Hobby I can do

[Emerlad_70]

Can’t do much at the moment due to exhaustion so I thought I would sit quietly and see

[Soraya_PMR]

That is absolutely delightful. I’m impressed. 👏🏼👏🏼👏🏼

[SnazzyD]

Yes indeed! Since GCA diagnosis I’ve been forced to stop and look and properly see.

[Hidden]

Wow. Thats lovely. I am so rubbish with things like that. I can bish bosh bish paint so it resembles something. Its detail I struggle with. 🐅

[piggypink]

That's beautiful. I can't sew or knit anymore due to osteoarthritis. I find it very difficult to hold the needles. Life is so frustrating now. Please can anyone tell me how long this wobbliness and exhaustion lasts? I am down to 35mg of preds and due to decrease to 30 next weekend.

On a happy note.. the sun is shining, the sky is blue , the cuckoo has been calling all morning and I can see and hear.

Love to all xx

[scats in reply to piggypink]

Bit like how long is a piece of string I'm afraid. You'll get a much more detailed reply from someone who knows more if you post this as a question, others may not see it here

Me, I'm still wobbling after 3.5 years but that's PMR.

[DorsetLady PMRGCAuk volunteer in reply to piggypink]

Hi,

as scats says - how long is a piece of string??

As you have both GCA and PMR - I think the wobbly legs are more common with PMR - I can't say I noticed it too much with just GCA.

The exhaustion I'm afraid can be attributed to both illnesses and the Pred. Have the symptoms increased/decreased/ or stayed the same during your reductions.

From a personal point of view, I would say your reductions have been quite quick from 60mg to 35mg within 3 months. Mine were considerably slower. What has been your regime? Dose? no of weeks at that dose? reduction to? etc......

[Hidden in reply to piggypink]

Still no cuckoo. Usual spots quiet.

[Emerlad_70]

Thanks I love making things

[scats in reply to Emerlad_70]

Me too. I am therefore I make!

Why buy when you can make something unique. Mind you, I can't do what I used to.

[Yellowbluebell in reply to scats]

Maybe not as much but it hasnt stopped the fabric shopping. I have led you astray!!

[HeronNS]

Love it!

[yogabonnie]

Love this.

[Thelmarina]

Adorable!

[Oxford8]

Lovely! Well done you. 👍👍👍🌷

[Rebecca6]

That is just lovely.

[animalactivist]

That is lovely