Update on OH: My dear husband is still in Yeovil... - PMRGCAuk

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Update on OH

My dear husband is still in Yeovil hospital and waiting for a bed to become available here in rehab. As a matter of interest his CRP -which was 170 at the beginning - is 111 now. I know this stands for C-Reactive Protein and normal is in the range 0-8. So will this affect when they think he is fit to travel?

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Hi Prunus

Does he have PMR/GCA or is he in hospital for another reason?

MrsN

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No he has no PMR/GCA to my knowledge. It was yet another catheter infection which caused me to ring for an ambulance for him. I have found though that on these occasions they do monitor his CRP. I have also found that if we ignore his symptoms he gets sepsis.

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His CRP will be raised if he has an infection so it will depend really on what the Doctors think.

Good Luck πŸ€

Wishing him well soon

MrsN 🌷

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I'm reading into that then that although he has been moved the infection has not all cleared. The last CRP he told me was 111.

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My husband has a catheter at the moment and is continually fighting infections that make him really ill. After your mention of sepsis I will be watching him more closely, especially as the last GP he saw was reluctant to give him a second antibiotic.

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We saw a Consultant who has us keep a course of antibiotic permanently in the house - he said keep it in the fridge.

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OH is having trouble getting to see a consultant his appointment was for November when the catheter was fitted in May. He can't wait that long, as it's affecting his mental health as well, so we decided to bite the bullet and see a consultant privately. He has an appointment for tomorrow, wish us luck!

Wishing your husband a speedy recovery.

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I most certainly wish you luck. Like the Dr said to me just before I came home - where there is a foreign body in the body there is an infection.

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It's probably old news for you....but I will write it anyway....my friend who worked as a nurse for 50yrs, a lot with older people, and nursed her hubby for 10plus years always asked for Flipflov or self retaining catheters as there were less infections.

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That's what OH has, says it's much easier to deal with and more comfortable because you don't need a bag. He did need to be trained in how to use it.

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She used to go mad as when he had to go in the hospital they used different one and he got infections again.

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Seems to be a common problem!

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I have never heard of them - so will enquire. I did not even know there were catheters that lasted different lengths of time. They had changed his catheter in rehab and noone told us it was only an eight week catheter so it went twelve weeks and when the nurse came to do it described she described it as "encrusted". That was a few years ago and you can imagine my feelings.

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Yikes. Terrible. I bet you ask now.

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I most certainly do but I shouldn't need to be in the loop if people did their jobs properly and communicated.

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Exactly. I always ask as must as I cAn now.

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So do I but it is much better face to face.

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Yes. I have got my finger crossed that a bed is made available near home asap!!

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To be honest scats, even though I am paranoid about sepsis I didnt think to suggest you keep an eye on OH for that. I could kick myself.

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You'd never manage, let me do it for you!

Actually I have been watching closely but he's being very careful about cleaning etc. He's been here before and knows what he's doing.

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I know he has and that's brill but I should have thought about it especially as he didnt respond to first set of antibiotics!

You could try kicking me but you would only end up on the floor yourself!!

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Probably true!

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Then you would need me and OH to get you back up and I would be laughing too much!!

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It would be worth it to see him laughing!

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He hasnt had a lot to laugh about recently bless him.x

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I could do it for you , would you like me to use the normal foot of the one with the brace on it, oh no , hold on a minute , better not I'd probably put a hip out!πŸ˜‚πŸ˜‚

Can't believe we are having such a frivolous conversation on a thread that began discussing sepsis , just hope it's helping Prunus raise a smile from her hospital worries as much as it is cheering us. 😘😘😘

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It was a natural progression from a serious conversation to a let's cheer ourselves up.

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It made me laugh.

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πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚ I'm picturing it now , you to are in a very jocular mood today , jolly good anything to raise my spirits is gratefully received.

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Hi prunus, I presume it will depend on whether high CRP is a significant aspect of his illness or something expected to be up but has no impact on the event that has occurred. I would be contacting the hospital ward to ask them if and when it has an impact. Not really helpful so hopefully someone will be able to.help more with more detail of his illness. 🌻

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Yes that is helpful. Before I left the Dr had indicated she would let him travel if it was 50 or below.

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Hope the infection/inflammation will start to drop more and you can get him home. A friend's husband had similar problems but fortunately not when away from home. Have the hospital organised support him being in Yeovil? I know Yeovil area quite well as my sister lived there when she served in the navy and now lives near Taunton.

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They have moved him from the nineth to the seventh floor. He has a good view of Yeovil including St John's Church. As we understand it we are having to wait until there is a bed available at our local hospital in West London. It will be a long drive for him. I don't know if they want him stronger to undertake it.

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At least he won't be driving it. It's a nice area. Just a pity he is in hospital!

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It's a lovely area - so different from West London - lovely rolling English countryside and beautiful gardens. When in Wells I saw over forty tractors -there must have been a rally -never seen so many in my life.

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Yes it mostly rural. My mum and dad and family hail from Yorkshire but 2 sisters ended up glos and Somerset and late mum and dad near Burnham on sea.

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It will depend on whether things are improving and whether he is stable. Transfers are done by ambulance with a paramedic on board so providing someone is stable they can travel. The doctor on the ward is the person to ask - nursing staff won't know. They will also want to send him direct to rehab so that is also significant, when a bed becomes available.

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One of the problems seems to be he has not seen a doctor. I last saw a doctor just before we came back. At that point he was not strong enough to bring. The distance is too far not to have at least one stop. Will one ambulance bring him all the way or will they change on route say half way?

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It is usually one ambo but it depends on the distance and how well the patient is. Sometimes it is a private one though my daughter does them out of region with Yorkshire Ambulance.

I'm sure a doctor will have seen him on the daily ward round and be keeping an eye on his progress.

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I think your oh blood pressure and oxygen levels will maybe need to be stable. Hope everything goes ok. X

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Thanks for that.

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If the CRP is coming down that will be a relief for both of you , at least you know that things are turning in the right direction and he can be back near to you soon.

If he does stay there longer , until the CRP is further down , although sad for you and a bit miserable for him alone , you know that it might be better for him in the long run.

They probably don't want him to move too quickly until the issue is properly managed just to reduce the risk of infection from him going off ward and outside.

He's probably still very tired too and even a short road trip might wear him out.

I'm sure he will be all the fitter with the slightly longer wait when you see him again.

Is there the possibility you could Skype ? Does he have a smart phone or a tablet with him ? You can get WiFi codes from most hospitals these days , some of them even have the facility through the TV , just a thought .

Wish him well xx

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Thanks for those thoughts. All he has with him is his mobile which he can ring or text with.

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