridge 😘😂😂😂

[fmkkm in reply to Blearyeyed]

Ha, I’m laying on the couch right now!

I’ve had a flare the past couple of days and I feel as bad as I did 2 years ago. I did it to myself too, such a slow learner here!

[Blearyeyed in reply to fmkkm]

At least I can blame the trip a few days ago to the hospital.

Its really annoying when you can't blame anyone else.

Hope you feel a bit better soon , keep eating the chocolate and blackberries xx

[Yellowbluebell in reply to fmkkm]

My biggest problem is I have not got the will power to stick to one blackberry and a tiny piece of chocolate.

[fmkkm in reply to Yellowbluebell]

Six is about the right amount 😂

[Yellowbluebell in reply to fmkkm]

No, still not enough willpower to stop at 6!!

[Blearyeyed in reply to fmkkm]

What, Punnets?!!😁

[DorsetLady PMRGCAuk volunteer in reply to Blearyeyed]

No - chocolates!!

[Blearyeyed in reply to DorsetLady]

I did see a funny slogan a few weeks ago that said ," I am just trying to establish how many chocolates are too many , have eaten 23 and I'm still counting!"

[DorsetLady PMRGCAuk volunteer in reply to Blearyeyed]

I don’t think I could manage that........but????

[PMRpro Ambassador in reply to DorsetLady]

Depends how big they are!!!

[Yellowbluebell in reply to DorsetLady]

If they are Ferrero Roche I can eat tons!

[Yellowbluebell in reply to Blearyeyed]

Punnetts and bars sound more like my attempt at eating either of those separately.

[Louisepenygraig in reply to Blearyeyed]

Men seem to need to be asked directly. Sad isn't it. If I was nearer, and not melting into the pillows on my daybed in the cabin, I'd bring some to you. 😊

[Blearyeyed in reply to Louisepenygraig]

That's really kind of you , perhaps we could invest in some catapults , we might just be close enough to sling the odd bourbon cream across the Menai Straits!

Then again , if we had the energy to take part in that level of athleticism we probably wouldn't need the assistance😂😂😂😘

[Louisepenygraig in reply to Blearyeyed]

It would have to come over the Straits and part of the Carneddau mountains too. Do the power lines from Wylfa go anywhere near you? I've sometimes thought it would be good to make use of them. I could probably get from where we live to the other side of the Conwy Valley if I could fit a zip wire to them 😁

[scats in reply to Louisepenygraig]

Now you're as mad as she is . It's catching!

[Louisepenygraig in reply to scats]

I've always been mad, I just don't show it very often 😁

[scats in reply to Louisepenygraig]

Perhaps she caught it from you!

[Blearyeyed in reply to Louisepenygraig]

Pretty close , I think we should give it a go!😂😂😂

[Louisepenygraig in reply to Blearyeyed]

I'll work on it. Of course we might need to get the power switched off first 😁

[Yellowbluebell in reply to Blearyeyed]

So who's knickers elastic are you going to use? There wouldn't be enough in yours!!

[Blearyeyed in reply to Yellowbluebell]

I've got a good pair of running tights that might do the job , it's not like I'm going to be able to use them from anything near to running any time soon😂😂😂

[Yellowbluebell in reply to Blearyeyed]

My knicker elastic is under stress and doesnt have much stretch left in it tbhxx

[stellafmdm in reply to Blearyeyed]

My usual comment is d*** you PMR

[Longtimer in reply to Blearyeyed]

I don`t talk nicely to mine...at the moment it`s very choice language....but I feel a tinsy bit better afterwards...

[PMRpro Ambassador in reply to Longtimer]

A study did find that swearing does relieve the sensation of pain.

Does anyone else develop PMR Tourettes syndrome? If I flare my language deteriorates significantly!

[Blearyeyed in reply to PMRpro]

I don't swear so much but my form of PMR Tourettes involves words of more than two syllables and some extremely cutting asides!

[Yellowbluebell in reply to PMRpro]

My language is usually just above sewer level when I blow a gasket!!

[Longtimer in reply to PMRpro]

I will tell OH that....he never swears..but then thank goodness he doesn't have reason to.....I will carry on then!...

[PMRpro Ambassador in reply to Longtimer]

My OH is a real prissy sort ...

[Blearyeyed in reply to PMRpro]

I love you Brains 😘😘😂😂😂😂

[Yellowbluebell in reply to PMRpro]

Mine doesnt swear either which annoys him when I do!! Sometimes I do it just to annoy him.

[PMRpro Ambassador in reply to Yellowbluebell]

Yes - all it needs is a "don't use that sort of language" ...

[Purplecrow in reply to PMRpro]

🤣🤣🤣

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Well that was my excuse....but what can I blame now??😉

[Blearyeyed in reply to DorsetLady]

You can say your swearing in sympathy and doing your bit for the cause!😘

[PMRpro Ambassador in reply to DorsetLady]

Think Bee has an answer ...

[Blearyeyed in reply to Longtimer]

Pretty sure swearing at your symptoms is one of the top remedies on the list of self care tips to help speed up your recovery! Have a top weekend x

[Longtimer in reply to Blearyeyed]

Thank you, and yourself....

[scats]

I'm sorry you are suffering Bee, you don't deserve this.

How long can you wait for the coffee and biscuits? It might take me a day or two to wobble that far. Must get Freya on the job!

I wish you a long and peaceful sleep to recover

[Blearyeyed in reply to scats]

Don't worry , I just shouted that earlier at my symptoms ( which are your usual nonesense we sometimes have ) it made me giggle , so I thought I'd share it , in case anyone else fancied shouting it at their symptoms the next time they get the Deathly Fatigue.

With any luck they'll get a better response than me , I'm still waiting for my invisible illnesses to bring me that coffee!!😋😂😂😂😘

[PMRpro Ambassador in reply to Blearyeyed]

But does it WORK???????

[Blearyeyed in reply to PMRpro]

Give it a try and see !

I have not had any luck yet but we might need a bigger cohort of PMR / GCA members to take part to get any truly significant data!! 😋😂😂😂

[scats in reply to Blearyeyed]

We could design an experiment...

1/3rd of us will shout and swear

1/3rd will talk nicely to our pain

1/3rd will ignore it

Any bets as to which will be most effective?

[Blearyeyed in reply to scats]

*#@@&****

[Yellowbluebell in reply to scats]

Lets face it scats we are unlikely to be able to wobble out of Sussex let alone get to wales!!

[scats in reply to Yellowbluebell]

I can barely make the end of the garden!

[DorsetLady PMRGCAuk volunteer in reply to scats]

Not a problem.....but you might regret the aftermath.💨💨🤣😂🤣

[Hidden]

I'm with you on that blearyeyed , I'm sure I get more sympathy from it than I get from the wife 🤔🤗😋

[Blearyeyed in reply to Hidden]

Ahh! But at least your wife might be willing to put the kettle on and bring you a biscuit , the Fatigue as yet has not been that generous😂😂😂

[Hidden in reply to Blearyeyed]

Yes, I'm with you on that 🤗

[Yellowbluebell]

So not only are you as mad as a hatter but it would seem half the forum is as well.! Yay!!

[Blearyeyed in reply to Yellowbluebell]

Yep , and we can't even blame the GCA/ PMR !!

[scats in reply to Blearyeyed]

Why not? They get blamed for everything else!

[Blearyeyed in reply to scats]

My madness is my own , I have to share enough with the PMR , I'm keeping my lunacy all to myself ( except for giving you all a scary peek in through the Asylum curtains of course!)👯😱😰😰😜😝😂😂😂😘

[PMRpro Ambassador in reply to Blearyeyed]

I wonder if I need to speak to the research team looking for outcome criteria. Is this relevant to whether a treament works???

[Blearyeyed in reply to PMRpro]

If it's not we may have just invented a new area of study!

[Blearyeyed]

I just told YB my husband came in a little while ago and walked straight up the stairs shouting that he was pooped after work and was going to go and have an hour's lie down.

He was that quick I didn't even have time to shout him.

So there's the proof that both Fatigue and your Family are no good at making you a cup of coffee!!

Luckily , the comments here have boosted my energy a bit and I may just manage to make it to the kettle myself .

PMR/ GCA Forum friends 1 Fatigue 0

Looks like we're beating it again chums!!🙆🙆🙆💃

[Asbeck in reply to Blearyeyed]

The problem is the cream! There are coffee makers like Nespresso and Krug that can make coffee from a pod and are not messy. You can have the machine next to your bed. For the cream--maybe one of those dorm refrigerators that is about a foot square, loaded with cream and chocolate, and heck, why not, macarons!

[PMRpro Ambassador in reply to Asbeck]

Coffee in Germanic countries is always served with little UHT tubs of cream - they try to give it to me for tea, bleugh. But you can have it next to the coffee machine...

[Blearyeyed]

Success!!!!

I have coffee and three of my daughter's homemade macarons so I'm sure I'm winning today!!

[Yellowbluebell in reply to Blearyeyed]

Thank god for that because you would have a long wait for us to get there.

[Blearyeyed in reply to Yellowbluebell]

And I thought you were going to use Goddess Freya Freight for an express delivery , good job I did manage to reach the kettle then , I even made a flask , just in case 😋

[Yellowbluebell in reply to Blearyeyed]

Well it depends on how fast freya and the chariot would get there but it still take time just getting on the damn thing. If I push scats up she would then have to pull me in!! Can you imagine the resulting hysterics!!

[Blearyeyed in reply to Yellowbluebell]

Please provide video evidence on YouTube then we will all have something to watch when the Fatigue is getting us down . Chronic illness Comedy hour , as it could take that long for you to get in the wheels of fire!!😂😂😂

[Yellowbluebell in reply to Blearyeyed]

That's a very optimistic view considering we would need to lie down due to the giggling

[Louisepenygraig]

Well done! I know that feeling of not having the energy to get to the kettle all too well. When I'm in the cabin it's only about 10 feet away too!

[Blearyeyed in reply to Louisepenygraig]

I'm giving credit to the forum for giving me a boost of energy with the remedy of a little laughter , so well done to all of you xx

[Oumaof2]

As I start my day with tea and our Daily Digest, a big thank you all for the 'good craic' 😂🤣. A great way to start the day ... Hope you all have a positive weekend... 🌻

[Blearyeyed in reply to Oumaof2]

It's definitely the best way to start the day , with a laugh instead of a frown , perhaps we should all add it to our breakfast prescription , you can even have it at the same time as the Pred!

Have a positive weekend xx

[Thelmarina]

It’s Wimbledon. Relax in a shaded room, put your feet up and enjoy - strawberries on one side, chocs on the other and a cool drink with a straw...😀

[Blearyeyed in reply to Thelmarina]

Oh Yes , that would have been the plans for the weekend even before the GCA !!

Of course , the post Wimbledon Party Games are bit above me just now , but I could always sit like a lines person , as long as I don't drop off to sleep over the blanket net!

Enjoy the Finals xxx

[Lizwillis]

Thank you so much for such a lovely giggly post! I have read bits out to my OH and have been laughing, not something that happens too often with all this rubbish that is going on with my body. He just went to the Post Office and asked if there was anything I wanted. Well, of course there is! A new body, if you don’t mind! I keep asking but nothing happens! Maybe I am asking for too much and I should just start with asking for a coffee and a choccy biscuit! Start small! Anyway, thank you to all of you for such an uplifting start to the day!

[Blearyeyed in reply to Lizwillis]

Don't mention it , getting the uplifting support from everybody whom responded to the post yesterday was as therapeutic to me as it has been for you.

I even managed to raise up enough stamina to get my own coffee and a macaron after everyone's help , which was a good job as neither the Fatigue or my OH were being particularly forthcoming with a brew!!

PMR and all Chronic Illness definitely needs tackling with small steps , and as neither of us seem to be having much luck filling our orders for a new body at the Post Office or via Amazon , a little laughter and a welcome cuppa will just have to do for now.

Laughter is definitely the best medicine , and thankfully you can even take as much as you want while on Pred , so let's keep giggling our way to feeling that little bit better until we can put this high maintenance invisible friend to bed . Take care , xx

[Lizwillis in reply to Blearyeyed]

You are so positive and cheerful! Thank you again! As you so rightly say, the fatigue as much as anything is so flipping debilitating isn’t it? I also loved the little dialogue with amazing PMRpro about swearing! So, that’s OK now! It’s all part of helping us to recover! Love it! What an amazing supportive lot the forum is, with snippets of useful information to help us all cope. You are all so helpful. You cheered me up no end!

Hope you have enjoyed your hard earned coffee and macaroon! I have just managed to make myself a small coffee too. Not sure about lunch though! Am having another little sit down!

Hope everyone has a reasonable weekend given that we are living with a very unhelpful “friend”.

[yogabonnie]

well said! Hope you feel better soon!

[Blearyeyed in reply to yogabonnie]

And the same wishes for you , have a positive weekend with a little health giving laughter along the way x

[HeronNS]

I can reply?

😤

[Blearyeyed in reply to HeronNS]

You could be the last one , you could have the last word , as it's you , I don't want you to be steaming , it would not be good for you !! 😋😁

[HeronNS]

Sorry, thought it was the hug emoticon, not the steamed one. So tiny on my tablet. 😃

[Hidden in reply to HeronNS]

😂😂😂