Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2019

Carousel horse anyone?

My Dad’s GP surgery, obviously someone has a sense of humour! In case you can’t read the sign.....”Please give up this seat if needed by a person with mobility...

My Dad’s GP surgery, obviously someone has a sense of humour! In case you can’t ...

Soraya_PMR

•5 years ago

26 Replies

Hello again everyone headache question

Hi to all you lovely folk, I haven’t been posting in a while as I’ve been doing ok. Have been on 3mg for 8 weeks now (tapering from 15mg since July 17, age 50...

Hi to all you lovely folk, I haven’t been posting in a while as I’ve been doing ...

Allsgrandso

•5 years ago

26 Replies

Rubber Gripping

Because JulianJ and I both tried to post about this amazing material, I think I finally figured out how to post this image. It's a blue gripping material that...

Because JulianJ and I both tried to post about this amazing material, I think I ...

pollymarierose

•5 years ago

7 Replies

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Kefir Grains and PMR

I was introduced to Kefir grains by a lady at the Ilkley meeting last year. She shall remain anonymous mainly because I have forgotten her name? As I do most...

I was introduced to Kefir grains by a lady at the Ilkley meeting last year. She ...

Estellemac

•5 years ago

41 Replies

How long to recover if you overdo it?

This PMR is really hard to get used to. Short history: I first started pred about 6 weeks ago. I was given a super fast taper from 30mg to 0 within 2.5 weeks....

This PMR is really hard to get used to. Short history: I first started pred abou...

BoaterAnnie

•5 years ago

74 Replies

Steroid taper

Hi, can someone please direct me to pmrpro’s steroid taper plan Thank you

Suet3942

•5 years ago

9 Replies

Messages

I still am having trouble getting the hang of the messages. 🙏. Would some kind soul please explain the ins and outs. 🤗

I still am having trouble getting the hang of the messages. 🙏. Would some kin...

YuliK

•5 years ago

3 Replies

Messages

I still am having trouble getting the hang of the messages.

YuliK

•5 years ago

4 Replies

Suggestion for administration

Good morning May I be cheeky and put forward a suggestion? which in my opinion would be a great benefit to each thread. Would it be possible to give each...

Good morning May I be cheeky and put forward a suggestion? which in my opinion...

YuliK

•5 years ago

19 Replies

Low dose of Pred affecting my mood

I’m GCA two years in and now on a very low dose of Pred after taking the reductions very slowly and carefully. I’m fluctuating between 2 and 2 1/2 mg a day. I...

I’m GCA two years in and now on a very low dose of Pred after taking the reducti...

Judy211

•5 years ago

9 Replies

How to send a Private Message

Am trying to private message another member but without success. I know it's me (and I thought I was down with the kids or up with somebody else) but I would...

Am trying to private message another member but without success. I know it's me...

borednow

•5 years ago

7 Replies

Conjunctivitis and downhill from there!

Had PMR since June 2018 ..20 mg. Been doing well with 12 mg reduction achieved two weeks ago. Woke up with sore eyes, by the afternoon so bad went to A&E as...

Had PMR since June 2018 ..20 mg. Been doing well with 12 mg reduction achieved t...

Pmrmolly2018

•5 years ago

28 Replies

Nasty rash appeared

Another problem today! I woke up this morning to discover a horrible red sore rash under my left breast. It has worsened during the day. Is this related to...

Another problem today! I woke up this morning to discover a horrible red sore r...

Bowls70

•5 years ago

29 Replies

It took a missed dose to remind me...

...to remind me how effective Prednisone is in controlling PMR misery. After 33 months of the drug fighting inflammation I've bee stuck at 7 MGs for the last...

...to remind me how effective Prednisone is in controlling PMR misery. After 33 ...

salparadise127

•5 years ago

18 Replies

Ugh

Well had my doctor appt on Friday.. I was updated on my medicine from 20mg of the to 40mg because of the bad headaches... been on it for 2 days now. She wants...

Well had my doctor appt on Friday.. I was updated on my medicine from 20mg of th...

vicky561

•5 years ago

17 Replies

Tenderness over parts of scalp and over the temple but no headaches is this normal with PR?

Initially Consultant was of the opinion that he sees no benefits in a cell biopsy but was started on 40 mags of prednisolone my blood test showed an ESR...

Initially Consultant was of the opinion that he sees no benefits in a cell biops...

Birdboxinthegarden

•5 years ago

32 Replies

Notice from Admin - important please read

I thought you would be delighted to hear that HU seems to be a little bit broken this morning, and all my admin functions have disappeared. Unless that is,...

I thought you would be delighted to hear that HU seems to be a little bit broken...

Polywotsit

PMRGCAuk team member•5 years ago

21 Replies

Another hurdle

In the words of the song "I'm sick and tired of always being sick and tired" (Anastasia back in the day). No response needed, just saying.

In the words of the song "I'm sick and tired of always being sick and tired" (An...

Trish21

•5 years ago

31 Replies

Just plugging along

After being diagnosed by two Drs with PMR now one says probably not. Need you to see a neurologist. I think it’s MS. Well, that had been ruled out. But I see...

After being diagnosed by two Drs with PMR now one says probably not. Need you to...

CrazyTrucker

•5 years ago

8 Replies

Curious

Rheumatologist recommended methotrexate when I was on Prednisone 15mg per day ...to help lower the prednisone quickly. Would we still do the very slow...

Rheumatologist recommended methotrexate when I was on Prednisone 15mg per day .....

YuliK

•5 years ago

19 Replies

Prednisolone vs. Prednisone

Does anyone feel there is any advantage to taking prednisolone vs. prednisone, and if you've taken prednisolone what has been your experience with it?

Does anyone feel there is any advantage to taking prednisolone vs. prednisone, a...

Ozark

•5 years ago

11 Replies

Whats you’re favourite painkiller 😳

At the moment mine is Tramadol. 😱 Most people I know Tramadol sends them loopy. But you have to get used to it. My first time in hospital with...

At the moment mine is Tramadol. 😱 Most people I know Tramadol sends them loop...

Rocketronzy

•5 years ago

13 Replies

Two years in and now Meloxicam for pain

I haven't visited this site for a while and my journey with PMR as a companion has been fairly unremarkable for the past two years. I moved to Kent where my GP...

I haven't visited this site for a while and my journey with PMR as a companion h...

Zebedee44

•5 years ago

15 Replies

Broken Teeth

My teeth keep breaking! is this due to pred or is it just old age and/or wear and tear? Whatever the cause it is a great deal of a nuisance!!! I can't eat...

My teeth keep breaking! is this due to pred or is it just old age and/or wear a...

stellafmdm

•5 years ago

41 Replies

Newly diagnosed PMR

After seven months of intermittent pains, starting around 7 to 8 on the pain map, my gp got around to blood tests. Esr 37, and other alarming rises and falls...

After seven months of intermittent pains, starting around 7 to 8 on the pain map...

Rue9

•5 years ago

13 Replies

Problem with Liking a Post

Why am I having a problem liking a post. I press like and it goes to unlike.It doesn’t register as another like. This new format is not as user friendly as...

Why am I having a problem liking a post. I press like and it goes to unlike.It d...

Baileyw06

•5 years ago

20 Replies

What is CRP 32 and ESR 40 ?

I have possible GCA undergoing usual high dose pred/ biopsy. I had a letter from Rheumy ( copied me in as letter was to GP) It said blood test revealed CRP 32...

I have possible GCA undergoing usual high dose pred/ biopsy. I had a letter from...

cassie1208

•5 years ago

11 Replies

Oh heck!

Well following the hiatus caused by a bout of cellulitis last October, I was tapering again nicely and doing ok. Now I’ve started to gave slight twinges of...

Well following the hiatus caused by a bout of cellulitis last October, I was tap...

GerriMc

•5 years ago

9 Replies

Preds and eyes!

Not the best of weeks! After suffering the UTI which is still nagging my kidney it was time to visit the hospital Ophthalmologist. I have been taking eye drops...

Not the best of weeks! After suffering the UTI which is still nagging my kidney ...

Kael-gca

•5 years ago

24 Replies

PMR/GCA/FIBRO

I went shopping at the Bead Store and stopped at a second store. Later I had numbness around my face, blurry vision, and scattered thinking. Anyone else feel...

I went shopping at the Bead Store and stopped at a second store. Later I had num...

Dream21

•5 years ago

30 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

Carousel horse anyone?

Hello again everyone headache question

Rubber Gripping

Kefir Grains and PMR

How long to recover if you overdo it?

Steroid taper

Messages

Messages

Suggestion for administration

Low dose of Pred affecting my mood

How to send a Private Message

Conjunctivitis and downhill from there!

Nasty rash appeared

It took a missed dose to remind me...

Ugh

Tenderness over parts of scalp and over the temple but no headaches is this normal with PR?

Notice from Admin - important please read

Another hurdle

Just plugging along

Curious

Prednisolone vs. Prednisone

Whats you’re favourite painkiller 😳

Two years in and now Meloxicam for pain

Broken Teeth

Newly diagnosed PMR

Problem with Liking a Post

What is CRP 32 and ESR 40 ?

Oh heck!

Preds and eyes!

PMR/GCA/FIBRO

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