Pred head or insomnia to blame: After starting pred... - PMRGCAuk

PMRGCAuk

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Pred head or insomnia to blame

Yellowbluebell profile image
75 Replies

After starting pred in Oct 18 my already dodgy sleep pattern deteriorated to raging insomnia. I thought I was managing with 3 or 4 hours sleep a night and the pred brain that has had me regularly put the milk in the oven!! In the early hours of this morning I discovered I was not managing as well as I thought!! I was downstairs having just made hot milk when I decided to feed the cat. I opened the pouch of food and promptly put it in my hot milk!! Not sure what was to blame but I was seriously never this scatty before pmr and pred.

Tonight I have taken everything I can take at one time so hopefully will actually get some sleep.

If I happen to reply to anything tonight please excuse what will.probably be a mad garbled response. YBB

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Yellowbluebell profile image
Yellowbluebell
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75 Replies
alvertta profile image
alvertta

I have done similar goofy things. Oops.

Longtimer profile image
Longtimer

Not long ago I asked my husband to get the lawnmower of the cupboard out to do the ironing.....reply, you'll have a job!..😏

You are not alone!

Yellowbluebell profile image
Yellowbluebell in reply toLongtimer

Glad its not just me. Couldn't believe the resulting mess!!

in reply toYellowbluebell

I just hope you didn't sup it!!

Yellowbluebell profile image
Yellowbluebell in reply to

No thank goodness!!

I hope you sleep tonight YBB you certainly deserve it 😴 💤 perhaps don’t make any midnight cups of tea 😉

Yellowbluebell profile image
Yellowbluebell in reply to

Staying out of the kitchen tonightxx

in reply toYellowbluebell

You can have my 6hours tonight. I try and hide my phone after sleepers....the drivel is awful after them😜

Yellowbluebell profile image
Yellowbluebell in reply to

Hopefully I will end up to conked out to respond.xx

Blearyeyed profile image
Blearyeyed

Sorry , haven't even read the post yet , and I will do with seriousness after I can stop laughing at how seriously hacked off your cat looks in this photograph.

If you feel like he looks my hugs go out to you xx

Yellowbluebell profile image
Yellowbluebell in reply toBlearyeyed

The rabbit was sat in her place under her tree this afternoon!! She was trying to force him to go!!

bunnymom profile image
bunnymom in reply toYellowbluebell

Rabbits are pretty determined. My Millie rules the cats and not kindly!

Blearyeyed profile image
Blearyeyed

Yes , I was chatting with you during part of your insomnia attack , I hoped you had managed to drop off when you stopped answering .

Clearly , you had just returned to the kitchen , to bang your head on the fridge after the cat food incident and the desperate thoughts that surrounded yet another sleepless night.

Hope you get to see your useful GP soon to get some added assistance , I know you are already trying to do all you can to help it yourself ( not just drinking your weight in warm milk !) So getting those drugs increased or changed may be the best option for now , at least until you can get a few nights of good quality sleep, then you can get a routine in place to work from again.

Don't forget nap in the day if you need to , just make sure that the rabbit doesn't pinch your favourite spot , as it clearly did that to your poor cat !

Big hug , and a midnight mallet xxx

Yellowbluebell profile image
Yellowbluebell in reply toBlearyeyed

I did have a nap this afternoon. I caught the rabbit in the raised flower bed the other day and her sitting on the wall watching him dig and as I got near she started a verbal tirade at me almost as if she was dropping the rabbit in the doo doo!! Other days they will happily lay together!

Yellowbluebell profile image
Yellowbluebell in reply toBlearyeyed

You and that mallett!!

markbenjamin57 profile image
markbenjamin57

As far as I'm concerned, all mad and / or garbled responses welcomed. It helps some of Us Lot to see the lighter side.. ;-) :-D

Snowy12 profile image
Snowy12

I hope you sleep tonight. Your cats look gorgeous please post a picture of the rabbit too one day. Sweet Dreams 😴

Yellowbluebell profile image
Yellowbluebell in reply toSnowy12

Fingers crossedx

Blearyeyed profile image
Blearyeyed in reply toSnowy12

Pretty sure I can see one cat and one short eared rabbit in the photo Snowy , or am I seeing things again !!😂😂😂😍

HeronNS profile image
HeronNS in reply toBlearyeyed

lop-eared rabbit?

in reply toHeronNS

That’s what l thought too!

Blearyeyed profile image
Blearyeyed in reply toHeronNS

That's my bleary eyed for you !😋😂😂😂

Yellowbluebell profile image
Yellowbluebell in reply toBlearyeyed

Yes one lop eared bunny and one black and white cat!!

katiemills profile image
katiemills

The other day I put a tea bag in the dishwasher soap dispenser ( and turned it on) and a dishwasher capsule in my mug and poured boiling water over it . It was only when I went to pour in the milk that I noticed something wasn't quite right !😳

I started pred in October 18 and have always had trouble sleeping too , so I sympathise. Sometimes nytol and CBD oil are enough but I resort to zopiclone when I'm desperate 😖. I'm just thankful that I no longer have to get up for work or the school run !

Yellowbluebell profile image
Yellowbluebell in reply tokatiemills

I dont have to go to work either thankfully. I often lose the milk and it's usually in the oven for some reason! We gave our grandson before and after school quite a bit but luckily OH is good at good at getting up. I might forget yo pick him up of lose him on the way home!!

PMRCanada profile image
PMRCanada in reply tokatiemills

I tried zopliclone previously when I was going thru 3 challenging life events at once. Boy did it do the trick....so much so I loved it’s effectiveness almost too much. I was afraid I would become dependent so I never asked for a refill.

Years later when I developed PTSD from work, I didn’t want to take pharma medication, so I tried an indica strain of marijuana and it worked well. Fell and stayed asleep each night, no grogginess in the morning. I used it again at higher doses of pred. No available/legal for some on here, or morally not an option, but I do appreciate I can purchase and grow it here in Canada.

Blearyeyed profile image
Blearyeyed in reply toPMRCanada

Does that drug have a different name in the UK do you know , it might be the Brain Fog , but it's not ringing a bell for me at the moment?

Snowy12 profile image
Snowy12

Oh my word, that’s my eyes can’t seem to focus properly anymore. I honestly thought it was two cats and the one on fronts head was to the left out of shot!!!!!

I can see now a lovely lop rated bunny and rather bemused fluffy puss.

Talk about pred head and blurry 👀 lol 😝

Hope you managed to get some sleep 😴

Yellowbluebell profile image
Yellowbluebell in reply toSnowy12

When you said cats I did wonder that picture I had posted!! The puss was just grumpy because bunny had decided to sleep under her tree!!

Constance13 profile image
Constance13

Did it taste good?😂😂😂

Yellowbluebell profile image
Yellowbluebell in reply toConstance13

Hot milk and chicken cat food or dishwasher tea anyone?

Bfp1 profile image
Bfp1

With pred and zopiclone and other bits i totally unreliable to answer texts or speak. I find texts I didn’t know I had written - food I didn’t know I ate and once a raw onion that I had chopped! Now I take them n once I am in bed!!

in reply toBfp1

I hear you. I once baked a cake and didn't know I had ingredients for one. Only crumbs were left ..and one fat dog...so I am obviously generous in my zop hazed world. My sister says I wander round the house like a ghost. I find if I manage stress it doesn't hit quite so hard.

Bfp1 profile image
Bfp1

Gosh it’s so good not to be alone. Really and truly. Starting to feel part of a family who get me. I have just started infusions of cyclophosphamide monthly and weaker then ever. This forum is my go to friend xx

Yellowbluebell profile image
Yellowbluebell

It's nice to hear that the forum is working for people.YBB

Jackoh profile image
Jackoh

It’s very helpful to find other folk have the same/ similar problems with Pred head. There are certain items I have given up looking for! Can’t remember where I’ve put them and certain one day I’ll find them. The same pattern occurs with words- just can’t sometimes string a good sentence together. Either I’m looking at my husband with “help” look in my eyes or just say I really can’t remember what I wanted to say. Sometimes I’m frustrated other times I think I’ve become blasé.

Yellowbluebell profile image
Yellowbluebell in reply toJackoh

I have conversations and just cant find the correct word. I them try and describe the word I am looking for to OH who looks at me as if I have lost the plot, which is quite probable!!

Jackoh profile image
Jackoh in reply toYellowbluebell

Yes same here!!

in reply toJackoh

I was with a friend the other day and got about 1 out of every 3 words out of my mouth right - I was calling ducks, foxes. I turned and said if I say a word in the right place today let me know. A middle aged couple turned, laughed and said they knew the feeling. It can be frustrating but I decided to just accept that these things happen and as long as the word I cant find isn't FIRE! then that's ok.

Jackoh profile image
Jackoh in reply to

😂😂

Yellowbluebell profile image
Yellowbluebell in reply to

Shouting "hot burnie stuff" doesnt sound urgent really.

in reply toYellowbluebell

🤣🤣🤣

in reply toYellowbluebell

I remember being told that if you are being attacked it's best to shout fire rather than help. More people respond.

Yellowbluebell profile image
Yellowbluebell in reply to

Probably! My OH as an ex fireman would just head to it and leave me behind!

Blearyeyed profile image
Blearyeyed in reply toJackoh

The trick is to start looking for something else that you have also lost when you are trying to find something .

I always ring when I try to search for one thing in particular I find all the other things I thought I'd lost first.

bunnymom profile image
bunnymom

There was something I was searching for yesterday (as usual) and I said to my husband don't you think I'm getting better? I feel better. He says would you just listen to yourself. Oh well brain fog is the least of my worries anymore. I haven't found it by the way.

Yellowbluebell profile image
Yellowbluebell in reply tobunnymom

I try and plan my trips to the toilet with whatever else I need to do or get from upstairs unfortunately I either forget the other things I wanted up there or I go and get the things i want and come back downstairs only to remember I forgot to go for the wee!!

bunnymom profile image
bunnymom in reply toYellowbluebell

I understand exactly! And I feel so sharp! Denial I guess.

Blearyeyed profile image
Blearyeyed in reply toYellowbluebell

We are twins !!

Yellowbluebell profile image
Yellowbluebell in reply toBlearyeyed

We do have an uncanny link at times!!

Yellowbluebell profile image
Yellowbluebell in reply tobunnymom

Any clues to what "it" is or is that missing as well?

bunnymom profile image
bunnymom in reply toYellowbluebell

I've lost the charger for the hedge clippers. I have put it exactly in the same place for several years. Nowhere to be found.

Yellowbluebell profile image
Yellowbluebell in reply tobunnymom

Sounds like me. I swear blind it's in a certain place but when I eventually find it it's not where I would even consider putting it!! I think OH deliberately moves things just for his amusement!!

HeronNS profile image
HeronNS in reply toYellowbluebell

I lost my medical bracelet for a few days, days which happened to coincide with a lengthy road trip and overnights in another city. Fortunately no accidents, no need to worry. So the minute I decided I must have lost if forever I moved something, a book I think, and the bracelet was underneath it. In a place I would usually never put it down. I waste more time looking for things. Twice over the years I've even had sets of house keys returned to me by WarAmps. waramps.ca/ways-we-help/key...

I wish everything moveable I own could be tagged.

Yellowbluebell profile image
Yellowbluebell in reply toHeronNS

Sods law says it's in a place you wouldnt dream of putting it!!

HeronNS profile image
HeronNS in reply toYellowbluebell

Sometimes I find things in the first place I looked, just didn't look well enough!

Dewdrop456 profile image
Dewdrop456 in reply tobunnymom

Well I have lost my passport.

Im pretty sure I’ve put it somewhere in the house and know that the minute I pay for a new one I will find the old one.Im too good at hiding things from burglars that’s the trouble.In a terrible dilemma now about when to officially call it lost.

in reply toDewdrop456

I always lose things I a safe place. Chuck it in a drawer and pile stuff on it...I know where it is. The last time I put mine safe in my rucksack for next time. Who looks there to find it. Tut tut tut 🙄

Dewdrop456 profile image
Dewdrop456 in reply to

I think there’s 7 years left on it.Ive always been bad at storing really important things .I think I should use the “chuck them in a drawer method “too it works so well for everything else’!

HeronNS profile image
HeronNS in reply toDewdrop456

Do you remember when you last used it? Go from there - maybe it's with things from your last trip?

Dewdrop456 profile image
Dewdrop456 in reply toHeronNS

I didn’t use it to go on a lovely holiday mores the pity. I had to show it when I applied for a Nursing post back in January.The contract ends next week so I need to join the nursing bank and weirdly they need to see it again.But it’s lost.

Good suggestion though. I keep trying to think where I put it...

Yellowbluebell profile image
Yellowbluebell in reply toDewdrop456

I know it's probably daft but having worked in the NHS for a lot of years it's worth suggesting, did you get it back from when they copied it? It's probably in your employment file.!!

PMRpro profile image
PMRproAmbassador in reply toYellowbluebell

My thought exactly!!!!!

Dewdrop456 profile image
Dewdrop456 in reply toYellowbluebell

I have asked them twice.I don’t think that they have it as they scan it whilst one waits but I still can’t think of another place it could be .My birth certificate is with it.I ordered a copy of that as it was half the price of a passport and I needed something to join the bank whilst waiting for a permanent post.Its annoying.

Thanks for the suggestion.

PMRCanada profile image
PMRCanada

Would you consider vaping an indica dominant cannabis, or consuming a THC based edible? Works like a charm for me and has helped me through my dads death from cancer, work-related PTSD, and now Insomnia at higher doses of pred.

I understand not everyone is comfortable with consumption, or has legal access to this product.

So glad to live in Canada where I can grow and purchase it legally. Better for me than other forms of pharma meds, no groggy mornings.

I do hope you get some more rest soon as sleep deprivation can result in some wacky behaviour as has been described.

Yellowbluebell profile image
Yellowbluebell

Much as.i would consider it unfortunately I dont think the.real.stuff is legal.here. Not sure? If it was illegal I have a policeman SILwho would delight in me spending time in a cell!!

Blearyeyed profile image
Blearyeyed in reply toYellowbluebell

As long as he brought you some good quality narcotics from the evidence cupboard before heclocked the cell door you might get a full night's sleep!! ( Just joking Officer!!)😋😂😂😂😂😘

in reply toYellowbluebell

I just drive round til I see young lads in a car...Pull up, wind windows down and chat or ask for directions .....b4 that I could stand in my cellar or attic and second hand it.🤑

Louisepenygraig profile image
Louisepenygraig

I think I've been kidding myself that I didn't suffer too much from pred head. Until I recognised myself in so many of the comments that is!

Oumaof2 profile image
Oumaof2

As long as you don’t serve hubby the cat food pouch on toast as an early morning snack🤣. Last time I saw gp, I mentioned memory wasn’t great and putting things where no sane person would! He offered me a “little memory” test.... I chickened out🥴. Not ready to go there yet😂😂

Blearyeyed profile image
Blearyeyed in reply toOumaof2

So glad my GP didn't try and test me last year , as for Brain Fog moments this was one I have found hard to beat.

Got into the consulting room at the GPs , sat down and went completely blank .

I looked at the GP ( the only vaguely useful female doc at the surgery , thankfully ) and said , " Do you remember why I'm here?"

" Oh dear " , she said pity spreading over her face , " Let's start from there!"

Oumaof2 profile image
Oumaof2 in reply toBlearyeyed

😂😂🤣🤣

Yellowbluebell profile image
Yellowbluebell in reply toBlearyeyed

Why does that not surprise me? Oh that's because you are as daft as a brush!!

Stimpey profile image
Stimpey

Well about 10 years ago, not even on pred, I went to a Drs appt, had no idea why I’d made the appointment, between us we tried to think of reasons, eventually I said well while I’m here perhaps you could look at this mole which I’m sure is fine but my Oh at the time had said he thought had changed, and it turned out to be a melanoma. So thank goodness for the memory lapse on that occasion! I never remembered why I made that appointment. Serendipity!

Yellowbluebell profile image
Yellowbluebell in reply toStimpey

Someone was on your side that day.xx

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