Bit shaky after first taking pred

[Rosina1871]

Hi

Diagnosed in Jan 19. Currently on 10mg of prednisilone and doing ok. A little achy first thing until I’ve taken pred. However, within an hour of taking it, my heart rate increases and I feel “shaky” for about an hour. Both settle down during the morning. Anyone else experience this? Thanks Christine

[SnazzyD]

Hello, some of us certainly get this side effect. If it happens at the same time and wears off I wouldn’t worry about it. My after dose wobblies (shakes, racing heart, weak, uncoordinated and ‘drunk’) were so bad on high doses for GCA that I couldn’t function so I used to take it at a time so that I could sleep through it. It does improve as you go down the dose ladder. I changed to morning dose at 4mg on the advice of my Endocrinologist to help my adrenal function.

[Rosina1871 in reply to SnazzyD]

Thanks snazzy. Appreciate your reply. We all appear to have different quirky Side effects

[Hidden]

Hello Christine

Pred can affect us all in different ways, has this been happening since the beginning? Have you discussed it with your Doctor as l think you should.

Kind Regards

MrsN

[Rosina1871 in reply to Hidden]

Thanks for your reply. When I first started pred I just used to feel spaced out for a couple of hours. I’ve had the “shakes” for a few weeks. It does wear off but I will speak to my doc about it.

[Hidden in reply to Rosina1871]

Always the best idea, he may suggest splitting the dose or changing when you take it.

Kind Regards

MrsN

[Rosina1871 in reply to Hidden]

Thank you. Just had a blood test and waiting results. Doc said I could probably slowly taper now if all is ok x

[Hidden in reply to Rosina1871]

Fingers Crossed 🤞🏻 don’t forget to mention how it makes you feel.

[Rosina1871 in reply to Hidden]

Will do. Thanks again

[Hidden in reply to Rosina1871]

I called it the tremblies. Do you take any other meds?

[Rosina1871 in reply to Hidden]

I take thyroxine . Nothing else

[Hidden in reply to Rosina1871]

Do you take them together or outside the hour recommended. Also do you drink coffee or tea within 40mins or less of thyroxine? If I get my timings wrong I really get the shakes.

[Rosina1871 in reply to Hidden]

I take my thyroxin about an hour before breakfast and then I take the pred. I do drink tea shortly after taking thyroxin. Will try to alter that and see what happens. Thanks for your reply

[PMRpro Ambassador]

I have heard several people say something similar in the past. I used to have a strange wobble if I tried to go out shopping a few hours after taking my pred in the morning (enteric coated so that takes longer) which I dealt with by not going out at that particular time. It was obviously connected with doing a bit more physically. Another lady's GP suggested she took her (ordinary plain) pred at night - she slept through the wobbles (not Snazzy, someone else) so her GP filed the idea for future reference.

If it is only related to the time you took the pred I wouldn't worry to much - should it start to happen more randomly I'd push the GP to check it out.

[Rosina1871]

Thanks PMR . Does only seem to be related after I’ve taken pred

[piglette]

I take mine early in the morning and then go back to sleep, so get over the problem.

[Rosina1871 in reply to piglette]

Problem is, I would never get back to sleep!

[piglette in reply to Rosina1871]

I can’t get to sleep initially but once asleep if I wake up I can then get back to sleep quite quickly.

[Rosina1871 in reply to piglette]

Wish I could. If I woke up enough to take pills I would be lying there for hours trying to solve every problem in the world 🤔

[piglette in reply to Rosina1871]

I just listen to the World Service and let them do it!

[Rosina1871 in reply to piglette]

🤣

[PMRpro Ambassador in reply to piglette]

They aren't doing a very good job ...

[piglette in reply to PMRpro]

The good thing about the World Service it hardly ever mentions Brexit. One does hear the most amazing things about the most amazing people who never seem to appear in the normal media. In fact I have learnt an enormous amount from the World Service.

[HeronNS]

I've had this happen to me and originally it was nothing to do with pred, but as I think about it, it did occur more frequently when I started taking pred. The context was Sunday breakfast. Usually I'll eat a healthy breakfast, best meal of the day, then go about my morning activities. But on days when I went to church (8 am) I would eat then be mostly sitting down for about 45 minutes and part way through I would come over all funny - shaky, feeling like the blood was draining from my head and afraid I might faint. A few times I had to leave church and would be fine when I got outside into the air - and, by the by, started moving! After several episodes of this I thought it might be something to do with how much I ate before this period of inactivity. So I only have enough now to make my pred safe, and finish breakfast later. Always have my tea, though! And it hasn't happened since.

[Rosina1871 in reply to HeronNS]

Thanks heron. Interesting . Will make a few adjustments and see how I go