Anyone with PMR have/had this? Trying to guesstimate which way this is going...
Synovitis in finger joints: Anyone with PMR have... - PMRGCAuk
Synovitis in finger joints
Had it years prior to PMR. Orthopedist gave me cortisone injections and it eventually resolved. I’m now thinking that this may have been an early autoimmune symptom.
I had tenosynovitis in my fingers as an early symptom of PMR - it did eventually fade once I was put on pred (after 5 years) but took some months and it returns if I reduce too far and start to flare or if I use my hands a lot. Also had it in my feet.
Don't know what synovitis or tenosynivitis are. But am interested to learn as I have raised, hard areas on my left hand and little finger.
It could be RS3PE which is related to PMR. Increasing pred would help or just give it some time. I don't recomend steroid injections, tho my rheumy offered. see:
healthunlocked.com/search/p...
RS3PE
I had it about a year ago, as I was reducing to 3mg...Had to go as high as 9mg to take care of it. I still have it once in a while and try to massage/stretch the joint. It usually helps. I think our immune system gets "restless" as we reduce pred and has to do something.
I have had this in both of my hands and wrists too and it came on about 2 months into my debilitating PMR. I think Gifford7 might be on to something because when I looked up this disease here is something I found it said; "The main differential diagnosis of RS3PE is polymyalgia rheumatica (PMR). Despite the diagnostic symptoms of PMR (pain, stiffness and weakness affecting the proximal joints mainly shoulder and pelvic girdle), a prospective study showed that RS3PE could well be associated with PMR or in fact part of the same disease process. However RS3PE has never been described in association with giant cell arteritis unlike PMR."
This is where I found this; gmjournal.co.uk/rs3pe-syndrome
My hands and wrists are getting better now after 2 months of hell. I could not use them. I couldn't pick of a coffee cup without great pain and using both hands. Then with the PMR and not being able to get up out of a chair easily because my hands and wrists could not be used to help me get the momentum to lift up my body from the seated position either!
I praise God that all things are getting better now and I am at 7 mg. at 4 months in from acquiring PMR March 22, 2019. Started at 20 mg. Pretty fast but I am on the ultra slow taper that is suggested by most on this site.
Thank you. You have had a bad time for sure. I see my rheumatologist in a few weeks and discuss the hand symptoms. Maybe she’ll add that to the list of what I might have!