Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,308 members • 38,045 posts

All posts for March 2019

The More Poignant Side of our Daily Battles with PMR / GCA: What Matters Most in the Big Scheme of Things..?

Greetings All, whoever and wherever you are in the often confusing Physiologically and Psychologically complex world of understanding and coping with all...

Greetings All, whoever and wherever you are in the often confusing Physiological...

markbenjamin57

•5 years ago

31 Replies

Looking for Rheumatologist in Orpington area

Help please. My SIL has classic PMR symptoms but GP says bloods are normal (no raised CRP/ESR). Referred her to a pain clinic who have given her Morphine...

Help please. My SIL has classic PMR symptoms but GP says bloods are normal (no...

Caro12line

•5 years ago

20 Replies

Stem Cell Treatments

I attended a seminar last night relating to stem cell treatments as an alternative to surgery and drugs. This was for my own ailments having to do with knee...

I attended a seminar last night relating to stem cell treatments as an alternati...

navejasjoe

•5 years ago

3 Replies

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By the way, are the coffee drinkers still drinking coffee with PMR/Pred?

Just wondering if those who were coffee drinkers prior to diagnosis drew the line at giving up their daily “cup of Joe.”

Just wondering if those who were coffee drinkers prior to diagnosis drew the lin...

3daysinjuly

•5 years ago

78 Replies

Return of Giant Cell Arteritis

I was diagnosed with GCA in March 2010 after losing sight in left eye. After Several relapses I have got to 6 mg of Pred. I have taken reduction very very...

I was diagnosed with GCA in March 2010 after losing sight in left eye. After Sev...

Heather270240

•5 years ago

12 Replies

Muscle Weakness and Pred

What are your collective thoughts on bladder weakness in relation to everything else we cope with having PMR? I think it’s a muscle like other things in our...

What are your collective thoughts on bladder weakness in relation to everything ...

Estellemac

•5 years ago

75 Replies

Will increasing pred relieve fatigue?

At this point in my PMR journey fatigue and exhaustion are my primary complaint. I started on 15mg pred about a year ago in February and quickly reduced to...

At this point in my PMR journey fatigue and exhaustion are my primary complaint....

Ozark

•5 years ago

27 Replies

Follow up re alternative pain relief and sciatica

I have put a follow up post on my original post but thought I'd start another so that you can all see it. Thanks to everyone for all the helpful advice. I went...

I have put a follow up post on my original post but thought I'd start another so...

Footfairy-1

•5 years ago

61 Replies

newbie with jaw pain

Hi all you nice people! I'm so happy I found this sight. I've been reading it everyday and have learned so much more than any of my doctors have taught me....

Hi all you nice people! I'm so happy I found this sight. I've been reading it e...

pattypoo01

•5 years ago

3 Replies

Steroid withdrawal symptoms

I thought I'd find out what others feel when tapering their dose and consider steroid withdrawal. I am doing well as I dead slow taper from 9mg to 8mg. Sunday...

I thought I'd find out what others feel when tapering their dose and consider st...

IdasMum

•5 years ago

18 Replies

1mg Gastro Resistant Prednisolone received yesterday

When I had my daily telephone call with the pharmacist yesterday to check if they'd had a delivery, I almost fell off my perch when she said yes, but I only...

When I had my daily telephone call with the pharmacist yesterday to check if the...

joyce69

•5 years ago

8 Replies

Upcoming support group meetings/meetups

We're pinning this post so that it's always visible. PMRGCAuk Support group leaders, and meetup organisers, can post here when they have a meeting coming up....

We're pinning this post so that it's always visible. PMRGCAuk Support group lead...

Polywotsit

PMRGCAuk team member•5 years ago

1 Reply

East Midlands Uk support group

We are having a support group meeting on Saturday 16th March. We have a speaker who is a Dietitian (also trained as a Nutritionist). It is at 11.00 in...

We are having a support group meeting on Saturday 16th March. We have a speaker...

Hidden

•5 years ago

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Hip replacement

I am having a hip replacement shortly and I wonder if any of you have had this done and have any advice? I have had GCA for 4 1/2 years and have finally...

I am having a hip replacement shortly and I wonder if any of you have had this d...

PenelopeVita-Finzi

•5 years ago

17 Replies

Sacroiliac joint pain

Sacroiliac joint pain So heres the deal, I have developed sacroiliac joint pain on Right side of hip. The ortho pain specialist gave me 1 cortisone...

Sacroiliac joint pain So heres the deal, I have developed sacroiliac joint pain...

Purplecrow

•5 years ago

12 Replies

Blood tests

Tomorrow I have to give a complete blood sample for my rheumatologist..I have to fast 14 hours before. Should I take my Prednisone at my usual hour of 2am...

Tomorrow I have to give a complete blood sample for my rheumatologist..I have t...

YuliK

•5 years ago

8 Replies

GCA/PMR Tapering below 25 mg, hitting a wall

Being treated for PMR/GCA since early Dec 2018. No biopsy performed to get a conclusive GCA diagnosis, but the headaches (temporal region), symmetrical pain,...

Being treated for PMR/GCA since early Dec 2018. No biopsy performed to get a co...

Lucy2013

•5 years ago

28 Replies

Calceos Vit C and D

There seems to be a question mark with me and Calceus I was prescribed it to begin with on 40mg pred by the GP. Then the R-consultant has also put Calcium and...

There seems to be a question mark with me and Calceus I was prescribed it to be...

survivalist

•5 years ago

12 Replies

Eyes

Does anybody else have watery eyes but the discharge is clear and sticky?? Am on 8mg but debating whether to go up to 9 as shoulders really aching 🙁

Does anybody else have watery eyes but the discharge is clear and sticky?? Am on...

1964-karina

•5 years ago

8 Replies

A Good Result

I just wanted to update the conversation I had recently regarding a very confusing set of symptoms and many thanks to all who responded. I am pleased to report...

I just wanted to update the conversation I had recently regarding a very confusi...

Laurapc

•5 years ago

5 Replies

Hurts to shake hands

Under 10 mg really makes my hands hurt. The other day my friend shook my hand and I thought he had broken it. Just another damn complaint/vent.

Under 10 mg really makes my hands hurt. The other day my friend shook my hand an...

3daysinjuly

•5 years ago

44 Replies

The benefit of PMR? Simplicity

After 3 years into this autoimmune thing my husband and I congratulated ourselves the other night because we have learned to cope. And on further reflection I...

After 3 years into this autoimmune thing my husband and I congratulated ourselve...

bunnymom

•5 years ago

67 Replies

TA Biopsy

Not a big deal. Actual operation start to finished 20 minutes I could see the clock this is exactly right. Comparing to going to the Dentist. TA takes a bit...

Not a big deal. Actual operation start to finished 20 minutes I could see the c...

survivalist

•5 years ago

10 Replies

Methotrexate

Update to my post about being scared to take methotrexate, took my second dose on Sunday and can report that I've had no side effects as yet. I've had pmr for...

Update to my post about being scared to take methotrexate, took my second dose o...

Hidden

•5 years ago

9 Replies

TED talk about exercise, fatigue and diet

THis excellent and funy video will debunk several "truth" about exercise, fatigue and diet. See if you like it. https://www.youtube.com/watch?v=4lzs5wpLkeA

THis excellent and funy video will debunk several "truth" about exercise, fatigu...

nickm001

•5 years ago

13 Replies

wimped out again...found another excuse

This is me thinking out loud. if you find it annoying, I'm sorry, but fully understand. Further to my utter skunner of pred, even at 15mgs following PMR...

This is me thinking out loud. if you find it annoying, I'm sorry, but fully unde...

Rue9

•5 years ago

26 Replies

What other pain relief can be used while taking Pred?

At the moment my PMR seems to be under control but now I think I have sciatica. It started with pain in the lower back radiating down th right leg 😱😱. The...

At the moment my PMR seems to be under control but now I think I have sciatica. ...

Footfairy-1

•5 years ago

27 Replies

Does size matter?

Awake at 3.30am again ...... aching in shoulder blades which have felt for the past couple of days. I am wondering if it’s the size of hydrocortisone tablet I...

Awake at 3.30am again ...... aching in shoulder blades which have felt for the p...

Pollyanna16

•5 years ago

36 Replies

Vegan diet and gca/cpr

Last night a friend and I were discussing my diet. Her daughter is vegan so I thought I would ask if anybody here is vegan and has this horrible disease....

Last night a friend and I were discussing my diet. Her daughter is vegan so I t...

shazstep

•5 years ago

25 Replies

CBD and GCA

Is anyone on CBD??

alvertta

•5 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

The More Poignant Side of our Daily Battles with PMR / GCA: What Matters Most in the Big Scheme of Things..?

Looking for Rheumatologist in Orpington area

Stem Cell Treatments

By the way, are the coffee drinkers still drinking coffee with PMR/Pred?

Return of Giant Cell Arteritis

Muscle Weakness and Pred

Will increasing pred relieve fatigue?

Follow up re alternative pain relief and sciatica

newbie with jaw pain

Steroid withdrawal symptoms

1mg Gastro Resistant Prednisolone received yesterday

Upcoming support group meetings/meetups

East Midlands Uk support group

Hip replacement

Sacroiliac joint pain

Blood tests

GCA/PMR Tapering below 25 mg, hitting a wall

Calceos Vit C and D

Eyes

A Good Result

Hurts to shake hands

The benefit of PMR? Simplicity

TA Biopsy

Methotrexate

TED talk about exercise, fatigue and diet

wimped out again...found another excuse

What other pain relief can be used while taking Pred?

Does size matter?

Vegan diet and gca/cpr

CBD and GCA

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