Another hurdle

[Trish21]

In the words of the song "I'm sick and tired of always being sick and tired" (Anastasia back in the day). No response needed, just saying.

[SheffieldJane]

“ “ “ 📣 🌼

[Trish21 in reply to SheffieldJane]

Thanks for the reply and encouragement

[Soraya_PMR]

There’s another (Pete Seeger I think).....My get up and go has got up and went.

[Constance13 in reply to Soraya_PMR]

Have used the expression often.😂

[Soraya_PMR in reply to Constance13]

Me too!

I wrote a poem about just that in pre-diagnosis days.

[Constance13 in reply to Soraya_PMR]

Did the ‘went’ worry you? I just had to change it to gone.😂

[Soraya_PMR in reply to Constance13]

Yes, for me it’s ‘gone’, this phrase AND literally 🙄

The song is ‘went’, maybe an Americanism? m.youtube.com/watch?v=OdNQt...(Not working as expected?)

Not a song to particularly inspire!

[Trish21 in reply to Soraya_PMR]

Yeah I used to be sooo lively, as well ce la vie

[pollymarierose in reply to Trish21]

That would describe how I used to be. It's sad when we miss ourselves but all the wishing and praying can't get "us" back. You deserve a hug!

[Trish21 in reply to pollymarierose]

Aww bless ya thanks for the thought x

[Marijo1951]

I think we all recognise this sentiment...

[Trish21 in reply to Marijo1951]

Yup I know it's so reassuring to know I'm not the only one by any stretch of the imagination

[Rose54]

Bless you it does get better but we tend to forget about the good days when we have a bad day .

Movie Day for me

The hoover is still in the middle of the Lounge and will stay thier until someone packs it away for me

[Trish21 in reply to Rose54]

Aww bless ya. It was my last day of full time work on Friday, guess the presentation and gift got to me today.

[Telian in reply to Trish21]

Bit of mixed emotions there too - it will improve 💐🍾

[Rose54 in reply to Trish21]

I will be retiring on the 6th July and I cant wait

Hopefully for both if us not working will help with managing this illness .

Rose

[Trish21 in reply to Rose54]

Congratulations, I am going to be working 20 hours a week as I can't afford to retire just yet, but I am looking forward to having more time to get myself together.

[Rose54 in reply to Trish21]

I went from 35 hours to 25 after a bad flare in July 2017 put me back to square one.

Had the choice of 7 hours a day for 3 days but knew I would never manage so opted for 5 hours Monday to Friday .

I do make sure I use extra time to just rest .

Its not easy so good luck

[powerwalk in reply to Trish21]

Oh I just finished work too. Feeling very mixed about it all. But just couldn't carry on. The fatigue was getting worse. Here's to better days!!

[Trish21 in reply to powerwalk]

Amen to that 😁

[PMRpro Ambassador]

You could spend the day commiserating with my OH! Bless him - after being in and out of hospital over xmas and again a week or so ago with more out patient stuff to come, he got up this morning all stiff and with a sore hip! Sound familiar? Told him he's caught PMR now!

Hope you feel lots better tomorrow xxx

[Constance13 in reply to PMRpro]

I hope you’re joking!! That would be all he needs!😏

[PMRpro Ambassador in reply to Constance13]

Not sure I could stand it!!!

[Constance13 in reply to PMRpro]

Don’t suppose either of you could!

[Trish21 in reply to PMRpro]

Oooh eck hope he feels better soon. If not at least he has an amazing person in you to give him some fantastic advice.

[PMRpro Ambassador in reply to Trish21]

You don't imagine for a moment he'd take the slightest notice do you??????

[Trish21 in reply to PMRpro]

Well you can but try eh

[PMRpro Ambassador in reply to Trish21]

After 48 years I've given up ...

[Telian in reply to PMRpro]

Bet he loved you for that!

[PMRpro Ambassador in reply to Telian]

I say given up - hoping that is ...

[Telian in reply to PMRpro]

Now now - you know you don’t mean it! 😇